T-minus 5 days before the operation - Generally I am ok

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schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 4/11/2009 9:57 AM (GMT -6)   
during the day.  It is at night when I try to sleep.  Or when I think about all the new processes that I will have to go through.  And my MIL's comment still resonate somewhat - especially the one about her being able to tell if someone has had an ostomy by a telltale smell to them - she say beyond her friend, she "knows" of people at her church because when she goes on Sundays she can smell them and know.
 
I know intellectually that is irrational, but I am probably not as rational a I could be right now.
 
Again, Any product number for the adhesive spray would be appreciated - I think it was Hollister.  I guess I didn't copy that into my notebook, I was keeping to make life easier for me.
 
Last night I fell asleep at 5AM.  I should have gotten up and done something, but I didn't want to wake the house.
 
I am going to go out just with my wife to shop a bit, and hopefully that will take my mind off things as well.
 
You guys are spectacular in helping me deal.  Although I am still scared to death - you are making it possible that there is light at the end of this tunnel.
 
with love to all
bob 

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/11/2009 12:33 PM (GMT -6)   
hang on Bob! Thinking of you and thanking you for the support you've given me.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/11/2009 1:34 PM (GMT -6)   
only five more days, you can make it! If it gets too bad, call the dr and ask for some valium or soemthing to help get you through.

Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 4/11/2009 2:02 PM (GMT -6)   
Hang in there Bob. I am amazed, in awe, and have a high respect for all of you who have had to deal with IBD and surgery.
 
As for the adhesive spray, Bratcat tried the 3M Cavilon No Sting Barrier Film Spray. She never liked it but then again, she hates anything on her skin. Many people on the forum love it! I looked on an old order form from Byram (who we used). The catalog number is 3M3346. Not sure if that only applies to Byram or all companies. We still have a bottle (1 oz). If you want it, it's yours.
 
We haven't gotten around to it, but we have quite of bit of supplies left over. I will post them on the forum for anyone that may need them and has to pay alot for them. We were lucky and all her supplies were 100% covered. So we were able to order alot and not have to worry about rationing (except when we forgot to place an order!).
 
By the way, be prepared for your MIL to say she can smell you even if no one else can. I think she will be predisposed to believing that and nothing you say will change her mind. Just try to ignore her comments. I am sure if there is an issue, Mrs. shrek-chewbacca-hunk will mention it to you in a gentle, loving way.
 
Hope you enjoy(ed) shopping!


--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp

Post Edited (Bennie) : 4/11/2009 2:06:00 PM (GMT-6)


chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/11/2009 2:57 PM (GMT -6)   
good luck to u. try not to worry and enjoy the next few days. i still in hospital they keep telling me i am doing well. every day gets better, expect some highs and lows and dont be too hard on yourself on the lows. all the best will be thinking of u x
Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/11/2009 4:52 PM (GMT -6)   

Bob,

I think your MIL has it wrong. The people who smell are the ones who don't have ostomies. You see, our farts are securely contained in airtight bags, and theirs are out there for the world to smell! he he he smilewinkgrin

In the 3+ years that I've had an ileostomy, I've never had a leak, and there is absolutely no odor! So, please, please, please don't worry about that.

Nighttime is the worst when you've got stuff on your mind. When that happens to me, I usually take a sip of Nyquil, and it puts me right to sleep. I'll be thinking about you next week and praying that everything goes well.


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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