New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/6/2009 1:00 PM (GMT -6)   
I have been on here for my colitis but I just found the Ostomy forum! I am so glad I found you guys.

I had the worst couple days. The high from the surgery has worn off and now the idea of having a poop bag hang off of my stomach for three months has started to set in.

I had to use a gas station bathroom the other day... It was my first time out. My first time in not my bathroom... Guys, I forgot to CUFF!!!! It got all over the place. My gloves, the outside of the bag... I just had to abort that bag and start a new one. It was just so hard. And the toilet paper in gas stations suck! Why would anyone buy single ply?

And don't get me started on the pants thing...
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/6/2009 2:00 PM (GMT -6)   
Welcom Liza!! We're so glad you found us too! This forum is a great wealth of information and the people on this site are awesome! I had my surgery in September of 08 and had a temperary ileo for three months. I had it reversed in December of 08 so I know what you are going through. I'm assuming you are having it reversed since you made mention of three months, or did I misunderstand? Either way we are so thrilled to have you! Fill us in on more details of your surgery and current condition. If you have any questions let us know, we're here to help. There are many of us who have been through or are still going through what you are going through.
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
Surgery for kink in small intestine - Monday, June 8, 2009 
 
The whole world is at your feet; so paint your toenails Red!
 


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/6/2009 5:14 PM (GMT -6)   
I guess they call it reversed... I have a J-pouch so In August they'll pop the stoma back in.

I'm just having a hard time adjusting because we were so excited to have the surgery and be done with colitis. But now it is a whole new ball of wax to deal with. I mean, does it ever slow down? It seems like it is just filling up all the time and there is no problem emptying it because I'm home all the time.

And do you just not button your pants because mine won't close and allow flow into the bag.

I just tell my self three months, three months.
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/6/2009 6:03 PM (GMT -6)   
The output depends on the input and for me a lot of it depended on how much I drank too. The more fluids I had the runnier it was and the less I had the thicker it was which helped to slow it down some. Also, some foods digest faster than others.

As for the pants, I lost a ton of weight due to complications, etc so I had the opposite problem. Even with the bag full I couldn't keep my pants up. But, it was a good thing because before surgery I had CI and had gained 20lbs. It was a good thing for me to lose. Maybe some others on here could give you some advice with the pants.

It was a hard adjustment for me. Are you handling it ok? You sound pretty positive and that's great! I wish I had your optimism!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
Surgery for kink in small intestine - Monday, June 8, 2009 
 
The whole world is at your feet; so paint your toenails Red!
 


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/6/2009 7:02 PM (GMT -6)   
Everyone thinks I'm really strong for dealing with all of this but some days... I just can't deal. I just don't want to do anything. I am at least building up strength so I can shower more frequently. That always makes me feel better. Even though it takes sooooo much to just shower. It is still new... this is like my 4th or 5th week with it. I really need to order some pants on line and just get over it.

Thanks for listening tonight... I really needed it. :)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 6/6/2009 7:45 PM (GMT -6)   
I only had a temporary colostomy for 8 weeks but it was rather a shock at first. I remember just staring at my stoma, because I had the clear bags in the hospital. I had a real crying jag one day, I could not stop crying. My ET nurse was wonderful, she let me cry and patted my hand afterwards. She encouraged me to talk about my feelings and what I was going thru. I have never forgotten that kind gesture (just allowing me to be sad about it!).

She did tell me that women often have easier adjustments to ostomies than men do. I never really asked her why because well I kept crying that one day. LOL

Then later I thought long and hard about it all and thought, okay Mary you can do this, you've changed hundreds of diapers on your two girls (not to mention the kids I baby-sat for back in the 1970s, when kids wore cloth diapers you rinsed in the toilet!) and you've had at times really heavy periods (wearing both super sized tampon and maxi pad). So I basically had a silent pep talk with myself and vowed to handle it all. Thinking this is just one more messy job to take care of.

I did, for the most part. Had a few flubs along the way though - once I went thru the whole weekly change routine, washed up, had a light breakfast and coffee, hopped in the shower and knocked the whole thing off. Had to do a change with stool coming out. That was not fun! I had minor mishaps with not clipping the bag and stool went everywhere. I learned to keep cleaning supplies under every bathroom sink in this house. So I didn't have to run to the laundry room for bathroom cleaner, etc. I also made sure I had laundry detergent on hand too (along with liquid Lysol and/or bleach). It was just nice to know no one had to run to the store for something for me. I just cleaned up each time.

Just vent here, you'll find lots of caring folks to listen. I hope you continue to do better Liza.
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/8/2009 1:02 AM (GMT 0)   
Your pants should be fine, i still wear the same pants, with no problem. Unless you are trying to wear skin tight clothes you cant breathe in, lol.
Your output will slow the longer you have had the bag. Try some immodium and foods like potatos and breads in the meantime. Also watch what you eat to see what gives you lots of output and then limit that food.

And anytime you want to whine, just whine away! we all do it sometimes!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/7/2009 8:14 PM (GMT -6)   
Give yourself time! You've just had everything done. For a long time, I thought I'd NEVER get to wear jeans again. I was upset about that. But eventually, after your abdomen heals, you can learn to shove things in. I wore stretch and sweat pants for, like, 3-4 months after surgery. Now, I'm back to my old clothes again.

My output was really fast at first. It went in and it came out. Sometimes I'd think-no way has that much stuff gone in.. Where'd it come from?!
But mine has slowed considerably. Corn chips helped me at first to slow things down.

We've all had good days and bad days. I've had days when I think, man this just sux. But I've also had days when I think how lucky I am to have this option to get my health under control. You gotta balance things and not dwell.

It will get better, but lukily you won't have to endure it much longer.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/8/2009 1:58 PM (GMT -6)   
Thanks guys. It really helps to have this forum. Looking around you may be the only 27 year old in the colorectal office but when you get on here you can see that you aren't alone.

I got the little plastic piece removed today... it's just me and stoma now! And I learned that I am better at bag changes than my doctor is! But I adore him!

Thanks again!!!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/9/2009 6:30 PM (GMT -6)   
Welcome, Liza! I'm glad you found us, too. You have a great attitude and are doing really well for only being one month post-op.
 
It's a big surgery, and it takes a little while to get your energy back. Showering after surgery always tires me out, too, so I put a chair in there to sit on. It really helps. I also set up a vanity area in my bathroom, where I can sit and blow dry my hair. Even after all that sitting, I still have to lie down and rest.
 
I'll never forget the first time I emptied in a public restroom. The output was really watery and the bag was full. I undid the end, but the tail was not in the toilet yet, so it went all over my jeans and the floor! Luckily, I was a private bathroom, so I had time to clean it up without anyone around.
 
Welcome again. You're in good company here!
 


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


windows63
Regular Member


Date Joined Mar 2009
Total Posts : 22
   Posted 6/9/2009 8:49 PM (GMT -6)   
Im new. Surgery 6/22 scared as hell.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 6/9/2009 9:38 PM (GMT -6)   
Windows63,
What kind of surgery - for what? What exactly are you scared of? WHat can we do to help you?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 6/10/2009 9:41 PM (GMT -6)   
Liza

I think you are doing great!

Just to help you out with the pants thing. I learned this trick from my sister when she was pregnant. I looped an elastic hair tie through the button hole and the other end around the button. I hope that makes sense. This has helped me on many occasions. I have also not buttoned the top and wore a longer shirt. It will get better though. It did for me, especially after I got my bridge(the little plastic thing) out.

Good luck!
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 6/10/2009 9:42 PM (GMT -6)   
P.S. I totally know what you mean about being the youngest person in the colorectal office. I'm 25!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/11/2009 3:42 PM (GMT -6)   
It's good to not feel alone. I am doing better with talking to my family about what is going on in my head and my mom, on the other side of the country, is try desperately to find pants to my liking. Everyone is really helpful. And today, my friend's mom sent me a Super Girl glass just to say "keep it up".

It all makes sense... the amount of output in relation to the input. I guess I just needed someone to say it. So, I go through days where I eat whatever and I know I am going to deal with it later. And then I just take a step back until I feel better.

Everyone has such good advice and positive messages. Thanks you so much!

Window63- I still have to say that I would not take my old colon back despite the ordeals after surgery. It is worth it. I also have a great surgeon who explained everything and kept all the scars really small. If you want to email feel free.
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/13/2009 11:50 AM (GMT -6)   
Ditto on being the youngest person in the colorectal office. I figure I'm getting all of my health problems out of the way while I'm young, so I can enjoy my golden years! turn
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/16/2009 11:37 AM (GMT -6)   
Right Cecilia! We are going to be the ones who live to be 110 years old! :)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 25, 2017 8:16 PM (GMT -6)
There are a total of 2,873,282 posts in 315,320 threads.
View Active Threads


Who's Online
This forum has 156808 registered members. Please welcome our newest member, sammyp.
472 Guest(s), 10 Registered Member(s) are currently online.  Details
glutensugarfree, sda777, BabsBunny, SlappyHappy, Purrrsiankitty, sebreg, cspivak, Redwing57, owleyes, scar1919


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer