WOW!!! Monday. I will be praying for you and hope that when she gets in there it is an easy fix. I know you have had some rough hospital stays in the past and I know this one has to go better for you.....Please keep us posted. I think of you daily, and pray for you always.....
Hodaya- I know how you feel....I wish I could disappear, but we cannot. I hope that you can find some peace in this waiting game. I am in the same position. I feel your pain and I love you dearly.....please stay moving forward. Keep that little chin of yours up. This is a horrible disease.
Love you all.
Hodaya and Amanda-
The three of us are in yucky and horrible situations. We have eachother and others on this site and with faith, family, and friends we have to get through this. I have been crying a lot too lately Hodaya....and I can imagine how scared you are of damage to the rectum. I think you have every right to worry in that way....I did not know enough about this disease and waited far too many years. Both of you get me through the days....I have wonderful family and friends, but no one who understands the true turmiol of this disease and the fear and frustration it brings to every day of your life. A simple surgery that becomes a nightmare and the constant unknown can tear you apart as it has me....I love you guys and everyone else......keep holding and pushing, if I have too you have too. I need you.
Hi all....just checking in.
KAren- I do not know what is going on, but I am praying for you. You do not deserve to be going through all of this....I wish I knew what was going on so I could better help you. How r u feeling otherwise?
Hodaya- How you feeling honey....? When do you expect to hear from the doctors. I hope they can figure this out for you soon. We both know to well the waiting game.
I have been not feeling the greatest now for two days. I have stabbling pain in my left upper quadrant and generlized pain everywhere whoch is all new. My meds are not working. I am not sure if I should just ignore it or call my surgeon. I have to call Cleveland Clinic today to check on my appt approval, but will most likely not hear for another week.
Amanda- How you holding up? Hope this week has you busy and not thinking of Monday, but I am sure its nearly impossible. Praying for you all.
Hodaya- I definatelt think three wekks is too long to wait....you are suffering so much and your going to end up not being strond enough for the surgery. I had the same fatigue before TC and for two months before my obstrction and ileo. Your body starts shutting down and even though it sucks to eat, the stronger you are for surgery the better you will heal and lesser chances of complications. I have been weak before both surgeries and had many complications. I love you dear and worry so much about you.....take the reigns and get this moving.
Amanda- I hate that you have insomnia, as you know I am right there with you. My director of nursing called today and is worried the patients will think I am sicker than they are when I go back on Monday. I told her I will be ok, but to be honest I have no idea how well I am going to be.....I know they will have lots of questions. The fear of the unknown is so hard and I pray for some peace fo mind for you.
I am still in pain and my surgeon said he think it may just be a "fluke" and to keep on my pain meds, but I may need something stronger than neurontin. I have pain when I get up and that has not been the case....I have no idea what is going on. My ileo is working and I have had some dry cheerios and sherbert today. I was 100.8 this am....so I need to work on that. I talked to CC and they faxed the detailed letter to my surgeon and now I have to call his dreaded nurse tomorrow and make sure she submits it to my insurance company....and then it will at least be a week until I know if I will be approved or not. So say your prayers....I am all alone till Sunday and I have slipped back into my depression....I miss my husband. Its 74 and sunny here and I have the blinds closed and have been sitting inside.....i miss me.
Hodaya and Amanda....OH how much I love you both and pray that each of you get the desired results you need.....I know something has to go right and feel it with both of you. I am going ok....still having such bad pain in my left side and yes Hodaya, a "fluke", is meaning nothing really and to just ride it out. Problem is, it gets worse and worse through the day. I am miserable right now.
I love you both so much and I pray that you both find answers, peace of mind, and comfort in whhat comes in the future. I love yo u both so much and envy that you have options...I wish I could be normal.....be whole, and be me. I have lost me along the way, and my heart is half empty....I never want this to happen to you....You both are beautiful and strong women. YOU CAN DO THIS.....