Thank-you peggy113 and Ohio76! Glad to hear all is going well with you.
It is good to hear from others who have similar situations. It does not make me feel like an island.
Ohio76, how did your reversal go? Were you happy with the result? Did it take you long to adapt back? Sometimes I feel like I would like to keep the iliostomy because I have gotten used to it. Not really...guess just adapted to it. : ) They wanted to wait a full year before even considering the reversal.
Well, that's a funny story...a year and 3 months ago I had a proctocolectomy w/permanent ileo!! I did go a little while after the reversal but my Crohn's continued to get worse (abscesses/fistulas) so I begged for another one...well not really, my docs (GI & CR Surgeon) both laughed at me when I said I'd had enough... That temp ileo lasted 7+ years until I went the permanent route.
I think the 'temporary' ileos open our eyes to life with them so our minds accept them better and make the final decision easier...at least I know it did for me!! Whatever decision you make will be the right one for you...hang in there:)