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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/11/2009 5:15 PM (GMT -6)   
Everyday since the surgery at some point between 4 and 8pm, I experience a lull--sometimes with depression and tears always with exhaustion. I had thought it was the percoset but now I'm just about off of it. During the lull, I get all worried about the pouch, whether my small intestine will hold up, get frustrated about my recovery, etc.. i've been trying to take xanax then or rest or watch a movie but sometimes I get so down. Anyone else experience this post op? Will it go away? I'm in week 7 of my recovery (set back a bit by the food poisoning/stomach bug). Should I be worried?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/11/2009 6:12 PM (GMT -6)   
No, you shouldn't be worried. That is normal after surgery. Your body has been through a lot, and the medicines have their own side effects, too. It will go away.

When I feel down, I'll start to think about people who live in very poor countries and how they don't have clean water to drink or food to eat, and then I'll think about how utterly blessed I am and will instantly start to feel better.

It's like I have to snap myself out of some kind of hormonal, emotional funk that shows up out of nowhere about once a month. hmmmm.... I wonder what could be causing that?? rolleyes

Also, talking on the phone with family and friends and coming on here helps a lot, too. That's probably why I have over 1,500 posts! tongue

I hope you start feeling better soon.



Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/12/2009 1:29 AM (GMT -6)   
It is quite normal in the initial days after the surgery. Do not worry. Keep yourself occupied with family and friends. Do all that you wanted to do earlier but had no time to do. Read good books. I too suffer from depression and it is more in the morning. I have feelings similar to yours, when I feel like crying.
Keep a positive attitude.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 4/12/2009 12:22 PM (GMT -6)   
I, too, feel this way at moments throughout the day.  I have recovered from surgery fairly well, but will find myself feeling blue about misc. things.  I don't want to take any meds for it, because I am so thankful to be med free.  Going outside seems to help, whether it is for a walk, or a drive to run some small errand.  Hang in there!  We will get through this.

scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs  5mgs. prednisone, 20mgs and tapering every ten days
51 years young


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/12/2009 2:36 PM (GMT -6)   
Saint John's Wort and B-vitamins are natural mood enhancers, if you want to give them a try instead of taking a prescription anti-depressant.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/12/2009 2:41 PM (GMT -6)   
You can read more about the different natural mood enhancers at http://life.familyeducation.com/mental-health/social-emotional/35986.html
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 4/14/2009 5:44 AM (GMT -6)   

I can so relate to you as last year was the surgical correction (somewhat) to charkot disease that I was diagnosed with...I had eight surgeries last year, and was in the hospital and nursing home for seven moths of the year.  Even in the last month, when things were going well for me physically (relatively) - and they gave me a go home date - I started crying.  I was depressed, all the time, except when I did some physical therapy sessions - that is the only time I was able to take my mind off of what happened - and what I perceived I did to my family.

Now here we are in the same boat this year - and I fully expect that the body trauma and drugs, lack of independance, and what I perceive a normal life to be will all fall down on me again.

My doctor in fact warned me about that.  I think let yourself grieve for your body for a while, and then if it lasts what seems like a longer than "normal" to you period - maybe 2 more months? Then I would see someone, It could be your spiritual advisor, a confidant, or a shrink (I usually hate that word).  But let yourself grieve what you have been through - that is so normal.  To repress it, will only make it worse and take longer.

I happen to be a Christian, but I read the Dalai Lama's book "The Art of Happiness", and it helped me a great deal.  Also, A friend turned me to a computer guided meditation called Wild Devine with Healing Rythems - I got it as a recovery gift - but it is expensive $350, or so.  It is a biofeedback meditation guide that for me made me feel much more alive and vital.

I hope you find your answer soon.  But I think you are just grand the way you are.

With love to all,

bob

 

y

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/14/2009 8:01 AM (GMT -6)   
Hi Bob

I msut salute your courage and will power. Keep it up. All the happiness and good health to you.
We learn a lot from people like you.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 

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