Had colectomy..happy, but very difficult recovery

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 5/10/2009 8:14 AM (GMT -6)   
Had my colectomy on May 7th. I was very fortunate. Apparently, some of the drugs we had been using were working, but not enough to kick it all, so they only needed to remove my sigmoid, anus, and most of my rectum. They kept part of my rectum so there is a chance of reversal later. However, I like this so much, I'm not sure I'll ever reverse it! Can't wait to get the opaque bags..the clear one is kind of gross, but I know in time... My ostomy nurse is awesome.

I had a very very hard firsy 36 hours. My epidural failed. I was numb only to my belly button, and everything above my belly button to my ribcage was in extreme pain. They upeed the epi and then my entire lower body immediately felt numb, so they pulled it immediately. So, I've been dealing with extreme pain since. It has gotten under control since sometime yesterday, but i spent much of Thursday night and Friday screaming because it hurt so bad. I had an inconsiderate nurse who refused pain medicine because I looked drugged up....it was so bad the charge nurse got involved and she took care of me until the next shift and whenever they moved me to a private room.

I have had someone here non-stop with me since surgery...my husband just left for a couple hours, but will be back later and I have lots of company today. Hope to get my catheter out today and get a shower as well.

Oh, and my bag started working at 48 hours post surgery, so they said that was great news. I've been sipping a little soda to help push and start some gas and it has helped. I still have no appetite really... but just taking this little by little. I've been sleeping a LOT...

just wanted to update.

Kaycie
Oh, think it was a sigmoid-colectomy and it was about 12-18 inches removed.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/10/2009 11:39 AM (GMT -6)   
Kaycie,

You sound that you had a rough couple of days, but are shining thru it now! You have a great attitude. Best of luck to you and in your recovery.

ps Happy Mother's Day!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 5/10/2009 11:50 AM (GMT -6)   
Abdominal surgery makes for a painful recovery. I don't think people realize that we use our abs for almost every movement and when they've been cut on every movement hurts. Walk as much as is comfortable but don't push it and get plenty of rest. Before you know it you'll be feeling like new.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/10/2009 6:27 PM (GMT -6)   
Kaycie-sorry to hear you had such a difficult time:( You sound in good spirits...rest now that you have the pain situation figured out but don't forget to walk, your body will THANK YOU later!!

sending good vibes your way!

Post Edited (OHIO76) : 5/11/2009 4:20:50 AM (GMT-6)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/10/2009 9:04 PM (GMT -6)   
glad you are getting to feel better, it takes a while!
I hope you continue recovering smoothly!

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 5/10/2009 9:28 PM (GMT -6)   
Kaycie- We're all wishing you the best, because we've all been exactly where you are now. Just take things slow;allow yourself time to mentally prepare for the physical benefits you are soon to experience, and the world will be your oyster!!!

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/10/2009 9:37 PM (GMT -6)   
Glad you are tough. Hope I can stand it all. Prayers being sent your way. Hang in.

chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 5/11/2009 2:00 AM (GMT -6)   
So glad you are through your surgery. The pain gets easier. My epidural failed as well, only worked down the left hand side. Take it easy, and I hope the rest of your recovery goes smoothly. x
Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.

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