Your questions for the doctors?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 4/3/2009 8:17 AM (GMT -6)   
Ok, you all have done a TREMENDOUS job answering my questions. I still cannot express how thankful I am to have such an understanding community. I hopped over here because I was *lost* and everyone embraced me and I never have felt more comfortable before!

Here is my *list* of questions....can you help add to them? As I'm going through my day.. I'm reminded of a few more. I swear I need to leave a notepad at my bedside as I think of a ton just before bed!

Questions for the doctor...
  • Post surgery restrictions (cleaning, lifting, sports, etc)? How long?
    How long off work?
    Pain management?
    location – right or left? Reasoning?
    What kind of incision? How big?
    Will I have an ostomy nurse to help with bag changes until comfortable?
    How long is the surgery?
    What does the opening look like?
    How does the hole stay sealed around the bag?
    How long will I stay under post-surgery?
    Will I receive supplies in the hospital? Enough to go home for how long?
    How is showering with an ostomy bag? Will I required to wait for a certain time period post surgery?
    How long do you go without eating? What’s the gradual process back to food?
    How long is the prep? What is it like?

Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/3/2009 8:44 AM (GMT -6)   
Good questions!
But you will need to ask the ET nurse the qestuions the bag, like showering and such. as a general rule the surgeons dont know a whole lot about them.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/3/2009 9:18 AM (GMT -6)   
Post surgery restrictions (cleaning, lifting, sports, etc)? How long? It will depend on type of surgery...open vs. lapro...if you haven't had other surgeries, I would suggest finding a doc that does lapro (shorter recovery)

How long off work?  also, depends on surgery

Pain management? everyone is different...I do vicodin and dilaudid

location – right or left? Reasoning?  Ileo on right...Colostomy on left...usually!!

What kind of incision? How big?  Depends on type of surgery

Will I have an ostomy nurse to help with bag changes until comfortable?  In the hospital, they'll do the majority, but they'll want you to try...you may be able to get a home nurse to help for a week or so, but the sooner you do it the better you'll be.  My hubby has NEVER changed mine, but some spouses do change them

How long is the surgery?  Depends

What does the opening look like?  The stoma?  it's a "red rosebud"  look on line for pics

How does the hole stay sealed around the bag?  technology...great adhesive stuff:)

How long will I stay under post-surgery? everyone is different

Will I receive supplies in the hospital? Enough to go home for how long?  They'll give you a few changes and place an order that will be sent to your house.

How is showering with an ostomy bag? Will I required to wait for a certain time period post surgery?  Usually you can shower right away, but you'll probably have to be careful with your incision...I just covered it with plastic wrap until my staples were out.

How long do you go without eating? What’s the gradual process back to food?  Once your bowels wake up (gas/output) you'll start on liquids and progress to softs and then low residue for whatever your doc prefers

How long is the prep? What is it like?  If you have to do it, it depends what your doc likes...but they sux so go to clears a day or so before to make it easier on you.

I like to know my answers before I ask the question...it gives me a better perspective...so I answered these.  You may have more now, but you've got great ones for your doc...not long now tongue

Post Edited (OHIO76) : 4/3/2009 12:46:09 PM (GMT-6)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/3/2009 2:51 PM (GMT -6)   
Kaycie --- I am the queen of notes to myself... yes, I do have a notepad and pen in my nightstand, and one in the kitchen, and of course, my purse. They always say that writing down everything on your mind when you are having a hard time falling asleep will allow you to clear your mind and drift off more easily. I do.

I would be sure that you know who your contacts are and phone numbers outside of business hours, like on the weekends, if you have an issue (NOT saying you will). Better to know just in case.

You have a great list of questions for the doctor but as Ohio said, most of them are sooo individual to each patient, and the surgeon may not be able to answer some of them until AFTER the surgery. You may also be able to find some of the answers on the internet and we can help to fill in the gaps as well, but it will be Our experiences which may differ greatly from what you will experience.

When is your appt with the surgeon? You may have said, but I don't recall right off hand.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 21, 2017 8:52 PM (GMT -6)
There are a total of 2,871,529 posts in 315,110 threads.
View Active Threads


Who's Online
This forum has 156617 registered members. Please welcome our newest member, wusibenjk3.
421 Guest(s), 16 Registered Member(s) are currently online.  Details
PeteZa, Wings of Eagles, MDNative, PeterDisAbelard., Ides, sebreg, cspivak, Bodan, The Dude Abides, Girlie, WalkingbyFaith, Lynnwood, ebonyeyez06, MK1965, wusibenjk3, Tim Tam


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer