reversal time peroid?

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glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/8/2009 4:31 PM (GMT -6)   
How long does it take after a takedown/reversal before you can venture away from the bathroom? I realize that it varies for everyone but I'm getting a little concerned. I've been reading a lot on here lately and I'm getting a bit worried.
 
Can anyone shed some light?
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 5/8/2009 6:49 PM (GMT -6)   

Well for me it was right away.  Sure, I still knew where all the restrooms in town were for the first 3 weeks after takedown but after that things got more predictable.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 5/9/2009 2:54 AM (GMT -6)   
My takedown was 4/13, and I feel comfortable going out and not worrying about where the bathrooms are. I sort of know, since I had an ileostomy and would worry about that for emptying.

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/9/2009 3:44 PM (GMT -6)   
I don't have mine scheduled yet, but I am a little nervous. I was selected to be a camp counselor for a week for Camp Oasis. It's a camp for kids going through Crohn's and Colitis. I'm guessing that it will be about 3 wks after my takedown and I should still be able to go. I really want to go!!!!! Ahh...so many things going on with this crazy ileostomy!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Neuro
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/11/2009 3:30 AM (GMT -6)   
I felt fine very soon after the surgery, but as I spent 10 postoperative days in hospital, my first bold adventures mostly included walks in the hospital park :-). When I came home, I started going out the very next day. Of course, I still know where all near bathrooms are but I feel comfortable and rarely use them.

Good luck with your reversal, glaciergrl!

Post Edited (Neuro) : 5/11/2009 3:34:20 AM (GMT-6)


crossyourfingers
New Member


Date Joined May 2009
Total Posts : 4
   Posted 5/11/2009 7:03 AM (GMT -6)   
Wow! What a positive post. It's so nice to hear that some people get back out in the real world
so quickly after take down!! I will have mine in 4 weeks and have been so worried. Did any of you lose any of your rectum>
I had Colorectal Cancer so I have lost most ( not all) of my rectum and a foot of my colon. What did they remove on you for the J pouch?
I think most of you have had all of your colon removed. How about the rectum?

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/11/2009 9:20 AM (GMT -6)   
I lost my entire colon and my entire rectum! I lost it all! I just want to be able to do things asap after the takedown. I'm worried that I won't be able to.

25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Neuro
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/11/2009 12:19 PM (GMT -6)   
I'm an ex-UC patient, so I too lost my entire colon, rectum included.

As for the postop activities, you should avoid intensive and hard physical activities for a month or two. But some light and moderate activities, such as walking, are recommended.

It has been almost two months now from my reversal surgery, and I started roller skating and swimming. And it feels great!!!
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