Slow transit obstipation / chronic pseudo obstruction

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Lice
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/2/2009 2:49 AM (GMT -6)   
Dear all,
 
I am not sure if I post my question under the right topic, but I did not know where else to put it.
 
Since half a year my stool is terrible. I have 1 stool per week and most of the feaces do not come out then. The two years before where the oposite: approx. 2 stools per day and my bowels got completely empty every day.
 
I did not have surgery and did en do not use medicines that could have caused the change in stools.
 
During the day I feel sick, feel the need to throw up, have difficulty with breathing and have colic attacks after small meals. I tried special diets, drink more than enought during the day and try to do physical excercises on a dayy basis.
 
I feel too ill to work and take good care of my little son and be a nice wife to my husband. My social life is gone.
 
In hospital they think I have slow transit obstipation or the ogilvie syndrome.
 
Is there anyone here that has about the same physical problemes as I am facing? Any advice on how to make life a bit more easy? Will it ever get better? I should not think of living another year with this. It's too much.
 
Thank you for your reply. Sorry for my poor English ;)
 
Kind regards, Lice
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/2/2009 3:07 AM (GMT -6)   
hi lice,
welcome to the board! i'm glad you found it, there are lots of nice and caring ppl here who are willing to help and tons of information.

i didn't quite understand, have you been to a gastro dr yet? have you had any tests done? it does sound like you have some sort of a functional prob. during the days when you don't have a bm, do you get to feel the urge, but you can't expel it in no way? or you don't even feel any urge to go?

i've also been struggling with sever chronic constipation for the past 16 yrs now and planning on surgery.

so in order to try and help you i need more details whether you've been to a gastro and if you had any tests done.

also, i highly recommend you google "total colectomy part 3" then part 4.. and so on and start reading, there's wealth of information there that can help you a lot.

best of luck to you!


Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Lice
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/2/2009 9:24 AM (GMT -6)   
Dear Hodaya,
 
Thank you for your prompt reply! The last three weeks I spent in hospital. So far they did a coloscopy and a gastroscopy. No results. In three weeks they will measure how fast / slow my stomach will process the food. Afther that test they will test the pressure in my bowels for 24 hours with barium (?).
 
I only feel the urge to have bm after I have taken 2 bisacodyl tablets (oral). Very seldom I feel a little urge without these medicines. Very little comes out in that case.
 
Right now I feel I have to throw up the entire day. I am so very tired of all this. I feel sick and cannot eat anything. My life has been so very awful this last half a year.
 
I do feel my bowels are moving and sometimes they are very noisy. However, it is the upper part that is restless. The lower part of my bowels feel like they are dead. Enemas do not help to have a bm. The down part is empty, so nothing will come out.
 
I am 34 years old and feel I will not make it till 40. I am really frightened.
 
How did the constipation started in your case? How young were you when it started? What is causing your constipation?
 
I feel relieved I am not the only one with this problem ....
 
Thanks again for your help!
 
regards, Lice

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/2/2009 10:39 AM (GMT -6)   

Lice,

I think there are many of us on this board who can sympathize with you.  I had slow transit for most of my life.  I'm 53 now, and from the time I was 20, I NEVER had a BM without laxatives.  Even before that, as a child, I had terrible time going.  I don't think anyone who hasn't gone through this can understand how truly uncomfortable and horrible it is.

Your doctor should give you a sitz marker test.  You will swallow little pills with markers in them every day for a few days, and then have xrays taken to see if they are moving through your colon.  If not, you will most likely be diagnosed with colon inertia, and you may be given the option of surgery to remove the colon and attach the small intestine to your rectum.

I know it sounds so extreme, I felt that way for years and put it off, but finally had it done on March 17 and couldn't be happier.  It has taken almost 3 months, but I'm finally feeling really well and able to go to the bathroom on a regular basis, eat and not worry about when it will come out!

Don't despair; there is hope and help.  Please let us know what your doctors tell you.

Hodaya,

I've been away for a few days, but I saw that you're waiting once again for your doctors!  You poor thing.  I hope you'll be able to get some answers and some help soon!

I had a CT scan today of my abdomen; I was having those sharp pains for a week or so and my surgeon wanted to see if it was a hernia, or just to see ifhe could find something.  I don't know anything yet; I pray it's nothing serious.  I've actually felt so much better the past week; pain is almost gone, but my abdomen is just a little sore to the touch.

As far as going to the bathroom, I'm doing so much better.  If I take 1/2 dose of metamucil at night, and 1/2 lomotil during the day, I've had much better luck....only go about 6-8 times a day and no urgency at all.  I also haven't had the problem of feeling like I had more left in my rectum.  This past weekend we went away, ate dinner and breakfast out, went to a baseball game and ate there (which I would never have done 2 weeks ago!).  All in all, the pooping is great for now.  Hopefully it will last.

Keep us posted on what's happening with you!

Hugs, Janie

 

 


Lice
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/2/2009 11:29 AM (GMT -6)   

Dear Janiepain,

Thank you so much for your kind and hopeful reply. Right now I feel so sick and terrible. I feel like my body will explode. My bowls are full with faeces. Breathing is difficult and I feel colic pain. I vomit till blood comes out (damaged blood vessels of course) A few hours ago I took 2 bisacodyl tablets again. Hope it will be effective this time. I always have the fear it will lose its effect some daty. Then what?

In my country there are long waiting lists for tests in the university hospitals. It takes many months to get a test done. A sitz marker test is something I will absolutely ask for it this week. Hope it will be done within half a year ....

I am affraid I have to move on like this for many more weeks. Every day is a struggle for me. I wish they would help me ..... I cannot take it anymore.

I used to enjoy life, even though I have had many problems with my health before  ..... since the last couple of weeks I cannot help to look forward to not live any longer ...

Sorry for my negative words. Right now I feel so terrible, I do not see a way out  ....

Regards, Lice

 

 

 

 

 

 

 



2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/2/2009 2:02 PM (GMT -6)   
Lice,
about the colonoscopy and gastroscopy, when you said no results did you mean that nothing was found and the tests are fine, or did you mean you havn't gotten the results yet? i'm sorry, i feel so dumb...

assuming nothing was found in these tests that may be causing your simptoms, then it's most likely it's a motility prob. if you don't even feel the urge, then that indicates you have a slow colon, and b/c of your nausea and vomiting, they suspect you have a slow stomach and small intestine as well as a slow colon.

i believe you're in good hands, it's just too bad things are taking too long to happen, believe me, i know what it's like waiting for tests, dr's appts etc..... soooooo frustrating indeed!

i'm 36 yrs old and this prob started when i was 20. i just stopped having spontaneous bms. enemas or suppositorries didn't work, cause, like you, the stools don't even reach the rectum, so it doesn't help and only an extreme amount of laxatives would help, but you have to increase the dose more and more.. it never ends!

drs don't know how to explain colonic inertia or what causes it, they just deal with it aggresively by taking the whole colon out, cause it's simply not functioning, like a handicapped organ. i have hopes with this surgery as it is a 90% success rate, which is a good rate.

so please... don't be so negative yet, there's still plenty to do and find out before you can alow youself to give up. you have to take it one step at a time till your drs and you figure out what exactly is the prob and what is best to do.

i truly wish you the best of luck and please keep us posted.

hey Janie,
thanks.... i too hope it's nothing serious in that ct scan. i'm glad to hear things are getting better. so was that the first time since your surgery that you and you husband travel? well congrats, i know how much you've both missed that, and i'm so happy for you that you could enjoy it. i truly hope for the best for you. thanks so much again for your support, it really helps a lot!!

keep me posted about the ct scan. love ya!!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Lice
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/3/2009 2:50 AM (GMT -6)   
Hodaya, thank you for your possitive words. They do help a lot.
 
Sorry I was not clear about the results of the tests done: they were fine indeed.
 
This morning I had a few bms, after taking bisacodyl tablets yesterday afternoon. Unbelievable, so much came out! I have hardly eaten since the last couple of weeks. Every day I take 2 peaces of fibre bread (mostly for breakfast) en during the day I take fruit and 1 fibre cracker. It is not much, but it is enough to cause a colic attack in the evening. During the day I take movicolon and drink a lot of luke warm water.
 
Is an auto immune disease causing your obstipation? And, if the problems started at the age of twenty, how did you survive the 16 years that had followed? Did you take laxatives every day?
 
When they remove your entire colon, does that mean you will get a stoma?
 
Can I die of this obstipation? My antinucleair antibodies were tested highly postitive (which might mean I have an auto immune disease) and the parietal cells of my gastrium were also found positive. The intrinsic factor was negative.
 
This afternoon my doctor will call me back to let me know if I may take extra nutri drinks to stabalize my weight and health.
 
You must be a very strong woman, facing this medical problem for so many years ......
 
Regards,
 
Lice

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/3/2009 4:45 PM (GMT -6)   
hey Lice,
you are so reminding me of myself. i also eat a very small breakfast and then during the day i just have one cup of black coffee and 2-3 crackers and it's also enough for me to cause me a colic attack that gets worse as the evening gets closer, and by the end of the day i can't even stand straight b/c of the pain. on days when i don't eat anything i feel a lot better.

if those tests were fine, then your gi is most likely to look for a functional prob now. hang in there, i hope it won't last too long for you.

whats movicolon? does it help you?

i don't know anything about an auto immune disease, no dr has ever talked to me about anything like this.. so i've got no idea what's that all about. can you try to explain it to me?

well, i spent most of those yrs just being full of it. at the first yrs it didn't cause much pain as it does now, but it sure was extremely uncomfortable. i refused to use laxatives, cause i didn't realize how sever my prob is. i tried all kinds of diets and doing exercises, but of course it didn't help. i tried enemas and suppositories, but of course, if the stools don't reach the rectum, then those alone can't help either. so eventually i gave up to laxatives.

being like this won't kill you, at least not so fast. the colon is an organ that is made for being a storage for poo, so there's no danger by caring all of this poo in it, but when the amount of poo in it is way above the limit, than it can hurt out quality of life significantly up to a point where we can no longer function like normal ppl. it's a lot similar to hirshprung's desease, but very different at the same time.

the thing that can cause a life threatning situation with this condition is a perforation of the colon from being so full and streched b/c of weak tissue. the colon just gets more and more stretched during these yrs till it tears and that can be life threatening.

the surgery for colonic inertia normally doesn't require a stoma. it's a one step opporation in which they remove the colon except for the rectum and then attach the small intestine to the rectum. at the first few mons there are expected to be multiple liquid bms up to even 20/day, cause you see, the food we eat reaches the stomach, the stomach makes it liquid, from the stomach it moves on to the small intestines where it stays liquid there too, the small intestines absorbs all the vits and nutritions, and when it reaches the colon, the colon's job is to absorb the water from the stools and that's how we get the firm bms.

when there's no colon, the stools comes out liquidy, but after few mons the small intestines starts to like realize the colon is gone and starts to adjust to doing also the colon's job and the diarrhea moderates significantly.

what's antinucleair antibodies? i'm from israel and english is not my laguage. also, what's parietal cells of the gastrium?

i don't know if i'm so strong... i just had no choice, but if i were smart, i would have taken care of it yrs ago, but what's done is done and it's sure never too late, i guess, so i'm hopeful to find relief with this surgery.

take care and please keep us posted.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Lice
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/4/2009 7:10 AM (GMT -6)   
Dear Hodaya,
 
Finanally someone that understands what I am going through! Unbelievable you have faced these problems for such a long time.
 
Movicolon is a powder for oral solution, prescribed by doctors to solve / manage constipation. I take 8 sachets a day, which is a lot. Does it help? No, not in my case.
 
Slow transit obstipation or chronic pseudo obstruction can be caused by an auto immune disease, e.g. Crohn, SLE, etc. It means the cells in your body attack the healthy and right cells in your body, with sometimes terrible consequences.
 
Antinucleair antibodies are found in blood of approx. 2 out of 100 women. This means these 2 women might have an auto immune disease or might develop one in the future. There are also cases in which women with possitive ANA do not have or not develop an auto immune disease.
 
Parietal cells in the gastrium can be found in people with auto immune diseases. Also in people with a lack of vitamine B12. Vitamine B12 is very important for your nerve system. My Vitamine B12 used to be very low, so I get injections once per every two months. When the intrinsic factor in your blood is possitive, you'r body cannot absorb vitamine B12 from food etc. In that case injections of Vitamine B12 are necessary for the rest of ones life.
 
Is your surgery done in Israel? Do you know other people in Israel with the same medical problem you have? I am getting in touch with some patients in the Netherlands (my country).
 
Ik really hope the surgery will help you to make your life easier and better!
 
Love,
 
Lice
 
 
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/4/2009 7:35 AM (GMT -6)   
wow, i don't know.. i don't think i have an auto immune disease, or could i possibly do have it? how do i know? but i guess if i had it, my drs would have know by now, right? but i didn't quite understand.. you're saying you have it?

my surgery will be in israel, i havn't found even one person who has it here, but i know there are cases of CI in israel. it's great you could find some in your area and can talk to them.

i wish you the best of luck too, and please keep us posted on your progress.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

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