an update on Amanda's (2 RIS K) conditon!

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2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/5/2009 2:42 PM (GMT -6)   
hi everyone,
i just got a message on facebook from Amanda's husband and instead of trying to explain it myself, as it's a lot to explain, i just copied his message and paste it here:
 
Hi, this is Amanda's husband, I just saw your messages on Amanda's profile so thought I would give you a quick update. It's been an interesting month (it's never easy with Amanda). The surgery went fine, there were some kinks that they were able to fix. They found evidence of a small leak a couple days later, but unfortunately were never able to find the actual leak. It seemed to clear up and she was doing better, but then suddenly started having 105 degree temperatures, 180 BPM heart rate, etc. This happened twice over the next week, and we finally realize she has an infection from her central line. After 3 weeks she was well enough to go home, but not for long. The next day she becomes extremely nauseated, throwing up every 30 minutes no matter what we did - this went on for 3 days before returning to the hospital. So we're still in the hospital trying to figure out what's making her so nauseated. All the tests show that the surgery was a success, her bowels are all working perfect, there's nothing wrong. The only thing we can think of at this point is possibly the gall bladder, I'll try to keep you posted on what happens. Please feel free to let others know her status, she just hasn't been up to getting on the computer. Thanks!!
 
please say a prayer for Amanda to get well, thanks!
 

Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 7/5/2009 2:44 PM (GMT -6)   
Thanks Hoodaya!  I got the same message as well.  We really need to keep Amanda in our prayers!!...Cheryl

 
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 Ileostomy Reversal March 9/09


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 7/6/2009 10:19 AM (GMT -6)   
thanks Hodaya - what an awful worry for them both.
 
how are you doing though?  i am doing fine - i have no probs at all only a litle twinge under my incision from time to time but thats nothing.  i hope you get your surgery soon.  the best thing i have done you know. i probably get reversed later in the year - i am on the waiting list now.  xx
Karen 47 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
12 FEBRUARY 2009 - Re-scheduled T/C- (postponed as the Professor is away)
10 MARCH 2009 - T/C HORRAY FOR A CANCELLATION!
Loop Ileostomy - Due for reversal around June 2009
 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/6/2009 1:57 PM (GMT -6)   
Karen, it's good to hear from you and know that you're doing good :) !! how long will they keep you waiting this time? i hope not too long.

i'm doing sort of the same. i'm supposed to get my refferal to the surgeon some time next week...... CAN'T WAIT ANYMORE!!!!!!!!!!!!!!!!!!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 7/6/2009 7:54 PM (GMT -6)   
Hey thanks for the update, I was wondering what was going on :)  Hopefully they'll figure itout soon
 
Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/6/2009 8:59 PM (GMT -6)   
Poor Amanda!! I feel so bad for her. Please tell her husband 'thank you' for the update and that we're praying for her speedy recovery!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/6/2009 10:55 PM (GMT -6)   
yeah, it was all thanks to Cher, cause she wrote on my wall on FB asking about Amanda, and i replied on hers that i still don't know anything either, and we were both saying how worried we were, so Amanda's husband saw that on her home page and sent both of us this message :o)

i did thank him and told him we're praying for her. what do you think about this leak, if they still havn't found it, won't it cause probs in the future? it is so disturbing, cause it feels like there's still something unsolved.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

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