What's your opinion??

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Trigirl
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Date Joined Jan 2006
Total Posts : 768
   Posted 6/21/2009 1:54 AM (GMT -6)   
OK past my bed time, can't sleep and had this flash of thought.

I think it would be cool for some TV show to have someone with and ostomy on it. It would give people an idea of what others cope with. House could do a show on it and figure out how that is the only solution and oooh that cute blonde Dr. could do the surgery.

Or how about some soap in the day, I don't know "General Hospital", could have a regular with the challenge on.

Oh,Oh I know, a comedy show that has all the crazy, funny, embarrassing things that can happen.

When I tell friends what's coming up for me they don't have a clue what it even is.

Might be a way to educate the world. Still seems like the "keep it quiet" disease. I don't know a lot of the TV shows these days but there's got to be some?

So, what's your opinion?

RobinByrd
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Date Joined Dec 2008
Total Posts : 511
   Posted 6/21/2009 8:57 AM (GMT -6)   

YES!!!!  I've had very similar ideas too.  How wonderful would it be to have a patient on a popular TV show with UC or CD and then something about an ileo?! 

I've also thought that since reality TV is such a huge thing (which I am very guilty of enjoying) that it would be wonderful education and awareness if someone with an ileo was active in something like Big Brother.

Then just a side note:  I'm impressed that there are celebreties finally to come out of the wood work and announce their struggles with UC or CD.  I'm sure there are far many more with these Dx that we are not aware of, and they are in the position to help with the acknowledgement that these diseases exist.  If I were a celebrity I would so have my face plastered on advertisements and commercials talking about these horrible diseases but how wonderful it is tha we have a cure!  Then I'd talk about the ileo and j-pouch.  : )

Great post!!!!!!!!

smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 6/21/2009 9:04 AM (GMT -6)   
I think that's a GREAT idea!! I love House (and the cute blonde doctor) and think diagnosing Crohn's and doing a proctocolectomy with ileostomy would make for an interesting, informative show.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


awesomeame
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Date Joined Feb 2006
Total Posts : 625
   Posted 6/21/2009 9:28 AM (GMT -6)   
flchurchlady said...
I think that's a GREAT idea!! I love House (and the cute blonde doctor) and think diagnosing Crohn's and doing a proctocolectomy with ileostomy would make for an interesting, informative show.

agreed!
 
Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/21/2009 10:51 AM (GMT -6)   
I think anything house does is interesting! :D

But i do think that would be a good thing, i think on the UC board someone emailed the drs tv show to cover UC, it would be good if they covered ostomies too. It would help clear up so many misconeptions. I know i had lots of crazy ideas of what it would be like, and i am sure other people do too and are suffering because they dont know that life afterwards is fine.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/21/2009 9:38 PM (GMT -6)   
hmm glad i can be of interest!!! LOL

Chasblah
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Date Joined Feb 2007
Total Posts : 788
   Posted 6/22/2009 9:01 PM (GMT -6)   
Yea! I love it! Our own TV show. What should we call it?
"The Stoma and the Buttless" "True Bags" "Project Ostomy"

Actually - The show "Scrubs" had an episode about a guy with UC and he had to have a Dr.'s consult, and a surgery consult.
The Dr. (J.D.) wanted to treat him with meds, and the surgeon (Turk) wants to cut.
the patient said it's hard to date b/c he's so gassy. So true.
And he decided to have surgery to have his colon removed b/c of his risk of cancer.
and there was a beautiful song about the dr./surgeon relationship. Just beautiful.

I was so excited when I watched that episode. I wish I could've played the patient.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Trigirl
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Date Joined Jan 2006
Total Posts : 768
   Posted 6/22/2009 10:27 PM (GMT -6)   
Chasblah,
Do you know when that episode was? Like what year maybe is enough. I would like to look it up on the internet and watch it.

Yes,,,A good name is important LOL I keep thinking I want to find a smart guy like House to be my Dr. I had the poor mannered surgeon and decided "No thanks"

Count down two more days until I see the new surgeon guy. Feel like I could possibly explode before this appointment. Am trying to get some questions together. Have read lots of good ideas on here. Have to write them out or I know I will have a mush brain when I get there. Stomach so upset and nervous it is crazy.

Oh more material for the show. Maybe I should just volunteer to have it all taped for a reality show.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/23/2009 7:39 AM (GMT -6)   
oh that would be an awesome idea a realtiy show covering hte first couple of weeks

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 6/23/2009 8:03 AM (GMT -6)   
Chasblah said...
Yea! I love it! Our own TV show. What should we call it?
"The Stoma and the Buttless" "True Bags" "Project Ostomy"


turn ROFL turn

How about... "As the Stoma Churns"?
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 6/23/2009 8:37 AM (GMT -6)   
I was an ER fan. If you were too, you'll recall that after Carter was stabbed he required surgery and a temporary colostomy. The show focused on how he became addicted to pain meds and I'm trying to recall if they ever mentioned his colostomy again (even the takedown). They could have educated the public about colostomies along with pain medication addiction. But they chose not to. What a shame. Since County General, fictionally speaking, was a teaching hospital.

St. Elsewhere may have covered ostomies, since the show was groundbreaking and all. I can't recall if they did though......
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/23/2009 9:06 AM (GMT -6)   
they did actually mention it in one of the final shows, but i dont remeber what they said about it. It was a very brief mention.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/23/2009 10:28 AM (GMT -6)   
"As the Stoma Churns" ha ha ha ha .. Can't stop laughing. You have made my day!!!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/23/2009 1:35 PM (GMT -6)   
Trigirl-

I don't know when it was, but I'll try to come up with it and let you know.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/23/2009 6:21 PM (GMT -6)   
Tonight's episode of House is about a guy with a small bowel blockage and they're about to do surgery. They mentioned Crohn's as a possible cause. What are the chances of that, especially since we've been talking about it? 


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/25/2009 1:32 AM (GMT -6)   
Trigirl,
I found the Scrubs episode! It's called "My Way or the Highway."
 
Is today your appointment with the new surgeon? I just wanted to wish you good luck! Do you have your list of questions written down? I do that, too. Please keep us posted on how it goes!


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/26/2009 2:14 AM (GMT -6)   
CECILIA, Will get online and watch it. Thanks.

WOW Sweet of you to ask about the appointment. I started a new topic with my news. The surgeon was so nice. I was in shock. He was even cute. (Now I am happily married 32 yrs. and all but that never hurts the situation). I did get all the questions answered and left feeling relieved.

Aug. 4th is not that far off so just have to hang in. Summer is all of a sudden crazy with visiting relatives(All my husbands side) and I want to be alone? Or at least not bombarded by people. Does that seem selfish? Didn't used to bother me, I like the fun but not right now. Already apologized to my mother-in-law in advance for how I might act under stress of large groups and too many expectations. I did so much all the time before and now I'm rather a useless blob of brainless matter. It will go away I understand that, but standing in the middle of the fog is rather debilitating for me.

I plan to keep coming to this comfortable, secure, friendly place and just hanging out. That can only help any jittery nerves right?

Hugs and sweet dreams to all.
Hey how do you put that stuff on the bottom of your comments? I just don't get it. Not very computer sauvy.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/26/2009 3:05 PM (GMT -6)   
You're not being selfish at all! You have an illness that makes you sick, saps your energy, and you're going to have surgery soon, so everyone had better understand that you need to rest.
 
I'm glad you can come here anytime and chat with friends who have gone through what you're going through and completely understand.
 
The surgery for me has been like a cure. Once the diseased parts were gone, the pain and sickness was gone and my energy returned. It's been a miracle to have my health back, and I wish that for you, too. (((hugs)))
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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