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Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 6/25/2009 7:53 PM (GMT -6)   
HI Everyone
 
Did anyone else start losing their hair after surgery?  Being a woman this is a little distressing.  Just thought someone might have some insight. 
 
Thanks
Sue

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 6/25/2009 8:04 PM (GMT -6)   
Sue, I don't know why you had your surgery. I had emergency surgery back on 10/31 of last year. I started losing my hair, and it is still a lot thinner than it was pre-op. I would discuss this with your doctor, and also ask about vitamin deficiencies. I was low on b12, and will be on monthly shots for a long time. probably the rest of my life.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/25/2009 8:34 PM (GMT -6)   
anytime your body goes through something stressful, surgery, extreme sickness, pregnancy, even periods of extremely high stress your body takes the nutrients its not getting from your hair and your nails, so when your hair goes through its growth cycles, the cycle where it should have been growing to replace the new hair can be affected by that, and then it also has damaged the hair thats already there, so you will lose hair and not grow as much back at the same time.
Your nails may show pits or lines totally random, but historians can look at the nails of a someone who was mummfied or perseved with their nails intact and see evidence of illness or injury, yeah i know ya'll dont care, just some of my useless knowledge.
Anyway, its normal that your hair is falling out, esp if you were on certain meds also. Some vitamins can help, but mainly its just time.
By the time i had surgery i was down to about 1/3 the amount of hair i had before i got sick, luckily i have thick hair so it wasnt that bad. Now, 2 years post surgery i am up to about 3/4 and its still growing thicker.
I know how scary it is, but it will stop and it will grow back, its just slow.

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 6/25/2009 9:07 PM (GMT -6)   
Surgery also can make your thyroid off levels.... which will cause hair thinning or loss. If it continues see ur doctor so they can do a blood workup. Hope this helps

NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 6/26/2009 12:19 PM (GMT -6)   
Ditto on Summerstorm's response. about three weeks after I got home, so a month after surgery, my hair started coming out. I freaked when I started looking like a radiation survivor. In the shower I'd end up with mats of hair in my hands. EEEEEKKKKKKKKKKK!

I called my dermatologist, pretty much in hysterics. By that time the part on the center of my hair was about an inch wide with a few strands here and there (or so I remember a quarter of a century later!). He calmed me down and pointed out his wife (another doc) and her glorious lush hair. And told me she had lost it during a miscarriage, med boards and it thinned way out during the pregnancy of their son. He reassured me that the vast majority of the time it grows back, sometimes fuller! I didn't get that but I got a few more waves than I had in my perfectly straight hair.

Oh, I did cut the hair down to boy length while it was thin, just made it less stressful not having a handful of nothing!

Hang in there, we DO understand your reaction!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/26/2009 12:20 PM (GMT -6)   
Rogaine for Women might help, too.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 6/26/2009 1:58 PM (GMT -6)   
HI thanks for the responses, I loved all the information Summerstorm, my nails as well have the divits that you mentioned.  I think I will see my Doctor about B12, he did say I would likely need this, and I am being more diligent about my vitamins.  It is nice to know other's have lost and it has grown back, I didnt have a whole lot to begin with so I need it all.
 
Sue
 
UC six years, ileostomy feb 09.  No more meds!

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/26/2009 2:08 PM (GMT -6)   
Hi i too am suffering with hair loss i had surgery in jan and still its coming out i have B12 jabs every 3 months and have recently been taking extra folic acid which is suppose to help. Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stNo maintance drugs as such on B12 shots,iron syrup,loperimide, 
was on 20mg EScitaliopram.changed to Sertraline 50mg


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/26/2009 7:03 PM (GMT -6)   
You can also buy sublingual B12 in the liquid form at the grocery or drug store. It has 1.2 mg (1,200 mcg) of B12 in it, which is a lot - 20,000% of the daily requirement!  
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/28/2009 2:13 AM (GMT -6)   
yes that sublingual b12 is great, its really cheap. you might also try a multi vitamin, i take a flintstones with iron. i know how silly that sounds but its actually a really good vitamin! when i was pregnant and having trouble with the prenatals the dr said that the flintstones were one of the best you can take! Plus since its chewable it will absorb all the way.

Sue-Im glad you like all my random info, i am full of stuff like that. i dont know anything useful but i got all kinds of what my family calls "jeopardy knowledge"' lol

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 6/28/2009 7:26 PM (GMT -6)   
Interesting you should post this as I am going through the same thing. I had my first surgery in March and just two weeks ago my hair began seriously falling out- in clumps. I have never had this problem before not even when I had thyroid problems.

I did some research and asked the docs- they say it is totally stress related and that when there is extreme stress this could happen and it usually happens in about 2-3 months of stress related incident.

I forgot the name of the disorder- there is no cure- but I am going to try biotin and see my primary for more info or suggestions?
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA


Grateful2
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/29/2009 8:11 PM (GMT -6)   
My hair also became very thin after 5FU treatments.  Found a product called Ovation which is expensive and can only be purchased online.  My hair came back fast and thicker than it was before.  Didn't take too long, a few months (3 or 4).

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/30/2009 5:05 PM (GMT -6)   
Unfortunately it will fall out...I also cut mine "shorter" so I didn't see as much in my hand/brush:( You may need B-12 shots if you've had your ileum removed. Your doc will do blood work to check your levels and I LOVE my chewable vits!!!!
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