You guys are amazing! Thanks so much for sharing your experiences. It makes me feel much less alone and frightened. I met with a women's group I've been meeting with every Wed night for the past 23 years and told them about this forum and how important you were all becoming to me. They send their thanks!
I have been truly miserable with bloating the past couple of days. Nothing helps so obviously, as much as I'd like, nothing is going to change until the colon comes out.
Judy, I too am taking all the steps I can to be good to myself (housekeeper, dog sitter). I'm hoping to be back to work in 4 - 6 weeks... Did you have to have an NG tube or did the MOM work so you didn't have to? I am really scared about the NG tube. My mother-in-law nearly went crazy when she had one and she was the calmest woman on the planet.
Amanda May, did the gax-x work for you before the surgery? I've never had an luck with it but I will definitely try it afterwards if it helped you.
I haven't been able to eat anything but cereal, lettuce, and Lactose Free Slimfast for about the past 2 years. Occassionally I can eat some fish. Everything else either creates horrendous gas pains and/or stays in my colon for days. Is anyone else out there lactose intolerant? I only learned this by a process of elimination (ha! I wish!) that a nutritionist suggested I try. I do love brown rice though... I hope to be able to eat pasta again...instead of having it turn into concrete!
I do have a strong belief that my attitude will affect the outcome of this procedure so I am as positive as I can be. I pray daily for the strength and courage to walk through this with at least some modicum of dignity. All of you will help me do that. Thank you! Jelly
I had an NG tube in for 2 days; my dr wanted it in for only one and when he came in the 2nd day and asked why it was still there and I told him the floor surgeons said to leave it in, he went and got some gloves and took it out. It was probably the most uncomfotable part of the surgery but I've had one before due to pancreatitis so I knew what I was in for. I feels like something is stuck in your throat; I don't want to scare you but I do want to prepare you.
I had many food intolerances before my surgery - wheat, milk, etc. I see a nutritionist now and am very careful with my diet. Like I said before I do not want to do anything to mess this surgery up.
If you have any more questions please feel free to do so; I hope I can help you.
Blessings, peace and prayers.
I woke up at 4:30 for my 8 am preadmission appt. The minute the alarm went off, I burst into tears. My husband held me until I cried myself out. The appt went fine. My BP was through the roof but I suppose that's to be expected at this stage of the game. The pre-ad nurse was very kind and answered as many questions as she could.
But I am so scared...I keep thinking that someone else must be going through this, that it really can't be me who is going to have her colon removed in a week. I had a total meltdown at the grocery store on Sat. I feel so needy, so whiney, and like such a baby - definitely NOT the woman I normally am. So I thought I would come here and tell you guys what's going on and hope that you will send whatever strength and courage you can spare. Thanks, Jelly
I know you're going through a very scary time right now but soon you will feel better than you have felt in years. Fear of the unknown is difficult and hearing other people's stories is also adds to our anxiety but remember that everybody is different and people all heal differently.
This is the absolute best site to find support and love from people who understand what we are going through, but I know if I had read all the things that had happened to people on here before my surgery I would have been scared to death; instead, I read a couple of posts about the surgery and was determined I wasn't getting a bag and woke up without out one. Not saying that's the reason why I didn't get one, but I remained strong and had a very positve attitude before my surgery, my surgery was 3 hours away & my husband cried the whole way so I consoled him.
I know you're a strong person and you can do this! Everything will be fine just as mine was; before you know it you will be up and around and going back to work.
I do have a few suggestions for you: take an ipod to listen to at night so you don't hear all the hospital sounds; make sure you have wipes, I only use prep-H wipes, they will be your new best friend; I never use toilet paper any more, I also have a tube of A & D ointment not cream on hand at all times, you'll tend to get sore very easily, slippers that just slip on so you don't have to bend over to put them on, pjs didn't really work as I had a catherer, IVs & epidural, I didn't bring my laptop bc I wasn't sure about the hospital security, some books or magazines, but I downloaded movies on my ipod so I watched them.
Try not to worry too much; many of us have had great experiences and quick healing from this surgery. We are ALL here for you and will keep you in our prayers.
Blessings, peace and prayers,
Thank you Donna Rae and Judy,
Once again you guys have lifted me up in a way that no one who hasn't been through this could. I have worked with a psychologist who also says that my behavior is "normal" and to be expected. Nonetheless, when in the middle of an almost hysterical crying jag, I did NOT feel normal. Your kind words have helped me center myself again. Thank you so much!
Judy, it's interesting what you said about other peoples' stories scaring you. I felt the same way and could barely read the posts for a long time. I didn't want to become a member because I really didn't want to hear horror stories (and jeepers have I heard a few!). I, too, am determined that I will not have a bag. My surgeon says I won't so I am trusting him completely in that regard. Thank you for the hospital suggestions. I will take my Ipod but not the laptop. The nurse this morning said that those kinds of things do tend to be "misplaced." I will invest in some wipes and the A/D ointment. And I do have slippers that can be slipped on. I do hate hospital gowns (who doesn't) but I keep telling myself that I can stand nearly anything for 5 days (that's as long as I plan to stay).
2b ColonFree, these are really nice people at this site. They have offered me so much encouragement and support in the past couple of weeks...they are truly amazing. I only hope that once I am on the other side of this that my experience, strength, and hope will help someone else the way they have helped me. I can't seem to say thank you enough! Jelly
I just wanted to check in with you before Thursday. I have had a couple of bad evenings - seems like that's when the reality of this surgery hits me. I am so fortunate, though, to have such an incredibly supportive and patient husband. He's truly been amazing. Today is our 25th wedding anniversary. We've been together for 33 years (and yes, we were babies when we met, HA!). We had planned to go to one of our favorite vacation places to renew our vows, but we are postponing it until September. Then I will feel like biking and hiking and eating, and we'll be able to have a great time.
I will do the prep tomorrow. I have 2 jugs to drink instead of one...such fun. Actually, I don't mind the cleaned out feeling. It's the only time I ever feel that way. It will be so nice to feel that way after the surgery.
Please continue to send healing thoughts my way. I go into surgery at 9:30 Thursday so regardless of the time zone you are in please think of me.
I sincerely appreciate all of your supportive, comfort, and kind words. So no matter who you are or where you are, thank you for being there for me. Jelly
Just wanted you to know that you are in my prayers. You will be so happy when this all over and so pleased with the results.
Bleesings, peace, and prayers,