dehydration/low blood volume

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spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 5/10/2009 11:48 AM (GMT -6)   
Hey guys! I've recently been battling some severe "dehydration." I hesitate to really call it dehydration because it's not that my electrolytes are out of whack because I don't drink enough, it's that my body can't absorb it so the water just comes out and therefore my blood volume is low. It took a couple docs to come up with this (although it's a simple orthostatic blood pressure test), but after 2 ER visits and months of being weak and tired that's the final answer.
 
So how do you all deal with staying hydrated and not peeing all your fluid intake out? My kidneys are working fine, so the only real problem is that I don't have a colon to do the job. The doc said that drinking things like pedialyte probably won't help more than water since it's not an electrolyte problem, but a volume problem. The only option I see at this point is going in for IV fluids every week or two, it seems to help. Any other suggestions?
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
Meds taken with no result: 5asa, imuran/6mp, remicade, and of course prednisone, both oral and enemas. Also, many many herbal remadies.
1st j-pouch surgery done on July 30, 2008
2nd j-pouch surgery (ileostomy reversal) on November 14, 2008
Med and pain free :)


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 5/10/2009 11:56 AM (GMT -6)   
I've had a similar problem too ... I drink a LOT of water all day. If I don't I feel like total crapola !
The first ER visit really opened my eyes up and since then I *think* I've been doing a decent job of staying hydrated.
Here is what I drink:

2 x Powerades (Orange are really good COLD)
4 x 16 oz bottles of water
1 x 16 oz bottle of water mixed with hydrating Crystal Light

This combo is going to make you pee like a champion!!! peeing is good :-)

Hope this helps out ....

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/10/2009 12:00 PM (GMT -6)   
Increase your sodium intake. That will help you retain fluids. Esp when it is hot and you are sweating too. Snack on pretzels, crackers, anything with salt. That helps me stay hydrated. I've gotten to the point that I crave salt now. I tend to be on the verge of dehydration most all of the time, but trudge right on.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 5/10/2009 12:02 PM (GMT -6)   

Peggy's right on.  Eat salty snacks, drink warm bouillon.  You need salt to retain the fluids you drink.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 5/10/2009 12:09 PM (GMT -6)   
Thanks guys, I forgot to mention that I have increased my salt intake. Funny, when they sent me home after my surgery they told me "low sodium diet" which was fine since I never really used salt anyway. Now I'm putting salt on everything. It seems kind of counterintuitive, but logical at the same time.

As long as I don't start retaining fluid like I did when I was on Prednisone! yikes...
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
Meds taken with no result: 5asa, imuran/6mp, remicade, and of course prednisone, both oral and enemas. Also, many many herbal remadies.
1st j-pouch surgery done on July 30, 2008
2nd j-pouch surgery (ileostomy reversal) on November 14, 2008
Med and pain free :)

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