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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/3/2009 8:51 AM (GMT -6)   
I want to apologize to all my friends here on healing well.  I got too wrapped up in myself and in starting my own business that I just wasn't here when you needed me.  After my surgeries I disappeared for a while and was too afraid to really look back.  Now, here I am facing another surgery and I'm back and I've read all the posts I missed and I feel horrible.  I should have been here for you all the way you were for me.  Even though I wasn't here for you, here you all still are supporting me and encouraging me when I need it most as I face another surgery Monday.  Oh, how I don't deserve you wonderful people!!  What would I do without you???  All I can really say is that I'm sorry from the bottom of my heart and am truly grateful for the wonderful caring people that you are.  I promise I will not desert you again.  You can count on me.  I was telling Lizzie last night that we all learn from our mistakes and that is how we grow as people and I believe I have grown from this experience.  I won't make the same mistake again because I know there will be people out there who need to hear from my experiences as well.  Thank you for teaching me this valuable lesson and for letting me back into the fold.  I love you all dearly!!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 6/3/2009 9:39 AM (GMT -6)   

I love you Amanda, but you know this :) I did not think you needed to apologize, but I know it makes you feel better. We are all here no matter what.....

Lizzie


Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
 
"The Greatest Healing Therapy is Friendship and Love"


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/3/2009 9:57 AM (GMT -6)   

Amanda

You know you never need to apaolgize with us, we all love you! I'm just happy you were feeling good enough to do things that made you happy, you always have been and will continue to be in my prayers

Love you,

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/3/2009 2:41 PM (GMT -6)   
love you lots Amanda! and there's no need to apologize for anything. we will always care, you know that, right?

besides, this only proved to me once again that when someone is doing good, they don't need the forum anymore, that's the reason why tens of the women from all total colectomy parts are gone and never came back.. so i take it they're just doing GREAT!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/3/2009 4:50 PM (GMT -6)   
2b said it...most people leave when they are feeling better...Glad you are back!

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 6/3/2009 8:51 PM (GMT -6)   
Hey all, can I chime in? I mostly hang out over on the IBS board but occasionally pop in here.

Amanda - I think it's just great that you felt so well that you didn't need the forum as much as you had in the past. I wish we could all feel more normal and healthy! So try not to feel guilty. The rest of us are kinda living vicariously thru friends like you!

I personally love a good outcome. It gives us all hope!

I've been at my IBS struggle for 10 years now. At first I celebrated my 10 year mark but lately that TEN YEAR span is doing a real number on my psyche. I keep thinking - wow, I've been living this way for roughly 1/5th of my life! It hits me at various times, ten years. But I usually snap out of my funk, since I was able to see my girls off to college and hopefully I'll have more decades with them. I'm still cancer-free, yay. But my gosh each bathroom in this house is on its third set of parts, I wear them out. I have paisley printed wallpaper in my favorite bathroom and I occasionally find yet one more "face" in the print. Yes, because I spend so much time in there!

So when I read a topic like this one, I smile.

Thanks for bringing a smile to my face and well truth be told, goosebumps.

Never apologize for feeling so good that you don't need a medical forum! I think that's great......
Mary
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/3/2009 9:11 PM (GMT -6)   
Amanda,
I have to agree with Mary...good for you for going on with your life. It's great to have the success stories check back in now and then, but when I don't see a name for awhile, I'm hoping it just means they are doing well!

I'm sorry you're facing yet another surgery, but you know we'll all be here cheering you on! Welcome back, but I'm sorry it's because you're having problems again.
Hugs, Janie

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/3/2009 9:26 PM (GMT -6)   
You all are just too sweet and bring tears to my eyes. I'm glad I'm back too, I just wish it wasn't under these circumstances. I do however, look forward to giving others the same support I have been given over the last year. It was a Godsend to me!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
Surgery for kink in small intestine - Monday, June 8, 2009 
 
The whole world is at your feet; so paint your toenails Red!
 


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/4/2009 2:32 AM (GMT -6)   
Amanda what is wrong now???
Karen 47 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
12 FEBRUARY 2009 - Re-scheduled T/C- (postponed as the Professor is away)
10 MARCH 2009 - T/C HORRAY FOR A CANCELLATION!
Loop Ileostomy - Due for reversal around June 2009
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 6/4/2009 9:35 PM (GMT -6)   
Amanda,
Welcome back, but I really hate that it is under these circumstances. Sure wish you didn't have to go thru another surgery.

You never have to apologize for an absence from this forum - we DO understand. But, on the other hand, thank you for appreciating the care and compassion your fellow ostomates have show you and for being so caring and supportive yourself.

From the moment I began reading this forum a few years ago, I have to agree that there is really no other group of folks as supportive as here - IMO. Though I really have looked for any others either!!

It is good that you have felt well enough to start your business, and it sounds like you have been really busy with meetings (even doing scheduling on a Sunday night)... I've been keeping track of you on facebook. Congrats to you for that. It's awesome.

What can we do to help you get thru your surgery on Monday? Wanna talk about it?

(p.s.  Lots of folks move on and stop in on occasion just to update us, some don't stop in.   We enjoy hearing updates, but don't hold it against you if you don't.  Remember that.  Again, just my opinion, but I think others may share that.)


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

Post Edited (peggy113) : 6/4/2009 9:38:24 PM (GMT-6)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/5/2009 4:41 AM (GMT -6)   
Peggy,
that's what i ment to say exactly, that if ppl start to feel better and move on, there's absolutely nothing wrong with that for sure and i couldn't be more happy for them. it's definitly nice when they drop by every once in a while to just give us an update. it makes me even happier to know they're still doing good!

and let me tell you, i've tried SO desperately to find SOMEONE to talk to, and as much as i tried, i couldn't find anyone and felt so alone and isolated with my prob. so yes, i was grateful to find this place, and i can assure you, there's NO place like this one, this is THE most wonderful supportive group of ppl there is. and when i say i was looking, believe me, i mean i was REALLY looking.

in this place i feel i'm home. it's truly is my saving grace!!

thanks a million to healingwell.com!!!!!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 6/5/2009 5:00 AM (GMT -6)   
I have to chime in one more time. I have been searching for that one person, in the flesh, who gets what I go thru. I can't find him/her! So that search took me to the internet. Over the years I did find a few forums but none were like this - none! Only one came close, a medical website called Mediconsult. I loved it there but suddenly, they lost their funding and their entire website dismantled. Everyone who posted there just vanished. I have no idea where to either. I then found a few colon cancer boards and forums but they all seemed very, very strict in specific posting style, not very welcoming to newcomers. For example, if I just mentioned my surgeon got clean margins and I didn't need treatment, so many posters came out of the woodwork to tell me I still needed treatment. That I, the cancer survivor, should ask for chemo. The craziest thing I've ever heard. Sometimes I just want to post there just once and say - hey, guess what, I made it to 10 years! Cancer free! Without chemo.

Anyway, somehow I stumbled along some more and found this website.

Thank goodness I did too!

You are all such a caring group. It is truly a rare thing in the Internet world to find a place like this.

Thanks HW!

Mary
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/5/2009 5:12 AM (GMT -6)   
Mary... CONGRATS on your 10 yrs of cancer free!!!! it's so good to hear that and i'm happy for you!
i truly wish you continous health forever!!!!

G-D bless!!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 6/5/2009 6:47 AM (GMT -6)   
No need to apologize, really! We all come and go, I'm defintely one of those people...other things in life come up and need attention, and heck most of the time there's a whole lot else I'd rather be doing than sitting behind a computer screen :-P Sorry to hear you're not doing so well though, keep everyone updated :)

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/5/2009 7:28 AM (GMT -6)   
Karen, I have kink in my small intestine that is causing blockages and they are afraid it will cause me to have to have emergency surgery so they scheduled me for surgery on Monday, June 8. They tried to insert a scope (before they knew it was kinked) to dilate my anastamosis because that's what they thought the problem was but that was fine, so she inserted it a little further and six inches higher my intestine took a 90 degree turn with a very, very narrow passage. The surgeon was too afraid to try to go any further for fear of tearing or rupturing my intesting. She's going to go in on Monday and see if scar tissue is wrapped around it or if it just needs to be unkinked or if she may have to redo the anastamosis (I actually have two) that is at that point. She said it will depend on what is causing the kink or angle. I am hoping it something simple. It is in the same place that I had the tear in my intesting after the first surgery. If you rember I had a tear in my intestine exactly six inches above the original anastamosis site so they did another anastamosis but instead of doing it end to end she did it side to side because there are less complications with those. Well, you know me; Miss Complications!! So, here I go again!

Peggy, Thanks for understanding and for followng me on facebook. It means a lot to me! We should chat on there sometime! It would defiinitely help to talk about it because I'm scared I'll have complications again. I'll watch for you to be online there.

Hodaya, I'm so glad you found this site; I have gained so much support from you and I hope I've given you some support as well. You are such a doll and I hate to see you suffer so. I can't wait for the day you have your surgery scheduled and you are all cheered up and counting down the days. You know we will all be here for you between now and then and forever after!!!

Mary, Congratulations on 10 years!! That is definitely a milestone to celebrate! I'm also glad you found this website!! I pray for your continued health and thank you for your support and words of wisdom.

Matt, thanks for caring so much and I will definitely keep posting and keep everyone updated.

I can't tell you all how grateful I am to have your support. It IS hard to find people who understand, especially in "real" life. No one knows what we go through and it's not like we can have our explicit conversations with them that we have here, lol! You are all here for our ups and downs and you understand all that we go through. Again, thank you all for everything!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
Surgery for kink in small intestine - Monday, June 8, 2009 
 
The whole world is at your feet; so paint your toenails Red!
 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/5/2009 7:54 AM (GMT -6)   
ooooohhhhhh i'm so moved, thanks Amanda!! you did give me and everyone else as much support, why do you feel you didn't? you gave me great support and helped me and still helping me through this. love ya silly!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

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