Hanging pouches

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moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 4/12/2009 12:32 PM (GMT -6)   
When I came home from the hospital, up to last week, I was wearing Hollister mini pouches, which I liked because are small and fit in my underwear.  The downside to them is that it seemed like I had to empty them all the time.  I ordered some samples of the regular sized pouches, which I am currently wearing, and like because I can wait longer between emptying.  My question to all of you who wear longer pouches is how do you deal with the pouch hanging out of your underwear?  Do you let it dangle down on your leg, or do you tuck it up somehow?  The style I am using has a velcro closure, and I worry that if I let it hang down the velcro will get bumped and let things flow.  One person told me she wears 2 pairs of underwear and tucks the tail end up in between the two pairs.  I have tried this and it seems OK, but sometimes it seems too cumbersome.  Please share your tricks of the trade!  Thanks.
scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs  5mgs. prednisone, 20mgs and tapering every ten days
51 years young


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/12/2009 2:32 PM (GMT -6)   
I like the mini's, too, but don't wear them very often for the same reason.

With the longer pouch, I fold the bottom of the tail upward and tuck it into my undies. My pouches have a velcro closure, too, and you don't have to worry about the velcro coming undone, even if it's not tucked into your underwear. It holds really well, and I've never had one come undone in the 3+ years that I've had an ileostomy. :-)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/12/2009 4:35 PM (GMT -6)   
i do thesame thing ce-ce does. I worried about the velcro coming undone if it was just hanging down there too, plus its annoying!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/12/2009 7:37 PM (GMT -6)   
I do something similar...I turn the end up and tuck it between the pouch and its cover.  It takes one or two times to figure the best way to get it into that area, but once it is there it stays by itself...and I put my undies over it.  You'll be surprised at the Velcro...it is pretty indestructible tongue

Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 4/12/2009 7:52 PM (GMT -6)   
If you are concerned about the Velcro failing, (as I am), I got a box of clips from the non-Velcro ended bags from Convatec, and use them on top of the velcro. That wa if one fails, the other works.

I use the Hollister 8531s. Easy to cut to fit and normally just wear shirts outside my pants, although when I need to get into business attire, they work quite well tucked in my slacks.

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 4/12/2009 9:48 PM (GMT -6)   
I wear my bag at an angle pointed towards my groin area. That way it doesn't hang down, instead it all fits neatly in my underwear and is in the right place for me to sit on the loo and empty my bag between my legs :)
 
It also has the advantage in that, as it fills up, it's distributed across my tummy rather than down one side and I don't look lopsided :)
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 4/13/2009 9:13 AM (GMT -6)   
Thank you, everyone! I changed my appliance this morning, and placed it at an angle. I am wearing one pair of panties, and have folded the end of the pouch up into them. I will try tucking the tail under the "fabric" on the pouch, also. You are all so awesome for replying. It's not like I can go out to coffee with my friends and have a conversation about this! So, thank you for being my virtual coffee dates!
proctocolectomy with permanent ileostomy 2/19
off all meds!
51 years young


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/14/2009 8:16 PM (GMT -6)   
You're so funny! I'm glad we could help. Whenever I post in the morning, I always have a cup of hazelnut coffee by my side. :-)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 4/15/2009 2:19 PM (GMT -6)   
Moreglorydays......Do u urrigate every morning? I do that and dont have any output thurout the day.....Use to small bags and have so much more comfort......kim/maggie
Maggie in tennessee....coping


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/15/2009 8:27 PM (GMT -6)   
Kimlin08/Maggie --- do you have a colostomy or ileostomy? I've never heard of irrigating an ileostomy? I know it is an option for colostomies, but never heard or it with an ileostomy... My food goes thru me much too quickly for irrigation to even help. Besides I have had several feet of small intestine removed as well.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 4/15/2009 9:06 PM (GMT -6)   
Peggy, i have a colostomy....and im so new to this all im trying to learn as much as i can......thanks for explaining the difference.....I will have my reversal or try in august.....but really they arent sure it will be a sucess and honestly im thinking in my head it could go either way.....kim

Maggie in tennessee....coping


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/16/2009 3:40 AM (GMT -6)   

Maggie,

No Problem.   That is what this forum is all about - learning.  So ask away... anything we can help you with, let us know.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/16/2009 6:33 PM (GMT -6)   
could you see all of us...at Starbucks, drinking coffee, showing off our appliances and comparing notes!?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/16/2009 8:01 PM (GMT -6)   
LOL that would be soooo funny!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/16/2009 8:05 PM (GMT -6)   
Can you imagine someone eavesdropping on that conversation!!!  It would serve them right!

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/17/2009 5:39 AM (GMT -6)   
Yes, I could definitely see us doing that! :-)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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