My UC hit hard and heavy two years ago, and I found very little comfort from ANY of the medications, including Prednisone and Remicade. I also had many complications from the side effects of these medications, so my decision was quick and I the surgery could not happen fast enough.
I saw the surgery as my cure for the disease. I was in so much pain and I was losing the battle minute by minute. My biggest decision was to actually take the time to take care of me, as I really didn't want to slow down. I was enrolled in classes, working full-time, and just really had a packed schedule. I had found my nitch in living with UC, but my family had a mini intervention and I quit school, took off work, and was given Penelope (my stoma).
I love Penelope. She's saved my life! Well, actually my GI and surgeon did...but it's Penelope that's my daily reminder of how lucky I am. The only complaint I have is changing my accessory (appliance) every 3-4 days. It was every 6-7 days, but I am now using a one piece, and the longivity is less.
Anyway, no...this decision was not the most difficult. I have yet to really make a decision I cry over, or really stress about. I do admit the week prior to surgery I was second guessing my decision, but that's normal. Making it was no biggie. Now, when/if the day comes to have 'the talk' with our vet regarding my cat Chloe...I'll be a mess. Chloe was with me during a bad break-up many years ago, and she was up with me during much of UC bathroom breaks 24/7. She's my Chloe Louise...I just can't think of being without her.
I know many of you have and did struggle with your decision. The way I see it is that you have a malfunction in your body...there is something not working appropriately and it is up to you to take care of your body...if the medications are not working and that something (for us a very nasty little disease) just is being stubborn, then kick it's ass! Take care of the culprit that is very hastidly intruding into your life and be done with it! I know it's a little blunt, but seriously...what good has your colon brought you thus far? Pain? Agony? A major dip in your quality of life? Oh, not to mention all the bonding time you've had with your bathroom wall and all the imperfections surrounding your John. : ) I am not proud to say that I am a Sudoku Princess...and why is that? I needed something to do and take my mind off that excrutiating pain!
Sorry...I got a little carried away. Have a nice evening!!!!!!!
Absolutely, and I know in my head that it was the right choice, but when I have to change an appliance, or overcome the surgical pain I still feel with my rectum removal, my heart may have a different answer. My MIL really did a number on me, and I thought seriously of asking my wife if she wanted to leave me now - feeling somewhat less than 100% of a man - at least how I was feeling recently.
But I had to stop Remicade as the chances of more surgery - after my next August big leg surgery is very real - I may need foot and leg - tune up surgeries from time to time as a result of my charkot disease.
And I do have to say that this is better than having to have a bedpan cleaned for me 10+ times a day when I had leg surgery last year.
So it was the best decision at the time - would I opt for it - No. But it was the best plan B I could possibly have - and keep my wonderful life and wife intact.
You are so young and though the surgery sounds scary, it really would one of the best choices if you are not responding to medication. I cannot tell you how amazing that feeling is to feel the UC gone. WOW!!! I still love to just sit and feel the silence...feel the lack of pain...lack of bloating...lack of feeling every little movement of everything that passed through from beginning to end. It's GONE!!!
I wish you the best of luck with your decision, and just know that you are supported 100% with your decision. I simply could not imagine my life becoming any more out of control, so out the colon came! But I do have to warn you...once you do make the decision to nix the disease your colon is going to suck up and act like your BFFs...no joke! But don't let it fool you! It's still an angry little cuss that's main goal is to attack you!!! : )