So......how have you "bag" people been?

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vette guy
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Date Joined Nov 2006
Total Posts : 650
   Posted 7/7/2009 10:39 PM (GMT -6)   
I've been too busy lately at my new job as Director of Sales for an OCR  software company to spend any quality time here lately.  I just wanted to check in and see how my ostomy friends are doing.  What have you accomplished lately that you never thought you would be  able to prior to your surgery? How's your summer going? What plans have you made?  How's LIFE???  Don't be afraid to brag or elaborate!!!
 
BTW, it goes against my grain to say "bag" instead of pouch, but....what the heck!

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 7/8/2009 8:11 AM (GMT -6)   
Ugh, life here is next to miserable. The health and the bag are not the problem, it's everything else--I own a condo about 900kms from where I live now and it's been up for sale and isn't selling or renting. Even if I sell it I'll lose $30k or so, if I rent I'll still lose about $500/month. Can't get a loan to cover the difference, either, so I can't really sell it anyways. (without dipping into savings) So I'm talking with a lawyer about how I can get out of this-maybe just walk away, I dunno. Plus my current job stinks, I hate it. BUT at the same time I *have* a job and it pays pretty good. Geez I'm in such a pickle--after this experience I don't think I'll ever buy a property again until I retire! Plus I started smoking again, bleh

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 7/8/2009 11:07 AM (GMT -6)   

Life is great!  Motherhood is GREAT!  Being able to help take care of my sister after a surgery she had has been wonderful.  I adore the feeling of running full speed ahead without having to look back...which is what I always had to do while sick...that I couldn't even keep up with my fast pace life while sick.  Well, now I'm striving to stay one step ahead, and succeeding for the post part.

We're going to Colorado in a few weeks to spend time in a cabin deep in the Rocky's in the Frying Pan River Valley.  I'm taking my son on walks and hikes.  I want to go white water rafting with my husband either this or next.  None of this could I have done with the UC. 

Oh, and I'm sure you men could care less, but one my most favorite part of being better?!

I CAN WEAR HEELS AGAIN!!!!!!  smilewinkgrin    No more prednisone...no more flats!  I have so many new shoes it's borderline addiction.  I have everthing from kitten heels to 4" heels.  LOVE THEM!!!

smurf  


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 7/8/2009 6:21 PM (GMT -6)   
Hey VG,
What's happenin' with you?? Sounds like you have been really busy lately, but that is a Good thing.

I too have been really busy this summer so far. Since the middle of June, we've been to MI for a Nascar Race, then to OH to visit family and had BIL visit from CA for 9 days. We are trying to carve out some time for a summer trip to UT, but have to make it thru all of the visitors coming to see us in the month of July (friend from OH, in-laws from OH, and then friends and relatives from OH the last week of July for the Brickyard race.) We may also fly out to San Jose to visit BIL later this summer.

DH just went parachuting with his brother Sunday evening. I didn't go, but now that I watched them do it, I really want to do it too. Trying to talk a friend of mine into going with me.

Tell us about you.......whatsup?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 7/8/2009 9:44 PM (GMT -6)   
Peggy,  I've been working my butt off since I started with this company in March.  Due to budget cuts,  I'm not travelling as much as I did for the first 2 months, but I typically work 15 hours a day nevertheless! They hired me to develop our new legal sales division.  Due to this economy it's been a challenge. For those who are new here...I'm a former sales executive and sales manager with Xerox;  then later spent 15 years as an executive with 2 different legal publishing companies.  And, yeah...I've had an ostomy the whole time!!! A lot of jobs are riding on the success that I can bring to this company.  That, to me, is the real pressure!  But, for what it's worth, no one here knows that I have an ostomy.  I guess that's the message I want to send to the newbies here.  Eventually, your ostomy will become a normal part of you that will be a normal part of your everyday life. YOU CAN DO, AND BECOME, ANYTHING YOU CHOOSE TO BECOME....with or without your ostomy! The choice is yours.....and yours alone!!!
 
And, at the expense of sounding the like the capatalist that I am...I'm still shopping around for a Lamborghini Diablo. 
 
Peggy-Thanks for asking!
 
BTW....you sound happy! You made my day!

Post Edited (vette guy) : 7/8/2009 9:49:23 PM (GMT-6)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 7/9/2009 2:00 AM (GMT -6)   
VG -- YOU sound great! Just don't work too hard, life is too short not to enjoy it too. But hearing that you are still shopping for that Diablo kinda tells me that you are enjoying your hobby some even if the number of hours in a day is limited for you now. Take care of yourself - stop to smell the flowers along the way.

I agree that anything is possible and that we can choose who we tell and who we don't tell about our ostomies. Although I certainly don't have a problem telling others, if they seem to be interested. Spreading the word, IMO, will eventually get some education out there that an ostomy is NOT taboo and that others lead perfectly normal, healthy lives with them.

Best always,
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/9/2009 5:38 AM (GMT -6)   
Life is ALWAYS good here:) We've done some travelling with more to do this summer and we are looking for a puppy!!! I think we've decided on a rescue puppy of a mix yet to be determined and I am hoping to convince my family to use one of my "patriotic" names...like Liberty(Libby), Patriot(Patty), Star...you get the idea:)

Sounds like your job has its chanllenges and you are enjoying it...that's half the battle! I hope you post a picture when you find that dream car:)

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 7/9/2009 10:20 PM (GMT -6)   
Ohio-We rescued our last 2 dogs. "Maggie" was a pure breed Collie that we rescued days away from her being put down. She was a 9 year old arthritic Collie that I fell in love with at first site.  I've always had a thing for Collies. Sadly, we had to finally put Maggie down 2 years ago. She was a sweetheart of a dog and I'll miss her forever!  I then swore I would never have another dog.  I cried like a little girl when we had to be put Maggie down. Well.....that lasted for about 3 weeks. We rescued Wilma ( another Collie) 2 years ago.  She is now the sweetest dog you could imagine, though she was a real problem for the first 6 months. Though she weighs about 70 pounds now, she was 38 pounds when we got her. She was as skiddish as you can imagine, and was completely neglected by her previous "owner".  After givng her the love that she needed, Wilma is the most wonderful dog you could have. I hope you have lots of luck in rescueing a dog.  It's worth the time and effort to retrain a dog that's been neglected by it's previous "owner"!

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1245
   Posted 7/10/2009 8:52 AM (GMT -6)   
I'm still happily living the single life with my two kitties - my 'timid' child and my 'adhd' child :) They keep me happy and make me laugh so much. I'm also helping moderate a forum by Coloplast that asks for user input in what they want in an appliance which I feel is a very worthwhile thing for all ostomates, as well as still running my own ostomy site and forum.

I don't think I'll ever get married - I'm much too selfish and used to being on my own. I can do what I want, when I want without having to worry about anyone else.

I'm loving my job (admin co-ordinator at a hearing clinic) It's sooooo good to see people who have had Cochlear Implants and the like to have them actually hearing again (maybe not 'hearing' in the same sense as most of you and I hear but much more than they've experienced before). Even those who get hearing aids after not hearing for so long say it's so good just to go out into the carpark and actually hear the bitumen crunching under their feet for the first time.

vette guy said...


BTW, it goes against my grain to say "bag" instead of pouch, but....what the heck!


Actually the UOAA would prefer us call them a prosthesis as a lot of insurance companies in the US tend to treat ostomy supplies as "disposables" and in the same category as tape and gauze and therefore won't cover them. Most other countries won't have to worry about what they call them though cos they get their supplies for free but if you're in the US, maybe it's time to start calling them a prosthesis?

Quote: Unfortunately, in the future, if you want your insurance company or Medicare to cover the costs of these, you are going to have to be aware that they are listed/noted as "prosthetics' and will be more widely accepted in the DME category as such. When they are listed as 'appliances' or 'pouching sytems' they become something that is know as expendable. Well, I sure know that mine is not expendable. I cannot function on a day to day basis without it. If I did not have it, would I be able to leave my house? NO. Would I be able to do anything but sit in the bathroom leaned over a toilet 24/7 ? NO.
Personally, I need this prosthetic to live a normal life. I need this to replace the anus I used to have, but no longer do. I need this to replace the control that was provided by the sphincter at the end of the anus that is now gone. Therefore, to me, I will call it what it is. It is a prosthetic, and it is also a pouch/bag/appliance.......whatever the needs be . But, when I am dealing with my insurance and such, it will be noted as a prosthetic, and I will do so to continue to attempt to get coverage of these very expensive items.

Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

Post Edited (Shaz032) : 7/10/2009 8:55:35 AM (GMT-6)


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 7/10/2009 4:19 PM (GMT -6)   
Yuck....I think "prosthesis" sounds worse that "bag"!

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 7/10/2009 9:15 PM (GMT -6)   
So I have been away from the sight for over 2 weeks and the first one I read makes me realize how much this place helps me. I have missed you all.

VG- I have until Aug 4th for my ileostomy and am between relieved and scared to death that my life will change drastically. So the encouragement you wrote today and all the others in the group write all the time have again uplifted and inspired me to keep the eye on the prize. (Maybe running without pain or accidents in bushes at weird places).

Hope you sell your property soon!!

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 7/10/2009 9:16 PM (GMT -6)   
Oh wait I was talking to awesome when I said the sell the property thing. Oh yeah brain dead these days.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 7/10/2009 9:58 PM (GMT -6)   
Hey! I got to go out on my friends boat last Sunday. I NEVER would've done that with u/c. We stayed on the water ALLLLLL day. So fun! We came back when she had to poop. :P
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 7/10/2009 10:09 PM (GMT -6)   
We came back when she had to poop. :P
 
Now THAT'S funny!!  We're going on our boat tomorrow.  Can't wait.  It's been almost a month since we've been on it last. The funny thing is that I've rarely ever used the "head"(that's a bathroom on a boat for you land lubbers!) on our boat. Yet, my wife insisted she wouldn't step foot on a boat that didn't have it's own head! Those poor non-ostomy people!!!

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 7/11/2009 12:20 AM (GMT -6)   

Hi everyone,

I am so glad to hear the positive attitudes of you all. I am still new at the whole ileostomy thing, only had surgery in early march and due to see surgeon again this coming week for the final op to make this permanent, I have had heaps of issues since having the surgery with my joints swelling and severe iritis and really high liver readings again and my doc seems to think that once the diseased rectum is also removed my ailments should disappear. Well I do hope that will be the case cause it is very painful at the moment. But not as bad as the pain I used to have with the crohns. So all things aside I am really happy living with a bag, it has given me quality of life, I just need to learn a few tricks of the trade and Im so glad you are all there to talk to. Oh and Im in Australia so its winter here now so thats not helping my joints lol. Thanks guys take care

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