Back home after week in hospital

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 6/3/2009 10:10 AM (GMT -6)   
On the Thursday the 21st of May I went to the er with severe pain and nausea.  A scan showed a blockage.  The dr.s gave me a NG tube and tried to get the blockage to clear on it's own, but on Monday I ended up needing surgery to have adhesions removed, the cause of the blockage.  Came home the next Thursday, a whole week in the hospital almost to the hour.  I'm doing okay now, this is by far the least painful recovery I've had from surgery so far.  I think it's b/c my surgeon just snipped away scar tissue and didn't move a whole lot of things around in there.  I'm just very tender and week from not eating for a week.  I have my follow up appt tomorrow which is good b/c I think I have a pocket of fluid collecting under the top of my scar.  A very hard lump.  I know that adhesions can be common with people who have been cut open a lot b/c of scar tissue.  This is my 6th insision since Aug 08.  I'm now worried with is going to become a reaccuring thing.  I didn't see this one coming at all.  No previous pain, until I was writhing with it at the er.  Now I am afraid at any moment it will happen again.  I have so many insisions now, which means only more scar tissue.  Ugg...I know I'm feeling sorry for myself I'm just so tired of it all.  Sorry.
 
P.S  Having an NG tube for 5 days that constantly got clogged and needed to be flushed was awful.  OMG I feel for anyone who has had one.  On my top 5 for things that really suck.
33 yrs old, Mama to my darling daughter (7yrs) and my little boy (3 yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Antibiotics Prednisone Imuran 100mg
Double dose of Remicade every 4 wks STOPPED BEING EFFECTIVE
Had a total colectomy Aug 1st 2008 2 step J-pouch, disconnected and reconnected
2 takedown sugeries, infections, leaks, multiple drains
Will be keeping my loop ileostomy, will not be removing disfunctioning pouch at this time
 
 


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 6/3/2009 10:15 AM (GMT -6)   
I'm sorry you have been so miserable!! I hope you're doing better. the next worse thing to having an NG for 5 days, is having one on your birthday!! I had one on my birthday this year, and would have only had ice even if i'd been able to eat.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/3/2009 10:29 AM (GMT -6)   
Oh my goodness, you have been through so much in such a short time! My heart goes out to you. (((BIG HUG)))

I had the exact same thing happen to me a year ago, and I agree, it was terrible to have an NG tube in for a week. There's a product out called Seprafilm that surgeons can put inside you before closing you up that will minimize the chance of this happening again. The surgeon I have now uses it, so I hope to never have to go through that again. You might want to ask your surgeon if he/she uses it. You can read more about it at www.seprafilm.com

Hope you have a smooth recovery.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/3/2009 10:45 AM (GMT -6)   
gosh what a mess you have been through!
i hope you get all better!

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/4/2009 6:42 AM (GMT -6)   

You poor thing you've been through so much and yet you keep on going.  That determination is what makes all of us stronger.  I noticed in your signature that you've had C Diff.  How long did it take before you were clear from it?  I am suffering from it now.  I had a kidney procedure to remove stones and ended up with C Diff, my urologist told me I needed the rest of my colon removed - I only have 2 inches - and I'd have a bag.  I went to my GI 3 hours away thankfully and he scoped me and found the C Diff.  I was treated but only off the antibiotic one day and it came back full force.  So I was just wondering how you made out with it?

I do hope your adhesion issues ease, I have a major problem with them too; I've read on here that there is something that the dr can use to help with them, this may be something to look into.

I wish you much healing and better days ahead.

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 6/7/2009 1:27 PM (GMT -6)   
Finallyfree~  I know I was treated with Flagyl for the C Diff.  But to be honest, when I had it, I was so sick in the hospital that I barely remember what all was done treatment wise.  I do remember I was put into isolation b/c of the C diff and everybody who came in my room had to totally gown up first.  I remember thinking it was all a dream seeing my husband gowned up, but it actually happened.  I asked my husband if he remembered, but he says its kind of a blur to him too.  So much happened all at once for me then.  I do remember taking flagyl for it when I was sent home.  It was a taper does for about a month.  Sorry i'm not much help:)
33 yrs old, Mama to my darling daughter (7yrs) and my little boy (3 yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Antibiotics Prednisone Imuran 100mg
Double dose of Remicade every 4 wks STOPPED BEING EFFECTIVE
Had a total colectomy Aug 1st 2008 2 step J-pouch, disconnected and reconnected
2 takedown sugeries, infections, leaks, multiple drains
Will be keeping my loop ileostomy, will not be removing disfunctioning pouch at this time
May 21st 09hospitalized for blockage form adhesions.
May 25th 09 surgery for adhesion removal.
 
 


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/7/2009 2:57 PM (GMT -6)   

LadyHawk,

Thanks, I was given Flagyl too but the day after I finished it the c diff started again in full force.  My GI put me on Vancomycin for 6 weeks; thank goodness for insurance b/c it cost $8000.  Luckily I don't have to pay anything for it; I'm just hoping it works, so far I still have D after everything I eat.

Hope you  are feeling better,

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 22, 2017 1:21 PM (GMT -6)
There are a total of 2,885,659 posts in 316,625 threads.
View Active Threads


Who's Online
This forum has 157733 registered members. Please welcome our newest member, kimi33.
432 Guest(s), 16 Registered Member(s) are currently online.  Details
Lapis_29, Pirouette, Bucko, Jackiema44, Annastazya, Mar68, Dogdays, James799, magoo2, Ljm2014, Slowdive182, TxBart, dbwilco, Leno1978, Subdenis, Redpill


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer