Oh wow, if we are not two peas in a pod....I had my whole colon removed for colonic inertia, did well for three months and then stopped pooping. I then tried biofeedback for three months and was diagnosed with anismus (after having sigmoidoscopy to make sure I did not have a kink or narrowing of my anastamosis). Biofeedback did not work. We then tried botox injections. Seven injections right into my rectum. This too did not work. I was in the process of having second opinion at University of Michigan and I got a life threatning obstruction and had to have an emergency loop ileostomy. Since then I have had intermittent urges and passed stool and mucous on my own. Life with a bag for me has been emotionally horrible for me, but in your case yo uhave time to think about it and adjust to the idea. I am now being seen at Cleveland Clinic and they disagree with my diagnosis of anismus....I am having all of the testing (small bowel, defecography, and anal manometry) done again for the third time with a pelvic floor specialist and surgeon.
I wish you the best and hope you find some relief....
Sorry was gone all weekend.....I was not put asleep for the botox injections so they did hurt, but not after the fact, do you should be a-ok. I do feel somewhat better....I get rid of waste which I never did, but I am still having nausea and pain issues and I am seven weeks post-op, but hopefully this will get better too. I personnaly am having a hard time with the bag, but this does not mean you will and if its what you have to have then so be it.....each of us copes differently. I am OCD clean and being clean and go wipes with me and clean out my bag 2-3 times a day, but again this is just me. I use mouthwash for a deodorizer and I also have some that the ostomy nurses gave me. Hope this helps....keep us posted.
Post Edited (lifeguard trainer) : 7/20/2014 1:28:53 PM (GMT-6)