why high sed rate???

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/29/2009 11:00 AM (GMT -6)   
I'm so upset. My sed rate is over 130 (as it was before surgery). I thought all the inflammation went when they took my colon and rectum. I don't understand. Is it common to have a high sed rate after surgery? I'm crying so hard--so afraid the crohn's is back.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3039
   Posted 4/29/2009 12:17 PM (GMT -6)   
Sammies--take a breath, don't worry until you have answers! What has your doc said? Will you be going for a CT Scan?

Sometimes we get little pockets of fluid left behind after surgery...remember that a proctocolectomy is a MAJOR procedure! Personally, I had to have a drain put in a few month's after surgery when I started with a fever and became really tired:( I didn't expect it and it was a surprise...maybe you have something going on too.

Have you been feeling okay? Is your bottom all healed? how about your incision? Let us know what your doc plans to do...sometimes a course of antib's can do the trick, depending on what it is.

Don't forget you can cry on our shoulders cry

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/29/2009 12:44 PM (GMT -6)   
OHIO76--you have a place in heaven. Surgeon decided I don't need a cat scan b/c he sees no sign of blockage, adhesion, or obstruction. Things are working so well for my ostomy and my endurance and strength have improved. My incision is healed and my rectum wound which started at 10cmx7cm deep is now 2x3!! Even with the food poisoning set back--which was a major one--the rectum wound healed. He did say, as you have so patiently reminded me, that I was sick, sick, sick before I went in, my colon was almost completely diseased, and this was MAJOR surgery. So, he thinks all the cramping is from the small intestine kinking, twisting, and getting used to its new role.

I should be grateful and excited. But I'm so worried about such a high sed rate. Good news is that my white blood cell count did come down again in two weeks 11 down to 6 and my reds, although quite low, are on the rise. Protein is still low along with albumin and carotene.

THANK YOU for letting me cry and worry!!! You have been so helpful to me!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/29/2009 8:49 PM (GMT -6)   
Sammies -- Like Ohio said, take a deep breath. Relax. Just let your body heal and recover. It's good they are monitoring your labwork, but don't get totally hung up on it. Be sure to ask your doctor all your questions so you are fully aware of why levels are high or low. Most of what is happening right now is just your body getting back into the swing of things! Take Care....
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 4/30/2009 1:52 AM (GMT -6)   
I feel dumb b/c I don't know.
what's a 'sed rate' ?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/30/2009 3:07 AM (GMT -6)   
Chasblah said...
I feel dumb b/c I don't know.
what's a 'sed rate' ?

 From WebMD.....  hope this helps.
 Peggy
 

Sedimentation Rate

The sedimentation rate (sed rate) blood test measures how quickly red blood cells (erythrocytes) settle in a test tube in one hour. The more red cells that fall to the bottom of the test tube in one hour, the higher the sed rate.

When inflammation is present in the body, certain proteins cause red blood cells to stick together and fall more quickly than normal to the bottom of the tube. These proteins are produced by the liver and the immune system under many abnormal conditions, such as an infection, an autoimmune disease, or cancer.

There are many possible causes of a high sedimentation rate. For this reason, a sed rate is done with other tests to confirm a diagnosis. After a diagnosis has been made, a sed rate can be done to help check on the disease or see how well treatment is working.

Why It Is Done

A sedimentation rate (sed rate) test is done to:

  • Find out if inflammation is present.
  • Check on the progress of a disease.
  • See how well a treatment is working.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 4/30/2009 10:37 PM (GMT -6)   
Wow.
I don't think I've ever had it checked. interesting.....

Well, then Sammies-surgery alone can cause inflammation. Maybe the # will go down.

What's your doc say.

(p.s.-don't ever say What's up doc? to your dr.-I guess they hate that.)
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/1/2009 11:55 AM (GMT -6)   
talked with GI this am. Liver is more of a worry than the sed rate--alk phosphatase number is 357--high. Liver enzyme numbers are good.

GI is still worried about the cramping I have and wants to dialate my stoma even though surgeon says no need--no evidence of obstruction. So GI said we'll give it a little more time.

hemoglobin and hemtocrit are still very low. Protein/prealbumin and albumin still low too.

ugh--I just want to stop worrying!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.

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