still in the hospital....

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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/10/2009 4:42 PM (GMT -6)   
i had my surgery on Monday and was supposed to get released this coming friday but suddenly have a fever that keeps going up. it was 98.7 this morning and now is 101.2 even after taking tylenol. my surgeon will be coming by soon so i'll see what she says. im very scared because she said she nicked my intestine when trying to removr the massive scar tissue that had gotten wrapped around my intestine. ill have to explain more to you later if im not so drugged.  this is hard to type when you are on the pain meds. not sure when i'll be going home. they originally said Friday but not so sure now. 
 
anyway, i just wanted to give you all an update.... 
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
Surgery for kink in small intestine - Monday, June 8, 2009 
 
The whole world is at your feet; so paint your toenails Red!
 


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/10/2009 6:53 PM (GMT -6)   

Amanda,

Keeping you in my prayers.  Stay strong.

Hugs and love,

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 6/10/2009 7:11 PM (GMT -6)   
Amanda, you're in my thoughts and prayers!! Whitney

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/10/2009 7:59 PM (GMT -6)   
Oh Amanda!

You poor girl.
I feel so bad you've gone through so much.
I hope this all gets under control.
You deserve some good news.

Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 6/10/2009 8:13 PM (GMT -6)   
Oh Amanda....you and me and infections. Hope they can get it under control and quick. Love you and thinking of you.
 
Prayers and Hugs.
 
Lizzie
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
 
"The Greatest Healing Therapy is Friendship and Love"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 6/10/2009 9:29 PM (GMT -6)   
Thoughts and prayers for you Amanda! Good luck!
 
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 6/10/2009 10:25 PM (GMT -6)   
Keeping you in my prayers, Amanda. Stay strong and trust in the Lord. Jennie

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/10/2009 10:44 PM (GMT -6)   
Amanda dear, stay strong, i hope it's not as bad as it seems, keeping you in my prayers, waiting for your update, love you!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/11/2009 7:33 AM (GMT -6)   
Amanda,

I hope they find out what's going on, so you can feel better! You are in my thoughts and prayers.

Love and hugs,
Cecilia

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/11/2009 11:48 AM (GMT -6)   
ok here's a quick upsate. temperatur got to 104. CT scan showed leaks, was taken to suegery at 2AM, can't figure out where the leaks are coming from. now have 2 jp drains and an NG tube. cant eat or drink anything except ice chips. They are feeding me throgh the iv.

feeling very scared...
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
Surgery for kink in small intestine - Monday, June 8, 2009 
 
The whole world is at your feet; so paint your toenails Red!
 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/11/2009 1:22 PM (GMT -6)   
oh my gosh Amanda, i'm SO sorry to hear that. i cant believe you're going through a perforation again, i mean the last time was surely enough :(

i hope they are able to take care of it ASAP, i'm so worried about you. i bet you're scared, please stay strong, YOU'RE GONNA MAKE IT!! you know that, right? keeping you in my prayers.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 6/11/2009 2:36 PM (GMT -6)   

Amanda-

My dear little one....I feel so bad for you and feel your pain. I had those darn drains and that darn nose tube....horrible. I hope they can figure things out. They were able to control mine with the drains and I pray they can do the same with you. They never found my leak....but I had your same symptoms. I am SCARED for you too, but praying hard. Love you....

Update us when you can.

Lizzie


Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
 
"The Greatest Healing Therapy is Friendship and Love"


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 6/11/2009 4:09 PM (GMT -6)   
Amanda...keeping you in my prayers for a speedy recovery. {{Hugs}}
Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 
Ileostomy Reversal March 9/09


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/11/2009 5:57 PM (GMT -6)   
Amanda,
You poor thing! I'm so sorry you have to go through this....you're in my prayers. Please keep us posted. I'm sure you're in good hands, and you know everyone here is praying for you!

Hugs, Janie

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/11/2009 8:17 PM (GMT -6)   

Amanda,

So sorry to hear about your newest surgery, you always have such a difficult time; life is just not fair cry .  Am praying that they will be able to find the leaks and you will soon be feeling better.

Hugs and love,

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 6/12/2009 6:25 AM (GMT -6)   
thanks everyone for yur prayers and asupport. theu mean a lot to me. still have fever but going dewn some. hospital is great. will probaby be here another week. will keep you updated
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
Surgery for kink in small intestine - Monday, June 8, 2009 
 
The whole world is at your feet; so paint your toenails Red!
 


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/13/2009 10:32 PM (GMT -6)   
Amanda,
NG tubes suk! Ugh and abdominal drains.
I HATE them, but the one thought that got me through all the tubing, was thinking how skinny I'll be when I get out! New wardrobe with new skinny girl jeans!!!
You are going to be so HOT!!!! Once you cool down I mean.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/14/2009 3:24 AM (GMT -6)   
Praying for your quick recovery. Those sound like tough challenges. Wearing skinny jeans will definitely make it worth it.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/16/2009 6:54 AM (GMT -6)   
Amanda--I'm so sorry that happened! I have been in the same boat:( doc's couldn't see the tiny hole...my solution was an ileo until it closed on it's own...three months...My thoughts are with you!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/16/2009 9:43 PM (GMT -6)   
How are you doing Amanda?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/17/2009 4:40 AM (GMT -6)   
Amanda,
I'm thinking about you and praying for you. I'm sorry you're having to go through this, and hope you're doing okay.
(((big hug)))
 
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/25/2009 1:53 AM (GMT -6)   
Amanda,
Are you still in the hospital? Is everything okay? I'm thinking about you and praying for you.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


mommyphotographer
Regular Member


Date Joined May 2008
Total Posts : 159
   Posted 6/25/2009 6:20 AM (GMT -6)   
i am praying for you........... how scary.... how are you doing now.. ?? keep us posted as we all care.........

Lord Please be with this lady and heal her body and let her be able to go home soon and also keep her from any further problems down the road. we know your the greatest healer and you can bring her thru this . please give her peace thru this time also and be with her family to help them support her as she needs to be loved and supported right now. Thank you Lord for letting the hosptial staff treat her well and pray they continue to be kind to her. help her with the tube as they are not fun to have in. Thank you Jesus and i ask it in your name. AMEN
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