permanent loop ileo v.s end ileo and disfunctioning j-pouch

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LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 4/9/2009 10:08 AM (GMT -6)   
My j-pouch surgery has failed and I will be keeping my loop double barrel stoma rather than getting an end ileostomy.  My surgeon says that since I've had multiple stoma sites and with all the scar tissue and the running out of space for another stoma he wants me to keep the one I have.  My question is: Will a loop ileostomy last forever just as a end ileo would?  My surgeon also says I should not have my j-pouch removed b/c the surgery is quite serious due to all the blood vessels.  My other question is: Will my disfunctioning pouch be okay in there for the rest of my life?  Has anyone else had this?
 
Thank you for your help.

33 yrs old, Mama to my darling daughter (7yrs) and my little boy (3 yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Antibiotics Prednisone Imuran 100mg
Double dose of Remicade every 4 wks STOPPED BEING EFFECTIVE
Had a total colectomy Aug 1st 2008 2 step J-pouch, disconnected and reconnected
2 takedown sugeries, infections, leaks, multiple drains
Will be keeping my loop ileostomy, will not be removing disfunctioning pouch at this time
 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 4/9/2009 10:36 AM (GMT -6)   
Typically failed jpouchers have everything removed. You might ask this question at www.j-pouch.org

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 4/9/2009 4:06 PM (GMT -6)   
hey, I have the same thing, I've had my ostomy for 9 years and have had my jpouch there. The only problem I've had was having a infection in the jpouch, and my Dr. gave me antibiotics and it cleared it right up.
You can email me anytime turn
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 4/9/2009 5:11 PM (GMT -6)   

Pepperann ~  Thanks for the reply, I feel better knowing there is someone out there willing to share with me.  I'm assuming then that you do not have an end ileo, but a loop, has that ever been a problem for you?  Do you have alot of mucus discharge from your pouch and if so does it ever slow down.  I have what seems like mass amounts of it daily and as time goes on it seems more and more difficult for me to control and hold it in.

Thanks again for your reply.


33 yrs old, Mama to my darling daughter (7yrs) and my little boy (3 yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Antibiotics Prednisone Imuran 100mg
Double dose of Remicade every 4 wks STOPPED BEING EFFECTIVE
Had a total colectomy Aug 1st 2008 2 step J-pouch, disconnected and reconnected
2 takedown sugeries, infections, leaks, multiple drains
Will be keeping my loop ileostomy, will not be removing disfunctioning pouch at this time
 
 


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 4/9/2009 5:24 PM (GMT -6)   
I did have mucous from it but after I got the antibiotics I haven't had any. My loop ostomy hasn't given me any problems. The mucous I had from the pouch usually came out every time I urinated and it was alot, you could ask your GI Dr if he/she can give you some antibiotics, I forgot the names of them, they were perscription antibiotics.

Dusti
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 

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