Well- now I am even more sure about going through with it. I have been battling a horrible fungal rash around the stoma. It is painful and itchy and a nightmare to deal with. I have a prescription cream now. I just went through hell trying to change my bag- letting the cream dry-- as my stoma was shooting out stuff everywhere- trying to get the wafer to stick. I am really sick of this and nobody at my house knows what I truly go through even though my husband is understanding. He hasn't seen the stoma or the horrible rash.
So-- Elli- I am ready because you could also have complications from a ileostomy sooooooo get me to surgery......
I have no idea what my frequency is but I am a 100-200 mile hiker and I can promise you if it got in the way of my physical activities I would opt for something different. My diet consists of about 90% fresh fruit so I do get up at night. If I would eat less fiber I would get up maybe once per night. I choose to eat what I want and the disruption does not interfere with quality sleep. Some pouchers do sleep through the night. It's hard to know ahead which way you will go. And no question is too nosey! You need to be well informed so ask anything!
A jpouch does NOT leave you at high risk for colon cancer. It is true that 1-2cm of rectal cuff are left to maintain control but that cuff area is scoped and biopsied every year or two. Cancer cells that may be caught can be effectively treated. To date only 1 jpoucher has been diagnosed with colon cancer and she did have to have her jpouch removed. That's one person out of how many thousands of us. Her cancer was not caught until it was too late. I would not let the fear of cancer stop you from purusing this option as the risk is so very low.