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TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/3/2009 5:03 AM (GMT -6)   
hey there fellow ostomates! i have a question for you all.
since youve become a bag wearer, how do you folks sleep? i myself WAS a stomach sleeper and now, NO WAY!
was there some getting use to being a back sleeper? not to mention the paranoia the bag popping or worse yet the LEAK! luckily i dont need a lot of sleep 5-6 hours a night and im good. do any of you sleep on your stomachs is it possible? when i wake up so far no leaks(knock,knock) but i have a huge whoppee cushion. junior as i call my meatball has produced a a lot of gas. not to mention waste. are there any of you that have slept for 8 hours or better w/out being nuts about THE BAG? ive adjusted to sleeping like this but does the paranoia of a mishap lurk in the back of your mind? talk to you folks soon.

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/3/2009 7:05 AM (GMT -6)   

I am on about week 7 now i think from surgery.  Sleeping was not easy as i am a side sleeper switching from side to side throughout the night.  Was too sore to sleep like that after the op and had to sleep on my back.  I too still get the nerves about having leaks etc at night.  Have not had any problems like that but do find myself getting up a couple times at night to go to the bathroom which sucks.  I am hoping that as time goes by i will be able to sleep more.  Last night i took a loperimide tablet before bed but i didnt notice much difference.

I dont wear anything to bed so maybe if i had some boxers on or something i might feel more secure.

I am hoping that once i am backat work (in the next week or so i think) i will be so tired by bed time i will sleep a lot better!

All the best :)


Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions
No Joy!
 
Colon Removed 18 March 1:30pm!
Ileostomy
Option for Jpouch but have not made my mind up yet!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/3/2009 7:28 AM (GMT -6)   
i sleep on my tummy or my side or both sides or just however,lol.
It really helps me to sleep with a waterproof pad under me, that way i dont worry about leaks.

TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/3/2009 7:38 AM (GMT -6)   
sounds like u & i are a week or so behind each other 2morow will be 5 weeks for me.
thats a good point i go back to work 5-18. maybe after a days work ill be whipped and sleep like i use to like a rock (on my back tho ) how about your bag tho are you paranoid itll pop or worse yet leak then again if youve become an expert and are wearing the right stuff that shouldnt be a problem. im a lifetime ostomate now doc says things were really bad. i had uc in 92-93 wore a bag for 11 months went thru all 3 ops. i had a j-pouch and didnt regret it except when i found out that spicy food wasnt for me. now i was hit w/ crohns and the damage has been done my j-pouch will be remove in september. life w/ a j-pouch was great after you get thru the rough stuff i pretty much had to potty train myself. oh and when you would fart thats not a good thing either i had to find out the hard way and a couple pair of fruit of looms later. all in all my life was back to normal. is the uk in your screen name mean your from the united kingdom?
hang in there, just healin and dealin

TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/3/2009 7:42 AM (GMT -6)   
summerstorm are you for real you sleep on your tummy? WOW! man that would be great! im just worried about THE BAG hence the screen name. as time goes on ill get use to it and grow a set and see what i can and cannot do.

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 5/3/2009 8:03 AM (GMT -6)   
I love sleeping on my stomach, but I don't dare now. I am actually afraid of hurting/pushing in the stoma.

So, I sleep on either side and on my back ( which I never did).

I have to wake up once at night to empty bag. I used to feel the need to get up twice, so I am doing better.

I HATE the way the bag fills up with air; this even happens at night. I go back to work TOMORROW (YIKES) and excited but nervous. I have never emptied my bag anywhere but home, so this should be interesting.

smhair
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone down to 10 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/3/2009 8:16 AM (GMT -6)   
so we are told the stoma is pretty tuff but i sure wouldnt want to be punched but sleeping on it wont hurt it. its THE BAG that will hurt by popping or leaking. im afraid of sleeping on my sides too. to much weight and youre sawing them off and oops look what i foung a leak. AH S!@T!
i had the 3 step j-pouch in 92-93 wore a bag for 11 months then i was reversed life was good. now i get slammed w/ crohns and this time its 4life. c'est la vie!
i can ususally make it thru the night but when i just happen to wake up for unknown reasons i ALWAYS reach in and check THE BAG. have to be strong there are folks out there w/ worse problems than us so we have be thankful for each day we are given.
give it hell 2morow jblue bring your travel bag just in case.

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 5/3/2009 10:56 AM (GMT -6)   
Thanks Bag---- I plan to give 'um hell and I just packed my travel bag turn
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone down to 10 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/3/2009 12:13 PM (GMT -6)   
good luck going back to work Jackie--wow. I'm at 8 weeks and going back even now would be unrealistic for me. I 'm a little green here with envy on your healing but happy for you.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/3/2009 12:50 PM (GMT -6)   

Yeah i am in the UK - couldnt think of a good screen name!

I am a little paraniod but as i havent had a problem yet and i seem to wake myself up when it needs emptying i dont worry too much.  before my surgery my UC was quite quiet ( i waited till i was strong to have the op), so getting up in the night in a way is a step back for me - but no more UC so that far out weighs that.

Jackie - all the best for your back to work day, i will be thinking of you.  Let us know how you get on. Dont worry about emptying - i find it far easier than going to a public bathroom with UC.

 


Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions
No Joy!
 
Colon Removed 18 March 1:30pm!
Ileostomy
Option for Jpouch but have not made my mind up yet!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/3/2009 2:06 PM (GMT -6)   

Once you get farther along in your recovery, you'll be able to sleep on your stomach!  I have always slept on mine and don't have a problem with it...should your pouch fill up, you body knows to turn itself!!  I usually wake up on my back when that happens:)

You could try gas-x before bed...it does help tongue    And as far as working and your pouch filling up with air, try a pouch with a filter...they aren't all created equal and some WORK better than others, but I wouldn't use any other type of pouch!!! 


TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/3/2009 2:19 PM (GMT -6)   
hey ohio76 we chatted the other day. looks like atlantas coming to town tuesday for a good ol fashion cleveland butt whoopin!
no kidding... sleeping on my stomach will be possible one day, huh? wouldve never thought so w/ THE BAG.
see my problem right now is that i also have a supra-pubic tube. this is in place till september. then i go back to have my j-pouch from 92-93 removed doc said that eveything is so infected w/ crohns and the ileostomy is 4life.
you say the gas-x helps calm the farting at night. will keep this in mind for the future. thanks

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 5/3/2009 3:19 PM (GMT -6)   
I sleep on my stomach too. I guess I am used to 'knowing' when to turn over even in my sleep. Most early mornings I kinda wake up and I am on my back, go to the bathroom, empty, and come back to bed and sleep back on my tummy because I know I will be good for another couple of hours!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/3/2009 3:38 PM (GMT -6)   
hi there badgirl. wow you too. ohio76 does as well. i dont know how you folks do it? im paranoid to the utmost and i have a supra-pubis tube ( not the traditional cathater ) this is right in the pubic hair area. plus the foley bag. so once this is gone ( in september ) i can adjust and only have to contend w/ THE BAG. do you have problems w/ gas at night? youre not worried that itll pop? just amazed and paranoid.
WOW!

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 5/3/2009 4:06 PM (GMT -6)   
I was SOOOO sore for three months after surgery even the thought rolling over made me hurt to think about so it did take some time. And then I just naturally started going back to my stomach. Yes! I do fill up with gas and the other stuff but I THINK I just roll over to my back while I am sleeping when it does just like Ohio said! The ONLY time I had a problem was when the bag wasn't securely fastened to the flange (user error) and I just HAPPENED to be at my sister's house for a week. And POP. I was doing laundry at 3:00 in the morning! I am 2 years out and I am still worried about going to get a massage in case I 'fill up' when I am getting one but I have an appointment for my first one two weeks from now!

Things will gradually happen for you as you get used to it. You are still in early recovery!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/3/2009 4:44 PM (GMT -6)   
I too start out sleeping on my stomach.  By morning tho, I am over on my back or side, usually back.  I'm sure that the body "knows" when to turn over, but it is learning about it's new appliance too, so just give it some time.  Yea, I was paranoid as well.  No worries.  It'll all just happen, when you least think about it.  And I would think the cath would be more of a pain than the ileo as far as sleeping on your belly.  But I have never had one like that so Unfamiliar with it.
 
You sound like you are doing great... been lurking and watching the conversation too.
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/3/2009 4:59 PM (GMT -6)   
hey badgirl the bag actually just popped omg that would really suck. that would cause me to let out a BIG AH S@#T! well i guess ill get up and take a shower do laundry and use few choice words. this is one of several concerns that i have. im not sore anymore its the pubic tube that gets on my nerves. yes peggy the suprapubic tube is just a hassle. just suffer the short term for the long term. be thankful you dont especially w/ the summer coming. THE BAG is easy to conceal but the pee bag on my leg comes down to my knee and a little further. its gonna be challenge. HEY I LOVE A GOOD CHALLENGE! had to cap it b/c i mean it! all things considered peggy, yes im hangin tough go back to work 5-18. that will be an adventure. be more like a social event b/c i havent seen my co-workers since 3-26.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/3/2009 5:58 PM (GMT -6)   
i sleep on that waterproof pad just in case i do have an issue at night, then all i have to clean is me and the pad, not the whole bed!

i have been sleepign on my stomach since i could stand to lay on it, i usually wake up because i have to pee anyway, but if i dont i find that i wake up from a dream about bathrooms when i need to empty my bag, lol. And i am usually on my back when i wake up too.

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 5/4/2009 12:36 AM (GMT -6)   
I don't know how you guys are able to sleep on your stomach without messing up yourselves!!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/4/2009 2:33 AM (GMT -6)   
TheBag said...
 HEY I LOVE A GOOD CHALLENGE! had to cap it b/c i mean it! all things considered peggy, yes im hangin tough go back to work 5-18. that will be an adventure. be more like a social event b/c i havent seen my co-workers since 3-26.
You sound like you have your mind in the right place and haven't asked many questions about managing things for your return to work, which means you must be doing pretty well.  There is always a way to manage it... sometimes it just takes some confidence.  And, I think you will eventually sleep on your stomach, when you become confident enough.
 
WHat kind of work do you do?  It will be good for you to get back to your "work family" as I always called mine.  Don't plan on doing much work the first day back!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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