NEED SOME SUGGESTIONS

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XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 5/22/2009 10:27 PM (GMT -6)   
So I went to the surgeon Thursday and he really wanted me to work on eating....I have not been feeling "good" since surgery. Today I had toast, cherrios plain, ice cream bar, and half a piece of chicken. After the chicken I was in so much pain nd nauseated to tht epoint I thought I would throw up instantly,but I just dry heaved. I called the on call surgeon and he said to either wait it out or go to ER if I did not feel better. The thing is I never really "fee; good". They put me on phenergan on Thursday and I slet today from 2p-830. Also, he wants me not to have anything but fluids he was afraid it may be a partial bowel obstruction. I have notived my transit time is very slow compared to earlier and also my output is nearly always liquid and has been all night. What do you all think I should do.
 
Lizzie
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic May 27 for poss. K pouch with Dr. Remzzi
 
"The Greatest Healing Therapy is Friendship and Love"


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/22/2009 10:46 PM (GMT -6)   
I bet you were nauseated from the ice cream bar. I couldnt tolerate any ice cream or dairy but sherbert is a yummy sub for ice cream =) Make sure you chew your food up really good. I know it sucks to chew chew chew and then theres like, no flavor left in the food bc you chewed it so much but itll be worth not getting an obstruction. My doc gave me phenergren and its such a low dose that you wouldnt think it was that potent but oh my goodness lol i can take one in the middle of the day and be wide awake and then itll kick in and take the nausea away but it knocks me out everytime i take it..i guess thats a good thing bc you can sleep your sickness away lol
It looks like you just got your ileo April 13 eh? I got mine Nov.19-2008 and it took me about 2 to feel good..about 4 months to get 3/4 of my energy back and now that i got it reversed my energy came back crazy fast compared to getting ostomy surgery. But my reversal was a lot easier and took 10 hrs less lol plus i was already connected to my anus she just made the j-pouch when she took my colon out to make the surgery 2 times instead of having to have 3 surgeries =) Just stay positive and know that youll feel better soon. Its really hard to think that bc its so hard now but trust me..I just got my reversal April 29th and im already playing basketball and running in the park =D And its only been 25 days =)
 
No pain no gain turn God is good. He will help you through anything just remember to always try to stay positive. haha when i had my bag i was singing glory to God listening to K-love and holding my bag laughing bc it had popped open and poo was running down my side on the top of my shorts on my new shirt on my WHITE shorts might i add! haha and i walked in the house and was laughing and was liike..well looks like i get to take a shower early =) bc i wasnt due to change it til the morning hahah so i got a shower early =) Keep your head up. The tough times will pass and you will be smiling and enjoying having the bag..be lucky you have it.. I miss mine lol Well..i dont miss having it i just miss the convience it was to be able to eat and then empty when i want while my friends as soon as they ate were running to the bathroom haha
 
Keep smiling =D and God Bless
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 5/22/2009 11:37 PM (GMT -6)   
Lizzie - Give yourself time.. I'm right there with you, a few weeks behind. Not near as sick, but I have been sick for nearly a year, so I actually feel better, even though I'm struggling. I too am nauseated. Did they give you 25mg phenergan? Try cutting it in half and see if that helps at all. If not, ask for Zofran. It's expensive tho, so be warned! They only give so much out at a time, typically. I have a colostomy, but even post-surgery I was encouraged small meals and chewing. Milk products like ice cream and all aren't friendly right now either. I can have things like cheese though. Can you drink boost? That's a fair amount of calories and should help. Maybe use that as a snack? Even if it takes you all day to drink 2 of them, it's still not a bad thing, because that's an extra 500 calories and its liquid and it has nutrients in it to help with your stamina.

Bella - You have a wonderful spirit and positive attitude! That will take you a LONG way!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 5/22/2009 11:41 PM (GMT -6)   
Lizzie - Give yourself time.. I'm right there with you, a few weeks behind. Not near as sick, but I have been sick for nearly a year, so I actually feel better, even though I'm struggling. I too am nauseated. Did they give you 25mg phenergan? Try cutting it in half and see if that helps at all. If not, ask for Zofran. It's expensive tho, so be warned! They only give so much out at a time, typically. I have a colostomy, but even post-surgery I was encouraged small meals and chewing. Milk products like ice cream and all aren't friendly right now either. I can have things like cheese though. Can you drink boost? That's a fair amount of calories and should help. Maybe use that as a snack? Even if it takes you all day to drink 2 of them, it's still not a bad thing, because that's an extra 500 calories and its liquid and it has nutrients in it to help with your stamina.

Bella - You have a wonderful spirit and positive attitude! That will take you a LONG way!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 5/23/2009 8:14 AM (GMT -6)   

Thanks for your replies.....I feel beter this morning. I followed his directions of only liquids, but how long do i do it for? My output this am was a small amt and still all liquid. I have been sick for almost 8 years, being undiagnosed until Oct 07......but I feel these surgeries have helped. After my TC I felt wonderful for three months and I just wish I could feel that way again. I go to Cleveland Wed for possible approval of k-pouch. I am excited and nervous. I wish I could learn to like this bag, and feel good. I am trying so hard to be positive. I have tried zofran (but only 20 pills), phenergan, and compazine. I took a quarter of phenergan and hope this will do better for me.....and the neurontin for my back pain is actually over time. thanks for all the help.......

Lizzie


Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic May 27 for poss. K pouch with Dr. Remzzi
 
"The Greatest Healing Therapy is Friendship and Love"


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/23/2009 10:25 AM (GMT -6)   
awe thank you Kaycie =D Everyone tells me that haha

you mentioned zofran..that gives me HEADACHES blahh so i stick with phenergren. Just rememebered that and thought id tell ya =)
Oh, and I hated my bag too for awhile but then after like 2 months i kept forgetting it was there. I couldnt wear some of my jeans bc they came up too high and when I sat down i was always afraid that it would make my bag pop open...like my lovely white shorts did haha They still have that poo stain on the top of them eww hahaha But honestly, I thought ppl were crazy when they said they love their bag now and forget its there bc it seemed like thats all i could think about and worry about but I did forget it was there a lot! And the other day (this is just for laughs) I was putting a pair of jeans on that i couldnt wear bc i was too fat from the pred..but now i can wear them =D and i tried picking my bag up so it wouldnt get smashed in my jeans HAHA but then i realized it wasnt there anymore HAHAHA =p

Give yourself time =) I PROMISE everything will be okay =D

God Bless
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/23/2009 3:40 PM (GMT -6)   
Lizzie--hang in there! Even little bits on food (crackers/pretzels/cookies) are good in between meals...I always kept them by my side so I could take a bite when I thought about it. It is part of the recovery and every one's body has their own time schedule...try eating protein in the form of scrambled eggs since they are easier digested (when off the clears, of course). The protein (and eat it at every meal) will help your body recover.

You may have to do a few days of liquids. Drink broth for the sodium and cut any sugary drinks with water if you get a lot of watery output. You just may have something stuck that needs a little time to pass...I think most of us have dealt with this and it is NOT fun:(

I drink a coffee if I think I'm experiencing a little 'clog' so to speak and that will usually flush my system.

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/23/2009 3:57 PM (GMT -6)   
I am a couple weeks behind you also. This hasn't been the greatest time of my life either, but it sure beats feeling like crap all day every day! You know? I have to agree and emphasize that CHEW CHEW CHEW is the best idea! I had some green beans and didn't chew that great and I felt every single one come out. It was awful not to mention disgustly painful if you can imagine. I had my proctocolectomy 4 days after you. I eat whatever I want now, except corn. Oh how I miss corn.
 
about the meds, I am also a pharmacy technician. I know the zofran is expensive but there is a generic called odanestron (sp, I might be a little off on the spelling). If that isn't working you can also ask for some anti nausea meds that chemo patients use. They are much stronger and some make even make you hungry!
 
about ensure, this is a great idea. Not everyone likes ensure I realize but they make all sorts of nutritional drinks. Boost makes a juice called Breeze which isn't so heavy and doesn't taste that bad. Look into these! They will keep up your stength. Protein water made by kelloggs is also pretty good! They have lots of flavors!
 
I hope this helps! Good luck!
 
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006

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