Good news and sad news.

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 4/28/2009 9:22 PM (GMT -6)   
Good news: Reminder- I got a blood clot after my surgeries and had to start coumadin to prevent further clots. They did an anticoagulant test while I was in the hospital and it came back positive (which is bad) but I hoped it would be a false pos. b/c I was on heparin and that can happen.
I got tested again and IT WAS A FALSE POSITIVE! YEA. I get to get off coumadin in 4-ish months! yipee.

Bad news: All had been going ok with appliances finally. I have a routine and I mostly know what to expect from them. So I decided to take a bath b/c lots of people do and have no problems. It was fine when I went to bed, but when I woke up at 3 a.m., it had leaked all over. The worst leak I'd had.
WHAT'S THE DEAL!
Now I'm afraid to go swimming. sad
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/28/2009 10:22 PM (GMT -6)   
YAY for the good news!

BOO for the bad news, lol.
Did you get it dry compelty around? i would say that they aren't related, unless you are using skin barrier wipes, when i used them when i would get wet it would come off.
But if you dont get it dry good it can cause problems

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/29/2009 6:30 AM (GMT -6)   
Congrats on the coumadin.. so nice to hear that you can stop taking that. And a relief to you as well, I bet.

Did you put any bath oil or salts in the tub water? Keep in mind that could loosen the appliance. Or if you are using a soap with a lotion in it and then sitting in the tub, that may loosen it. I would not give up on taking the tub bath... maybe experiment. Be sure to dry the appliance well. I know you may be hesitant, but I have to say, even tho I'm not much of a tub bath person, I have used our jacuzzi tub a few times with pretty hot water in it and the jets on full blast with no problems. Best of luck in the trial and error process. You will get it figured out and be able to enjoy them again.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/29/2009 10:09 AM (GMT -6)   
Yay and Boo!!

There must be a factor to make that happen...I've gone swimming in a pool and ocean without issues. The skin prep's can cause failure...bubbles in the bath?

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 4/30/2009 2:00 AM (GMT -6)   
No skin preps. After experimenting lots, I have found that the appliances work better without it. Just clean/dry skin to wafer. I even don't use paste when I wear one-pieces b/c they seal better that way.

BUT It was a bubble bath. I was taking a bath with my baby and we used the Johnsons baby soap for the bubbles. It's very moisturizing. I didn't even think of that.

If it wasn't completely dry, It would've dried eventually. Do I have to take a hair dryer to the pool?

.........seems like THAT would be embarrasing.

(dang it! I still don't know how to spell embarasing. LOL)
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/30/2009 3:10 AM (GMT -6)   
A lot of folks don't even bother drying the wafer, pouch. Some just towel dry. It's up to you. It will eventually dry on it's own. If I'm out at the pool, I just towel dry. Whatever is most comfortable and convenient.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/7/2009 6:47 AM (GMT -6)   
hairdryer on low works pretty good. takes a few minutes longer but well worth it in the long run to avoid an episode at 3 in the morning. that would probably have you saying AH S$%T! seems like this part of becoming a member of this club. sorry about the bad news.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 5/7/2009 11:00 AM (GMT -6)   

Chassity, Chassity, Chassity...those darn bubbles.  : )

I'm so happy your test came back negative!!!  Whoo-Hoo!!!!

I'm a little nervous about swimming too b/c I've never submerged myself since Penelope came along

I'll talk to you soon!!!

smurf
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown

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