back from reversal surgery

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Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/4/2009 2:25 PM (GMT -6)   
So i got home 3 days after my reversal. I couldnt believe they let me leave that early..i wasnt in too much pain. She sent me home with pain meds but im not taking them. Im not hurting where my incision is..sometimes it hurts for a few seconds but it goes away. The problem im having is pooping! Its not that i cant poop..its the exact opposite..i CANT stop pooping..I bet im going every 15 mins..and i deff have buttburn! BAAAD I have meds to put on it but it doesnt seem to help when im pooping it still burns almost unbearably! And when i poop, its not D..its like, kinda mushy poo (sorry if im grossing anyone out) but ill sit there and my butthole will hurt SO bad like theres pressure there but only a tablespoon of poo will come out..and im in there for 10-20 mins at a time. Now, im trying to ignore the fact that theres pressure and trying not to think about pooping bc my dad knows a guy who had this done and he said for 2-3 months! I dont wanna go through this for that long! It just sucks sooo bad! I went from feeling sick every single day! and being in pain and having D everyday..to having my bag which made me feel like myself again. I was SO happy with my bag. And I thought id be even more happier without it but im not. Im so miserable. I mean yeah its only been 5 days. but this is like pure torture! and everyone keeps telling me to be patient. but its SO hard to be when your pooping your brains out! Can anyone relate to me and shine some light on this subject? Please and thank you veryyy much!
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 5/4/2009 2:42 PM (GMT -6)   
Recovery is hard and the adaption period takes TIME. To help make your transition easier are you:

1. Taking metamucil to bulk things up?
2. Taking imodium or lomotil to slow things down?
3. Using calmoseptine on your butt?
4. Taking frequent sitz baths or regular baths?
5. Keeping a food journal to measure transit times?
6. Getting any exercise, like walking?

If you do the things noted above you can be more comfortable but it still will take TIME. Expect improvement in 6-8 week increments. Be patient and find activities to take your mind off of your BUTT.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 5/5/2009 6:26 AM (GMT -6)   
I agree with the view expressed by suebear. It takes some time for the J pouch to adapt to the new system. In so far as the crapty stuff is concerned, initially there is lot of rot coming out of the system. It stinks like .... After a week or so, you will have D, but of a better shade and fragrance. You must consider following the advice of suebear.

Take care and keep us posted.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/6/2009 10:35 PM (GMT -6)   
How are you doing? I have my takedown soon...I'm nervous. I loved your post with all your advice, you have such a great attitude and you will get through this. This has got to be better than it was before, right?
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/7/2009 8:44 AM (GMT -6)   
Hey! Im doing better today..still hurting a bit but its only been a week so i expect that. And I couldnt figure out why this surgery was harder than the last..but my surgeon said steriods numb the nerve endings and i was on 20mg when i had my last surgery but have been off of them since december so it didnt numb them this time (kinda wish it would have LOL) I cant really stand constant pain so i think thats why im having a little trouble with dealing with it this time. I mean, its not constant but every now and then itll hurt for a while. Ice will become your BFF =) I woke up this morning at 3am and ended up taking loritab and fell asleep with an ice pack on my side. It was the only way the pain would die down enough for me to fall asleep but I think its bc i slept on the side that i had my surgery on. Im not trying to scare you but i dont wanna sugar coat anything and make it seem like its going to be amazing..so im sorry if this isnt what you wanna hear lol =( Well ill try to write more when i get back but im off to get my stitch taken out..ahh im so scared about that lol pray it doesnt hurt =)
God Bless
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 5/7/2009 9:34 AM (GMT -6)   
Hi Bella-
How are you doing in terms of your jpouch- frequency and pain??

Just wondering since I am going to have my reversal sometime this fall.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone down to 10 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/8/2009 6:27 AM (GMT -6)   
So I finally got the stitch taken..I was freaking out that it would hurt but everyone kept telling me I wouldnt even feel it..well. I felt it lol It stung pretty bad for about 10 seconds but it felt longer than that! And the funny thing was when I asked the guy who was taking out it to PROMISE me it wouldnt hurt he just looked at me and said it wont hurt as bad as the other things youve went through. And I was thinking ohh crapp this is gonna hurt..And it just stung. It didnt kill me lol Im still here :-)  My surgeon didnt wanna put any stitches in. She just wanted to leave it open and let it heal from the inside out but I asked her before surgery if she was gonna leave it open and said I didnt want it that way so thats the only reason she put that one stitch in. So your surgeon might not even put a stitch in.
In my opinion, as of right now..I wish I wouldve waited til I graduated to get my reversal..just because I missed prom and I graduate the 29th shocked And im afraid that my bowel wont be settled down enough for me to walk across the stage..Im walking even if I have to wear a diaper hahah!
 
Jackie, the pain has died down a lot. I wake up every morning (idk why) at 3 am and then again around 7 am and it hurts a little to get outta bed but thats expected. The gas pain actually hurt more than my surgery when I was in the hospital. It was killer pain that went up through my shoulder and hurt til I layed back down. Make sure you always ice your belly if its hurting..Thatll help alot!! And my dietician came to my room at the hospital and told me to stay on a very low fiber diet and to try to stay away from a lot of sugar. But it was nothing different that I was eating..I couldnt eat candy before my surgery anyway bc it made me sick and hurt. And I never eat wheat bread or anything with lots of fiber in it.
 
The hardest part for me is that im a teen..and I HATE being in the house all the time. When I had my bag I felt amazing and was almost never home during daylight. I was always out running in the park or driving around or going somewhere..and right now i have to stay at home close to a potty. The other day I did go get food with Dereck and I was gone about an hour and felt comfy just getting outta the house. But then yesterday I went to my gmas to get popsicles (sugar free =p) and i had to use the potty when we got to her house. And it always seems like when im eating something like 2 mins later and im still eating..i have to stop and go to the bathroom. Thats annoying. But I talked to my doctor yesterday and he said I look really good for what ive been through and im doing good. Considering its only been 10 days since my surgery. The butt burn isnt bad bc my poo is pretty much solid and hard. I actually ended up taking stool softners one day. And my surgeon told me itd be really runny D for 2-3 months. So you cant really go by anyone on here since everyone is so different. You may have D where as I dont have it.
 
I hope my BM's slow down ALOT in the next couple of weeks. Its getting better though. Just gotta take it day by day. Thats the best advice I can give to you. One day, you might have a HORIBLE day! but then the next day you might feel better and not potty as much. So just take it day by day :-)
 
 
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


Neuro
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/11/2009 3:17 AM (GMT -6)   
Hey, bella!

I'm new here. In March, 2009 I also had the reversal surgery.
I wish you to keep up the good spirit and recover quickly!

Lana

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/11/2009 8:45 PM (GMT -6)   
Lana,
 
Welcome to HW.com!  How are you recovering from your surgery?  Thanks for posting...
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/11/2009 9:18 PM (GMT -6)   
Bella!

You sound like you're doing great! Keep posting...I love reading your posts, you seem like me a bit. I have my reversal in a month, I'm nervous. I hope all is well. Also, you give great advice!

Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Neuro
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/12/2009 2:29 AM (GMT -6)   
Thanks, peggy113 :-) I'm doing really fine, already recovered and even doing some sports yeah
I already wrote a lot about my experiences here at Ostomies and also at Ulcerative Colitis. I'm glad to see in your signature that you don't have problems with MC any more wink

Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/12/2009 2:42 PM (GMT -6)   
awe glaciergrl thank you =) I wish you were my teacher haha You would understand unlike some of my teachers blahh but whatever haha May29th Im outta there and off to college =D I wish you luck with your reversal and im doing well! Im actually getting ready to go to the mall haha Still pottying about 7 times a day but I eat alll the time (just snack a lot) need to get outta the habit of snacking and only eating 3-4 times a day. Im down to 1-2 BMs everytime I eat and I only wake up 2 times during the night which is better than 3-4 when I had UC =) Let me know how your reversal goes..where are you getting it done at?
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/12/2009 7:07 PM (GMT -6)   
Thanks... you're sweet!

I'm having my reversal done at University of Wisconsin Hospitals. I like it there, I really like my surgeon. I'm a little nervous about the reversal though. Time will tell I'm sure. I'm having it done when I'm done teaching summer school! Keep the updates coming!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006

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