Anyone tried this companies products?

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/7/2009 9:19 PM (GMT -6)   
I've been searching for a new one piece that will actually NOT LEAK for me and I found this company called Cymed.

On their website, it says the products were developed by an ostomate. And there is a testimony from this professional athlete guy (he surfs, climbs rocks, bikes, etc.).
The products look great, but the problem is that most of them are for colostomies, and I have an ileostomy. The output is so different, so I don't want to try product designed for a colostomy.
I ordered some one pieces, and tried my first one on tonight. It leaked within an hour of application. sad

I put another one on, but now I'm afraid to use them.

I was wondering if anyone else has used any of their products?

I'm supposed to go swimming on Thurs. It'll be the first time since the ostomy, and of course, I'm nervous. shakehead
We're going to a water park (me, my baby, and a friend).
I don't want to be embarrased. (I STILL can't spell embarrased- and why does the comp. always underline ileostomy?) .
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/8/2009 1:04 AM (GMT -6)   
Sorry I have no idea about products yet. Hearing about leaking freaks me out. I hope you are OK.

I want to hear how the swimming goes. I love swimming laps and waterskiing, and any water sports.

I have to get surgery don't even know what kind they will do but I know it ends with a bag. I have been putting it off because I know it will wreck my life as I know it. I want one more summer without it. I know it makes others life better but I can't quite see it helping mine like that. I keep hoping but I'm rather scared of this next challenge.

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 6/8/2009 7:20 AM (GMT -6)   
Chassity...... I was shown these bags... but I was told by my ostomy nurse that if u have any irritation what so ever u cant use them and that they would leak. Other than that she said they where good

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/8/2009 7:24 AM (GMT -6)   
I have an ileostomy and live in Florida, so I go swimming all the time - in the pool, at the beach, and at water parks (my personal favorite!) smilewinkgrin

I have never had a wafer come off after being in the water. I wear the Coloplast Assura Extended Wear wafer (item# 2833) and get 7+ days wear time, and that's after exercising and showering daily, too. It's an amazing product. I highly recommend it! I have also never had a leak in 3+ years of using this product.

The wafer accommodates stomas up to 45mm, so they would work for someone with a colostomy, and the matching pouches are item #13986. They have a flesh colored, cloth covering with a velcro closure.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 6/8/2009 10:18 AM (GMT -6)   

Okay, so on the line of water adventures...are there any others that work well with the water?  I'm nervous about the Coloplast brand b/c the wafers do not stay put.  I absolutely adored their two-piece click system, but they popped about every two or three days. 

I'm currently using the Hollister one-piece 88300 and it's great so far.  However, each time I swim or spend a lot of time in a wet swimming suit they seem to not wear well.  Any suggestions?

Sorry for tagging onto your post Chassity.  I've been wondering about water friendly accessories too.  I need to check my medical supply book and look for other brands.  Does anyone use something other than Hollister, Coloplast or ConvaTec?

smurf
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/8/2009 11:59 AM (GMT -6)   
The Coloplast wafer I use has a built in skin prep, so I only put a band of Stomahesive paste around the hole and apply it to dry skin. I press it down firmly for about a minute to make sure it's on well, snap and lock on a fresh pouch, and that's it!


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/8/2009 2:03 PM (GMT -6)   
OK.  those aren't good reviews. LOL.
 
So far I've gone through 4 of them since last night. But once I cut the wafer too big, and once I accidently put it Over the bottom stoma hole. But once it leaked all by itself. Hmph. Oh well. I was so hopeful from the testamonials.
 
I like the coloplast and I'll probably use that for swimming, it's just that I would like to be able to hide them more under my clothes. My clothes aren't skin tight, but are form fitting. Even with tank tops, you can see the click lock with the coloplast. I've used the sensura flex, but the part that you stick the bag to is rigid and sticks out even farther.
 
I like the Hollister one pieces, but can't keep them from leaking either.
 
I've ordered samples from Hollister to see if the new image hides better AND  stays put.
 
I'm just having trouble finding what I want.
(short bag with filter and lock n' roll-or quivalent, one-piece that STICKS to my skin)

Robin- when I put my coloplast wafers on, I don't use any skin prep. Just paste and stick it to the skin. I used to blow dry it then, but they last Longer if I don't do anything.


Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Post Edited (Chasblah) : 6/8/2009 2:52:41 PM (GMT-6)


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/8/2009 3:07 PM (GMT -6)   
Trigirl-don't worry about leaks yet! They are not as bad as they sound. just annoying. Really. Life is so much better for me since my surgery. I've always been an active person (not as active as you..Smile: ), but I'd always been an energetic person, and I didn't realize how much U/C had stolen from me, until after my surgery!

The leaks just mean you have to change your appliance, so you won't get skin irritation.
This will not wreck your life. It's just a speed bump. I promise you will be able to be as active as b4. Probably even more so!
I talked to this lady on UOAA about swimming and she swims 3-4 times a week with no problem. So, I'm looking forward to swimming, and I'll let you know how it goes.

I was SOOO scared to have my surgeries. I cried everytime I thought about it. I so did not want to be one of 'those bag people'. But now I am and I'm never looking back!
BUT it there will be a healing process. I had my surgeries at Christmas, and I'm just recently getting active again. I rode about 15 miles on my bike last week, and am excited for more. (it's also helping me to lose weight)

What have you been suffering with?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/8/2009 5:21 PM (GMT -6)   
Chassity,
That's too bad that those wafers didn't work for you. With the Coloplast wafer, I position the lock part toward the bottom, so it's hidden under the pouch. 
 
Have fun at the water park!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/8/2009 7:26 PM (GMT -6)   
Cecilia!
I'm such a tard, I never even thought of that!
what is wrong with me. That is such a good idea.
I will definitely try that.
thanks
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/8/2009 9:39 PM (GMT -6)   
i ordered one of those cymed wafers but was scared to try it, and i dont think i ever will now, lol.

I wear the hollister new image and i went on some water slides last year and had no problem, and swam a bunch last year heck i spent 6 and half hours in the pool straight with no problem!
Now, it didnt do so well in the hot tub, however we were in there for 4 hours and there was way too much chlorine in there so i think that was what happened there, because it wasnt that the wafer came loose, it was that the plastic was being eaten through.

I tuck my bag up and tape it down so that it doesnt show through my suit. Noone has noticed yet. In the hot tub i put my belly band thing on under my suit and that helped too.

Dont freak out worrying about leaks! the chance of a leak is sooo worth feeling good and getting the chance to go to a water park!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/9/2009 12:48 PM (GMT -6)   
Thanks all.
The 4th appliance (in 2 days) leaked again.
So they don't work well for me.
I put on the sensura flex again (cause that's what I have).
They are dependable at least. I guess I will just use a two piece under my one piece. LOL.

I can't wait to go swimming! I bought a new suit that I think hides my bag. It's got a bright blue pattern on a black background. And it's tight enough to hold it all in. I just hope it doesn't balloon too much. I noticed that my left side (ostomy side) sticks out a bit more anyway. Maybe from scarring?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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