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andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 6/14/2009 6:37 AM (GMT -6)   
Hi All,
I had my ileostomy done on march 4th and been mostly doing ok, until today i went to the bathroom and the pain i felt around my stoma was unreal. It buckled me over and had problems moving for a good half an hour. The pain has calmed down but still doesnt feel right, i am getting a little worried and really dont want to go back to hospital. I later decided to change my bag and have the warm water running over my stoma which seemed to help. Thanks for listening

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/17/2009 11:21 AM (GMT -6)   
Oh my, I hope everything's okay!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 6/17/2009 11:39 AM (GMT -6)   
hmmm. . .I wonder if you have something stuck right at the entrance of the stoma. My GI dilated mine by sticking his finger through it twice--definitely got through something too. Might be worth a call to the doc. Have you tried heating pad and lots of liquids?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 6/17/2009 2:52 PM (GMT -6)   
Andorable,
How are you feeling today? Is the pain better?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tls43
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/18/2009 1:13 PM (GMT -6)   
When I would have pain with mine, the heating pad was my best friend! I would call the doctor also, and I hope you feel better soon!

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 6/18/2009 7:15 PM (GMT -6)   
Hey All,
I am feeling better, the heat helped a lot. Thanks for your replies, its so nice knowing that u are all here to talk to and u all understand whats going on. I saw my GI the other day and he seems to think I did have a small blockage that corrected itself, and he said if it happens again they may need to flush it out, (not thrilled about that idea), but hopefully wont be necessary. Hope u are all well :-)

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/18/2009 8:57 PM (GMT -6)   
Blockages are painful and no fun. I'm glad it passed on its own. Drinking coffee would usually help flush a partial blockage for me, and heat helps ease the pain. Glad you're feeling better! 
 


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Kady
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/19/2009 7:38 PM (GMT -6)   
Hi everyone!
my name is Kady, I was diagnosed with colon cancer in Sept, 2008 I had surgery in October 2008, which I got a leak 10 days later, and had to have the surgery done over again, I almost dide both times, I was hospitalized for 28 days, and was sent home with a wound vac on my incision which was very large, and open, it had to heal from the inside out, my stoma is sore, and is sticking out some, it also has little bumps around it which looks like skin tags, it also bleeds often, and I have lots of gas, which is soooooo stinky, I have to go outside to let the gas out of my ostomy bag, is all of this normal? it is very sore today, and I haven't been back to my Doctor because I have no insurance, and no way to pay for my visits to the doctor, my daughter buys my colostomy bags, and its quite expensive, she has a husband and 3 children, and I feel so guilty taking her money, but I do have to have my bags, please tell me if it being sore and bleeding is normal, I am scared.
thank to everyone.
Kady

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/20/2009 5:07 PM (GMT -6)   
Kady--sorry to hear you are not feeling well, but welcome to the forum. Smell depends a lot on what you've eaten...certain foods are worse than others. Where are you bleeding from? Is your wafer too close to the stoma?

I think if you go to www.UOAA.org you can find some info on assistance with supplies...also, check with your WOCN to see what local programs are in your area for supplies...at my hospital they collect items and they get distributed to people in need.

Kady
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/22/2009 8:28 PM (GMT -6)   

I am feeling better today, I did have my wafer really close to my stoma, it has helped a lot since I have been using the heating pad. I have also given more room for my stoma by cutting the wafer bigger, I was afraid if I cut it too big, that the skin would become irritated around the stoma, and get really itchy, but so far, it is doing much better, thanks for the advice,

Kady turn

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