Questions before surgery

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jjfromga
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 5/8/2009 6:37 PM (GMT -6)   
I saw my doctor this week and we have decided that a colostomy will be my best option, so I am supposed to have surgery soon. I don't have a date yet but it should be either at the end of May or beginning of June. I'm excited to feel better, but pretty nervous about having surgery. It will be laparoscopic of he can do it, so hopefully that won't be so bad as open for recovery. I already talked to the ostomy nurse over the phone and we are going to meet next week. So my question is what should I ask her, what do I need to know before surgery? I want to make a list to bring with me so I don't forget anything.
Thanks for any help!
Lauren
Chronic Constipation
Pelvic Floor Dysfunction
Botox Injections-2008
Biofeedback- currently


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/8/2009 10:06 PM (GMT -6)   
are you having a colostomy or an ileostomy?

anyway the questionswill still be close to the same.
When you go, wear clothes like you wear all the time, she will mark the area for your stoma and you want to make sure it is well placed for your clothing
Ask her about the dif kinds of bags, and go ahead and start ordering samples.
She may tell you of a bunch of stuff you need, most likely you wont need a good bit of it, lol. I had this huge list of stuff and we ordered all of it, and most of it has just sat there for two years!
You need to ask her about irrigation if you are having a colostomy.
If its an ileo you dont need to ask about that.
I am drawing a blank on other stuff.

here is something that is the most important thing i can think to tell you, i so wish i had known this.
When you wake up from surgery you will most likely have on a clear bag and be able to see EVERYTHING and the stuff that comes out of you is going to be this nasty nasty nuclear waste colored green stuff that will smell like death warmed over and killed again! I freaked out cause i thought it would always be like that.
BUT once you start eating, it will change, so by the 3rd or 4th day it should be better. I dont know if this happens with colostomies or not, but if they feed you red jello you will have red output tat looks like blood with an ileo!
its gonna hurt, so be sure you get with your dr about pain control before surgery.
Take some gas-x with you or make srue you hhave a script for it!
anyway, good luck and YAY for being healthy!

jjfromga
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 5/9/2009 1:41 AM (GMT -6)   
Summerstorm- thankyou! It will be a colostomy so I will be sure to ask about irrigation. I am very interested in trying it. Thankyou for the hints and the warning about the output at first. That would be enough to scare me too!! Now I'll know to expect it. I really can't wait to feel better, I'm just afraid I'm gonna wake up from surgery and wonder what I've just done to myself. Is that a normal fear?
Chronic Constipation
Pelvic Floor Dysfunction
Botox Injections-2008
Biofeedback- currently


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/9/2009 1:56 AM (GMT -6)   
It is a totally life altering event - and you should be concerned. However, by listing the pros and cons of having this surgery, I think you will realize that the pros overcome the cons and you will once again be healthy. You will be able to start life over again, so to speak, feeling like a new person. Yea, you will have some adjustments. Having an ostomy really isn't bad, it's just an adjustment. Once you overcome the mental part of it, it's just a part of life. Does all that make sense?

Once you make your decision, go forward. Research all there is to learn about having a colostomy. Be prepared. With the internet, researching and finding answers becomes so much easier. Communicating with us here on this forum is a good learning tool as well.

Best of luck to you and be sure to ask any questions you may have. That is what we are here for.

I know there are many "satisfied customers" here on this web site - me for one. I didn't have a choice when I had my surgery but I am one of those very satisfied customers. I have a new life, without Crohn's Disease. What more can I ask for? I lead a very normal, active life. And I love to eat!!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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