when does this end?

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fluffycat
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/19/2009 2:23 AM (GMT -6)   
i have stoma for about a year or year and a half, it's really taking it's toll on my mental ability and i'm not sure how much more of this i can take.
they talked about reconnecting after 4 monthes and when i went back i didn't weigh enough. i have never weighed anymore than 100 puonds and i'm 28. i also have cf and a heart issue that has been repaired twice and they are thinking about a second open heart surgery. i need to know just how much umph it takes to get through the surgery for reconnection and how much they want to weigh, it's really at the point that i don't care if i make it through at least that thing will gone and it will be over. it's really sad to think that way but they tore my whole world apart when they ripped into me and then when they had their chance they refused to fix it. i'm at both ends of rope here and i just don't know what to do, i know i can't afford to keep buying the bags and most certainly can't afford the diapers i wear when whole pack of bags fail. how ever is normal to start liking the diaper? anyhow, i just bare to be turning into a mad person that hits things when i used to be so happy and cheerful. it's like i'm losing my self and well my life has already been lost. scared to death to find a mate of either sort and pretty much unable to work. i live with mom. i really want my life back and if any of you know like what a good weight is to alter thier minds with please tell me, before i am forever lost

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/19/2009 4:09 AM (GMT -6)   

fluffycat--welcome to the forum...I hope you'll be able to find some answers to your situation.

I think reversals and the weight needed is different for each individual.  Can you supplement your food intake with protein drinks?  That could give you the extra calories to put some extra weight on...people sometimes lose a lot post surgery until they figure out what works for their bodies, which might be the reason for your docs answers.

You can find support groups through www.UOAA.org, if you are interested in talking with others.  Some find great comfort just meeting others with ostomies.

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