STILL cramping. . .

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/25/2009 1:05 PM (GMT -6)   
I've been cramping up under my sternum since Monday. It comes in waves and sometimes with gas. Tylenol, codeine, and xanax are helping but it's not going away. Doesn't really seem to be relate to what or when I eat. Sometimes, it feels like really bad butterflies but mostly it feels like crohn's cramping.


Then, yesterday, I ate a breakfast meal that I've eaten twice since surgery--didn't give me problems then but came out completely--seriously, the bag was just filled and filled with my poached eggs, bacon, potatoes, and tomatoes. ???

Any help/ideas on the cramping would be appreciated.
At surgery, my small intestine was clear. I'm getting rather scared. GI said to let it go a week and stay away from dairy and icy drinks/foods.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/25/2009 1:28 PM (GMT -6)   
i dont know what that could be. Sometimes certain foods do come out whole,like carrots, but i have never seen bacon do that. Now french fries come out really thick sometimes and sort of still together. I dont eat eggs (ick, lol) or tomatos so i dont know about that.
as for the cramping, maybe gas, or maybe like a heartburn kind of thing?

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 4/25/2009 6:59 PM (GMT -6)   
I get that a lot, even when I had UC. I have found that heat helps. I use the bed buddy in the microwave for about 90 sec and hold it on for a bit. I don't know why it happens or what causes it. I suspect gas but I don't know for sure. Try the heat! I hope it works for you. I know the feeling, it is awful!

25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/26/2009 8:31 AM (GMT -6)   
I've been using heat, switched to motrin, taking codeine, 1/2 a xanax at a time---I'm still in pain. i just don't get it. It's just waves of cramping under my sternum and now everything in that area is so tender. This is making me so depressed cry While I feel a lot stronger than I did 8 weeks ago before the surgery, I'm scared and now eating is becoming a terrorizing experience again. Don't know what is causing this pain or why.

See the surgeon tomorrow. Hoping my sed rate is down and not showing active disease.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/26/2009 9:26 AM (GMT -6)   
Hi Sammies
Please chew your food properly. Avoid fruits, vegetables, corns, or anything which has skin. As the skin of tomatto is bound to get stuck inside stoma, and would cause lot of discomfort, including but not limited to blockage and gas. I had suffered this with potatoes during my first surgery. They got stuck and the stoma had to be irrigated/drained with pump after 24 hours of discomfort.
Take Care
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/26/2009 3:01 PM (GMT -6)   
PSA thanks for the advice. The stoma is cranking just fine. Just surprised me as all the "little stars" pasta I put in my soup this afternoon just poured out into the bag. UGH. I've been eating those for weeks. I just don't know.

Could it be that I've had this pain all along but am feeling it now that I'm off pain killers (aside of OVC stuff)?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/27/2009 5:41 PM (GMT -6)   
saw the surgeon today and talked to GI too. Glad to have a good team. GI's inclination was that I had a partial blockage and was ready to try to dialate the stoma. GI said NOT a flare (yahoo!--I'll see the blood work this week) However, surgeon did not find evidence of a blockage. He said that there is definitely some kinking and twisting going on. He reminded me that my "second opinion expert" had advised us to do the surgery in at least 2 steps but he and his partner were able to do it all at once. This, he said, could definitely cause some trauma to the body. So, I am using a combo of motin, xanax, and codeine. Am to try vicadin if I need it. Just forced myself to take my 1/2 hour walk--I am so slow but I am moving. Gotta get ahead of the pain with the meds and stay hyrdrated. i am relieved but I am still hurting.

So my surgeon is retiring this week. sad I feel so blessed to have been with him but do like his partner. ON to the next adventure. . .

THANKS for the support--I continue to need it!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.

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