Can I hear a WHOO WHOO!!!???!!!

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RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 7/4/2009 11:06 AM (GMT -6)   
Okay, so lets hear it for all of us who get to go out and spend the holiday weekend with family and friends and NOT IN THE BATHROOM!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
turn  WHOO WHOO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
The last two July 4th's were just ridiculously horrible for me.  We normally spend the weekend at the lake with our family, and I spent my time hiding the pain, secretly running to the bathroom, and forcing smiles.  Not to mention the extreme anxiety I had each time we went for a boat ride.  That was scary on so many levels.  shocked
 
This year?!  Not going to the lake...it's just too stressful with every where we go and stay not being Jackson-proof (my 18 month old son...who's half birthday is TODAY!...such a cool half birthday, isn't it?!).  However, we are going to spend the afternoon and evening with family and friend's at my sister's in the gorgeous country by Arrow Rock, MO.  I get to hang out with everyone OUTSIDE and I can RUN after my son...drink a few drinky-poos (as my grandma would call them) and simply enjoy our moments. 
 
In all honesty, this makes me emotional.  I hadn't realized how scared I have become of this holiday until this morning.  I had made my desserts for the gathering last night (one with cocanut!, that would have been a never with UC) and today I was just nervous about today's events.  But guess what?  I really have no need to be nervous!  I'm getting over my fears b/c they really aren't necessary anymore.  smilewinkgrin
 
I hope you all have a wonderful and safe holiday weekend!!! 
 
smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 7/4/2009 2:17 PM (GMT -6)   
Congratulations! I am very happy for you. What a difference one year makes.

I am not having such a great time this 4th- in the hospital. I opted for the jpouch and still in the throes of the three surgeries.


Enjoy and have a drinky poo for me - please!!!
Jackie, 43
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/4/2009 4:45 PM (GMT -6)   
WHOO WHOO!!!! I'm so happy for you!! This is your new normal (can you believe it??), and I know you're going to have an amazing time! Thanks for sharing how much better you life is now. It helps more people than you could ever imagine. Like Jackie, I am also in the hospital, so have a drinky-poo for me, too! At least I can watch the fireworks from the window. :)


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/4/2009 8:19 PM (GMT -6)   
robyn isnt it awesome!!!
I still am grateful everyday, i find something new that i think WOW i can do this now, wooo hoooo!

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 7/5/2009 8:47 AM (GMT -6)   

So, yesterday really was tons of fun!  Our son had lots of new and wonderful experiences.  He played in dirt and mud (so not new...just the amounts of dirt and mud were new, as we were in the country and it has been raining), we played in the rain and he loved it!, and he started a counting-go fetch kinda game with hoola hoops.  turn   He was so much fun.  But I got to play in the rain with him.  It was amazing watching him learn the feeling of sprinkles on face, and then when it start to rain a little harder he ran after the rain drops trying to catch them!  He also sat in a lawn chair with his plate of food on his lap and ate like the big kids!  Oh my goodness, just each moment with him was beautiful.  Even when he was sleepy. 

Now today is a different story.  I thought I'd do something nice for him b/c it's a lazy Sunday, so I sat him on our sofa (microfiber suede) with cut up Eggo waffles with butter and cinn/sugar so he could watch My Friends Tigger and Pooh during breakfast.  I left the room to get juice and when I came back he's dumped his waffles (dozens of bite size pieces) and was pulvarizing them with his heels into our sofa.  shocked   He's so ORINARY!!!!!!!  Grrr!!!!!  devil    Oh well...really I never 'really' get upset, I just love his little thought processes.  I did take away his waffles and told him it was a bad choice and that it was not okay.  He giggles each time we get onto him...so ORINARY!!! Well, when he's ready to eat I'll give him a breakfast bar at his table in the dinning room.  yeah

The joys of motherhood and the ideas of a toddler.  turn

Anyway, orginally I was just wanting to post about the fun we had.  That and how grateful I am for using a one piece.  Ever since I realized how rough I've started attacking life and the play I do with my son, a two piece made me super nervous.  Twice now my one pieces have pulled away from the wafer a little causing a little mess.  Could you just imagine the situations if I had worn a two piece?!   rolleyes   Holy Hell!!!!!  It happened yesterday while I was trying to get J calmed down for a rest (didn't happen) and my tummy felt wet, which was funny to me b/c I thought I had mostly dried from the rain play...well, of course it was my accessory.  I cleaned up and simply used the adhesive paste over my hole and so far so good!  I was able to walk J in the stroller for 20 minutes and then later in the evening hold him for a good 20 minutes until we left.  Then this morning I'm up and about and it's still okay!  My accessory was super duper full twice throughout the night and this morning, and it held!  I am so impressed. 

Sorry for this being long...I guess I'm Chatty Kathy this morning. 

I hope you all had a wonderful 4th!!!  Sorry to hear you guys are in the hospital.  Hopefully it's been relaxing! 

I did have a few gulps of beer and then a few guzzles of Dr. Pepper with vanilla vodka YUM!  I really didn't endulge too much b/c our son was just all over the place and to be honest, I didn't sit still long enough to have an entire drink!  Last weekend my sister-in-law and I shared two bottles of wine...yeah, I tipsy...it was wonderful!  Which brings me to the idea of having a bag for intoxicated moments.  I'm sure you all have experienced the extreme of the fumbling fingers while under the influence!  I told my husband that we need a pouch with a pour spout or something...my roll and lock bit was a bit difficult being drunk.  blush

Okay, gotta go.  J's trying to pull me to a different room. 

Chao!!!

smurf  


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/5/2009 7:47 PM (GMT -6)   
OMG robyn they soooo need a drunken bag! And its even harder in a noisy club bathroom when you are tryign to hurry. A while back i went and emptied my bag, i was very intoxiacated, lol and i swear i could not remember how to close it back!!! And when i finally figured it out i couldnt get my fingers to do it, lol. Luckly i was at home!

Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 550
   Posted 7/5/2009 11:36 PM (GMT -6)   
Whoo Whooo!! So glad this was a good holiday for you! One year ago Bratcat was just out of surgery (July 3). What a difference a year makes. Enjoy all those little things
that make life special!
--Mom of bratcat (18 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect! Living and loving life as a teenager should!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


sand02
Regular Member


Date Joined Jun 2007
Total Posts : 32
   Posted 7/6/2009 5:43 PM (GMT -6)   
I am glad to hear you had a great time. I hope I have the same next year. I am waiting for a surgery consult and can't wait to get this horrible colon out of my life!!
DX Crohn's '99 changed to UC '02
Humira once a week;was on Remicade previously
Got off Asacol for Colazal
Cortfoam enema
True remission while pregnant w/ first and second babies
Trying aloe vera gel. Predinsone is waiting for me in my cabinet
Running out of options....eeek.


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 7/8/2009 11:00 AM (GMT -6)   

Sand02...

Yay!!!  You're going to join our Cool Club! cool    We're pretty awesome.

turn  

You know, I honestly appreciate Penelope (stoma) and my accessory every day.  Yesterday I spent the day shopping with my husband before my night class, and it was awesome!  I love having to rush to a bathroom b/c I have to pee!!!  Such a great feeling!  Prior to the surgery I really never had the opportunity to have the urge, as I spent so much time in on the John anyway that I simply pottied each time I was in there.  Silly, isn't it?

Anyway, I am just so happy for you!!!  Those evil colons.  devil    They're just plain ridiculous when they feel the need to attack your body!  My sister just had her uterus removed (she's 24 and just had a horrible time with constant bleeding, etc.), and so now we joke around saying "if you don't like an organ any more, just get it removed!"  So many people think we're nutty, but it's true!  My colon sucked, and her uterus sucked.  Gone!!!  smilewinkgrin

I had a proctocolectomy, so I nixed EVERYTHING associated with UC.  yeah   Best desision of my life.

Please keep us posted with your journey and experiences with the consult, etc.  Please ask your doctor about the main management post surgery.  I did not make it clear that I already had a tollerance to pain meds, and my pain management was horrible!  I also feel that having a morphine drip would be greatly beneficial.  FYI. 

Good Luck to you!!!!!!!!

smurf  


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown

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