sores around stoma

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Horse123
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/22/2009 7:49 PM (GMT -6)   
had illeostomy 5 yrs. ago for ulcerative colitis...was sick 2 yrs. before surgery...had mouth sores...now have spells of bad ulcers around stoma about 2 to 3 times a year...Drs dont help..been to several ostomy nurses and some say pyoderma gangrenostrum...having a bad time now...any one out there with same problem????

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 5/22/2009 8:36 PM (GMT -6)   
Do you use a convex bag? You can develop pressure sores and may need to try an alternative for a while. I've had Pyoderma before (still have a huge scar from it!) and it was just awful. However, I knew mine was directly related to my crohn's disease. Is there any way your colitis has returned? --or you in fact have crohn's?? I know I tried packing my wound with angel hair and then covering with tegaderm, using pro-topic for a while, and also tried using Nasal-crom (oddly enough the ingredient in this nasal spray helped to dry out the wound a bit). All things helped a bit, but the only thing that made a difference was getting my crohn's under better control. Sorry, I'm not more help.

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/23/2009 5:04 PM (GMT -6)   
I have had pyoderma gangrenosum and erythema nodosum with my colits. Be careful! I also have a real nice scar!!! I know this may sound a little odd but if it keeps up you might want to consult with a dermatologist because they know these things well. Also, they can do a biopsy to determine if it is pyoderma!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 5/23/2009 5:58 PM (GMT -6)   
I agree, see a derm...they may have some tricks up their sleeve. At the very least you can get a biopsy and then KNOW what you are dealing with for sure.

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 5/23/2009 9:32 PM (GMT -6)   
glaciergrl said...
I have had pyoderma gangrenosum and erythema nodosum with my colits. Be careful! I also have a real nice scar!!! I know this may sound a little odd but if it keeps up you might want to consult with a dermatologist because they know these things well. Also, they can do a biopsy to determine if it is pyoderma!

My PG started around my stoma too...and it was misdiagnosed for 3 long years as it continued to progress. I would suggest seeing a dermatlogist just to be on the safe side, because if it's PG it won't go away on it's own.

Horse123
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/24/2009 6:48 AM (GMT -6)   
thanks..will write yor email like to know some more
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