I think everyone else covered your questions pretty well. The only other things that I can add is:
Ask for a spare pillow at the hospital. You can use it as pressure against your sore belly when you have to sneeze or cough or sit up. It really does help to hold it against your abdomen. It's also nice to have to place behind you if you want to lay to one side, rather than on your back all the time.
Notepad and pencil, just in case you think of something that you want to ask your surgeon or doctor. Your memory may not be the best but jotting down a few notes will help.
Laptop to keep in touch with us!!!!!
Best of luck to you,
Did you find a local surgeon....
I think everyone has done well explaining. I was in a lot of pain and am still having issues. I has some breathing issues post PACU and had to have narcan four times to get me to breathe better....that was the worst experience ever. I had the pain pump for three days and then IV dilaudud, neurontin, and motrin. I was on 4/7-4/18, then 4/20-4/24 with abscess. My surgery was on 4/13, so really for the surgery I was in 5 days, but should not have gone home quite yes since I was back two days later.
I felt this was a much more painful surgery than the TC......having a midline inscision was much more painful to me and everyone is right about the clear bag. It sucks.......I could not stand it and the opaque bags ar emuch better, but they have to visualize the stoma. I had trouble with mine working....it too almost four days and they actually had to put a catheter in it to help dilate it becuase it was so swollen.
I took 8 weeks off, but I may take 2 more. I am planning right now to go back June 8, but I just do not know if I am strong enough. Let us know how your appt goes.
Do all ileostomy patients have midline incisions? If so, how long are they? I had a long vertical incision for my total colectomy, but I'm not very knowledgable about an ileostomy, yet.. Can someone tell me about the incisions, and do you use a pillow in front of you to walk? Is it hard for you to get in and out of the hospital bed by yourself?
Everybody, thank you for all of your wonderful and quick responses. I am really blind about this surgury at this point, but I just want my life back and to not have to worry about being constipated all of the time. Since the docs at Cleveland Clinic said that this is best for me, that's good enough for me. I'm having my surgery locally, so I won't have to be 8 hours away again and am praying that everything will be alright. I had wonderful docs at Cleveland Clinic and I hope that everything feels the same as I go thru this, again.
I've just completed my eliostomy surgery on April 15th. Recovery is going fairly well considering all that has happened.
My question is, could not find anything related, "has anyone experienced any breathing/pulmonary problems following their surgery?" Since surgery I've not been able to sleep lying down, ever since the recovery room I've had to sleep sitting up in a chair. Only this week have I been able to sleep on my side, proped up by pillows. Still not lying flat. I feel like I can't get my breath. I can breath fairly normal standing, but if I sit there's a marked difference and lying flat on my back is just impossible. Just realized yesterday that I can't even sniff.
I had spent 8 days in the hospital following surgery, was home for three days but had to go to the ER due to the shortness of breath. They ran alot of tests and found nothing. CT Scan, ZT-Scan, Echocardiogram, Resportory tests, blood tests, etc. Their final thought was it may be a mucus plug.
A visiting nurse suggested it my be due to inflammation of internal organs putting pressure on the diaphragm/lungs when I sit or lay down.
Any ideas ....
Thanks - Bob
Butterfly I got mine at Victorias secret....they have cotton ones and they work great. They have all sorts of colors. I got the darkones fornow just in case and bought some sexy for later :)
I bought the 5 for $25. Some were pink and white polk a dots, others were grey with white dots. Today is finally here. My appointment is at 4 this afternoon and I'll let you all know how I fare. Thanks for all of your help preparing me..
If you were me, are there any questions that I should be asking my surgeon today?
This is one of my first opportunities to share rather than to ask for help. I am four weeks weeks out from a complete illeostomy and rectal removal. My ostomy is not painful anymore, actually that stopped around weeks 2 to 3. Honestly my rectal removal was tougher and am still on a wound vac as well as wet to dry depending on whether we can get a good seal around the buttocks. Honestly I still am in pain in that area, and when the visiting nurse changes the absorbent material it is extremely painful, coming through the strong pain meds.
My strength is just coming back now in week four, but I still have fatigue and need a nap every day. I do have trouble sleeping during the night, as my rectum (or was my rectum) hurts and I have back aches which I am told is common.
I don't tell you these things to scare you, but rather to prepare you for things that I wasn't expecting. I have not been able to read anything meaningful other than magazines - I think because of the drugs.
I will be seeing my surgeon on Friday, again 4 weeks out - so I will update this when I see him.
I was told by him that I will be completely myself in three months. I hope it comes alot sooner!
Good luck to you,