lizzie the spasms are your bowel waking up it might appear. i was given buscapan for that but your drs might not want you to have that. dont take morphine or could make spasms worse i was told.
its awful i know - i felt like i was dying but made myself walk up and down the corrider for about 10 mins or 5 mins in your case as you are so weak - i am sure they are sending physiotherapists to you to see you now? you cant be left alone to walk if you are weak and you havnet eaten for so long. my main prob was the nausea and the air inside me not moving out very quickly. it took a week to pass. take care now and you will be ok.
Still in the hospital, but doing better. I am off my IV and its heplocked. My ileo started working last night...they had to put a catheter in it and it openened up. It has been 10 days and I thik I may be able to go home tomorrow if I can eat ok. The output is a lot right now. Is this normal? I feel I have to empty it every hour? I am not sure what brand, but they ordered me some two piece 6'' ad 9'' bags,some with clips and some with roll and lock? I am on vicodin, motrin, and neurontin right now and have bene moving around pretty good.
Just some questions. I have been very emotional and crying, esp since I changed it on my own (which was not that bad being a nurse and all).
Is it normal to feel sad like I do and to not feel so sure about what you have on your body?
What happens if someone runs into it and bumps it? Can this hurt it?
When does the output slow down and its making loys of noise does this slow down or go away as well?
Having an ileo it does not small that bad, but it still does. They have told me to use mouth strips? Has anyone ussed this before?
Can you wear yournormal clothes? I think it pouches a little. DO youall where something (esp girls) under your shirt t o hold it down like a body tannk or something?
I know you said you can drink....does it affect you differently?
Just some of my questions. I will have more. Going to try and eat lunch.
Thanks for you replies....its so n ice to hear the way I am feeling is normal. I had a very hard emotional day yesterday and cried on the drop of a dime. I am still on some pain meds (vicodin, neurontin) so I am sure they are not helping me get back to my true normal happy self.
I think I will do better when I cant see the output. Right now I have a see-through 9 '' bag on that drops to my leg. I am a small, petite person, and so they have ordered me a mini bag to try out. I am hoping the opaque bag helps me with no constantly looking at it and cringing in disgusts. As for many of you who went all to often, I never went so it is wonderful to see something come out of me and I am SO happy this will giv eme my life back, its was just so sudden, and I did not have time to fully research it and know what to expect. although.....I am not sure I could have ever been prepared.
The brand they have on me is hollister? Is this good? I have a two piece and I do not know the name of it. I just changed it for myself yesterday. I measure 1 3/8 right now? Is that big? and they said it will shrink....it was 1 1/2 and still appears swollen. I puut a ring thing that is kinda sticky around the stoma and then apply the wafer. Does this all sound good and normal?
THey think I will go home today, but I had SO much output yesterday they are concerned I would be back in a day if it kepy up this way with dehydration. So I have to wait it out to see if I have less output and I can drink better. I feel a little weak today and definately sore. I have been here for 11 days now, but in reality I am only Day 5 post-op. Thanks again for you replies. It helps during this scary time.
hows it going - so glad you are getting output and on the way forward.. i was an emotional wreck in hospital - but you have even more reason to be emotional after all your trials. i would cry at watching dancing on ice when someone danced really amazingly....!!lol. Just be patient.
I was totally grossed-out by the smell and look and couldnt contain myself with that - but it took a good couple of weeks for it to change - it depends on your appetite. if you eat lots of white carbs, crisps and jelly sweets it will thicken up eventually. it is hard to eat after surgery.
i am using Coloplast Sensura one piece - it is fine - no leaks or anything, only when i didnt clean my skin properly once which was my fault. My nurse gave me lots of booklets and stuff to read - didnt you get anything like that yet? it really helps to have info at your fingertips. My only problem is itching and soreness - i think i have sensitive skin. also around the stoma is still sore as it is rather flat now and it is tiny just under 1/2 inch. it shouldnt be changing anymore as i am 6 weeks post-op tomorrow.
i have started to use either paste or the rings like you are using. i use the Hollister rings and cut them in half and mould them around the stoma hole. isnt it a a chore Lizzie??? its like changing time for a baby except more difficult. especially when it starts to work when changing it. make sure you choose a time well after or before eating. i also use powder around the stoma and i am just getting used to changing the bag after all this time - it takes a lot of practise and getting confident.
Hi you guys...
Not doing so well. Got out of the hoiptal late Sat. I have been crying ever since and having paince attacks and withdraws from the narcotics. I cannot stand looking at this bag and I want it off of me. I was doing fine and then I came crashing down. I have not stopped crying in over 36 hours. I have at at home nirse coming today. They called me in some zofran to help with my newly etreme nausea. I was hardly able to eat anything yesterday.
There are atimes I wish I could go back to my life of constipation, but then i know how miserable I was. My family and husband have been doing everthing they can, but I cannot snap out of it. I am a week post-op today. My hisband is afraid I might tryi and hurt myself, but I wouldn't. Anyways ....just checking in.
oh babe i am sorry - its been a short time since this op so it will take time. its important you rest and not worry about anything. the tablets for nausea will help - i had big issues with nausea because of the anaesthetic - it took well over a week to get over the nausea, but it will get better. just take eating very slow and eat what you really feel like eating even if it isnt nutritious.
its hard i know but you will start to feel better, even though you hate the bag - once things settle you will be ok and find a new lease of life i am sure. xx
I am so sorry you are having a rough time with your new situation. Please don't feel alone in all of this and with your emotions. I would bet you the majority of us have gone thru some of these very same feelings during our first few days at home. It is natural... like a grieving process on top of anesthetic and paid med withdrawals. Your body has been through more than you can imagine in a very short time. It is coming to terms with its new plumbing as well. ALL of this can affect your brain chemicals as well, and in turn affect your emotions. Please post on this site and let us know how you are feeling. We've been there, we know, and we can try to help you, if you let us.
Xanax is probably not a bad idea. Are you still taking any pain meds? Are you in any pain?
I know eating is probably the farthest thing from your mind since you are nauseous. But do try to drink as much as you can. Maybe just a few bites of pretzels or saltines with something to drink, several times an hour to start. Keeping a few bights down like this will help with the nausea too. All of those digestive juices are really back into action - everything has woken up!
So I am back in the hospital. I have an abscess. Right now I only have one, but I have another CT before I go back down to interventional radiology. I got my new bad, its opaque and much smaller. It fills quicker with these fluids and I am sure one I start eating, but I have not had terrible amount of out of my stoma. Is this normal. I have no appetite....only cherrios and some powerade zero. I am down to about 108. Right now I am NPO again for sedation for interventional radiology.
I feel a little better than I did about the bag, but I am still looking into Cleveland Clinic and a consulation soon. I see my surgeon May 15 for my three wk check-up.
Just checking in. I went to my pcp yesterday and they started me on celexa and 1 mg ativan three times a day.......i feel like a druggy.
So they drained a bunch of stuff (nasty stuff) from my abscess, but I am still in a lot of pain and short of breath. They did a cXR and there was no clot. I have had no fever, but have been on Zosyn since ER last night. I am still on just sips of clears, nothing sounds or looks good. They have talked TPN a little....since I have only been on reg diet 3 days since 4/7. We will see though....they may advance tomorrow.
OHIO- I am very interedted in the Cleveland Clinic. I am interested in a consultation to see if there is any chance of reversing my bag since it was of emergent nature. I have never been there and it is out of network for me....I am scared and lonely and sad. They have me so drugged up its hard to cry, but at least I did not want to pull my stoma out today. I have never been this low in my life. I called Dr. Remzi's office today (he performs k-pouchs) and also I just want his opinion. I feel bad b/c my surgeon has been wonderful......I do not want him to feel inadequate, its just some do more than others.
Anyways, the ativan is kicking in.