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Simzee
Regular Member


Date Joined Sep 2007
Total Posts : 64
   Posted 6/26/2009 2:50 PM (GMT -6)   
Hello all. I'm from the IBS-D chats. I'm hoping someone can help me. I get diarehha everyday. I go up to 5 times an hour for 10 or more hours a day. (if i'm lucky 5 or 6 hours) It usually comes from my intestines. When it comes from my stomach, my food comes out undigested & stinks. (after running for many hours who can wipe.) In order for me to control it, I eat every other day. When I do not eat...I still "run" with slimy blood coming out. Doctors tell me there's nothing wrong with me. All I know is that I live in the bathroom, literally. Would it be even wise to ask for a temporary bag to see how it works out?  Yes I wake up at night to "run". Sometimes I don't wake up & have a mess. Any sugestions would be helpful. Thanx All.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 6/26/2009 7:31 PM (GMT -6)   

You might want to consult with a CR surgeon.  This sounds like a motility disorder.  Have you tried taking imodium or lomotil?  Have you adjusted your diet to remove those foods that loosen stool?

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/26/2009 7:36 PM (GMT -6)   
Bloody diarrhea 50+ times a day is not normal! I had Crohn's with diarrhea and went about 20 times a day and thought that was a lot. You poor thing, this is no way to live!
 
And, for doctors to say there's nothing wrong with you is just crazy! You need to find a gastroenterologist who will do every test possible to find out what's going on. 
 
I know for a fact that a temporary ilestomy would give you relief, because you would not have to live in the bathroom anymore. You would be able to eat every day and have a life.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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