Losing weight + Gaining weight Ilieostomy

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tardofit
Regular Member


Date Joined Jul 2008
Total Posts : 28
   Posted 6/1/2009 9:51 PM (GMT -7)   
Hey all!
It's been 10 months since my Ilieostomy and I'm not looking back! Mostly because I had ulcerative colitis since the teens. I'm 30 now and loving it!! I once again can live without caring where a bathroom is.
Anyhow,.....this site was an excelent crutch when I was sick, loads of info and TONS of loving support and I want to thank everyone!
 
My question is about maintaning weight. I know my body is still changing and adapting, but I am have been losing weight and now I'm concerned about how low my weight has got. Before I got a flare 3 years ago, 210lbs was the norm. Before surgery I was 185lbs and after I was around 175lbs for about 4 months. Since then I have slowly wittled down to 159-160lbs.
I eat till full and try to eat offten. I'm 6'3" with a waist of 32". Mife wife said I look like a stick figure. So.....is their a pattern that all of use Ilieo's follow, is this mormal for a while, and will I keep loosing weight? Any help please!
29 year old male
 
12th year suffering UC


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3075
   Posted 6/2/2009 4:03 AM (GMT -7)   
Everyone is different...there are some who cannot gain or lose weight and some like me that have to exercise and eat right to not gain any! Have you tried one of the drinks (like boost) that you can have between your meals for the additional calories?

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2764
   Posted 6/2/2009 4:30 AM (GMT -7)   
I'm glad to hear you're enjoying life post-UC. When it comes to gaining or losing weight with an ileostomy, my experience has been that it depends on where your ileostomy is located in your small intestine. The farther down it is, the more nutrients you will absorb and vice versa. I've also learned that everyone's body reacts differently to having an ileostomy.

When I was sick with Crohn's, I was very thin, so I gained weight when I got healthy after my ileostomy, which is located at the end of my small intestine. Six weeks ago, I had to have a small bowel resection done due to a blockage caused by scar tissue, and the surgeon gave me a second temporary ileostomy much higher up in the small intestine. Because of where it's located, I've lost 35 pounds since surgery.

The surgeon told me to drink Ensure every day. I've been doing that, but it goes right through me just like everything else, so I don't know if it's helping. Have you told your surgeon about your weight loss? I would let them know, so you can find out what their suggestions might be. Is your output watery? If so, make sure you drink plenty of fluids, so you don't get dehydrated.

In the meantime, go ahead and eat high calorie foods and dessert whenever you want. Lately, I've been able to maintain my weight that way. Good luck!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 6/3/2009 5:11 PM (GMT -7)   
Tardofit,

Just wanted to say I have experienced something similar since my ileo about a year ago. I have found that I can't eat as much in one sitting now (I get really full faster).

Before surgery, I kind of watched how much I ate (I would gain weigh if I didn't), but now I do NOT--I eat anything, and as much as I want, and I have maintained a steady weight at about 135 (I am 5'6''). I don't think I could gain weight if I tried, which is really cool :).

Sorry to hear that you are losing weight unintentionally....The only answer I can think of is to eat some high-calories foods--do you like ice cream?

I also know that if you see a nutritionist, they make special high-calorie drinks for people who need to gain weight (my friend had to drink these as a teenager).


Cecilia--wow-35 pounds! That is a lot of weight to lose!! I hope you are able to keep your strength up. :) Do you have a date yet for the reconnect surgery? I hope you are enjoying those deserts!

-E

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2764
   Posted 6/3/2009 6:05 PM (GMT -7)   
Erin,
I just ate 3 fudgy brownies!! smilewinkgrin Lost most of that weight in the first 3 weeks, so I was weak at first, but now am feeling much better. I get a liter and a half of fluid by IV at home every night to keep from getting dehydrated, which really helps. My reversal is scheduled for July 1.

As a woman, I can relate to the joy of being able to eat whatever you want and not gain weight. I haven't been able to do this since high school!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3075
   Posted 6/4/2009 4:52 AM (GMT -7)   
not to hijack this post, but...Cecilia I am so glad you are feeling better!! I am glad you have a reversal date, too :-)

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 6/5/2009 11:02 AM (GMT -7)   
I too have trouble maintaining my weight, and have for many years. One thing I can say is eat healthy, but also enjoy those high calorie foods as well. Just like Cecilia recommended. Your body may adjust and stabilize on it's own, but a call to your surgeon just to talk things over may be in line.

Are you taking anything to slow down the output (if that is the problem)? Sometimes, eating the right combination of foods will naturally slow it down... for me a banana or chunky applesauce works well. Depending on what I am eating for my meal, cutting back a little on my fluid intake during the meal allows me to actually eat more. You need to be careful doing this as you don't want to chance any blockages by not drinking enough fluids. Just some thoughts... thinking out loud.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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