I agree with Sue. There are a few options for surgery. I understand your decision not to try the immuno suppressant medications...I had horrible issues with them myself.
I have a permanent ileostomy...and I LOVE IT!!! When I was faced with the decision of surgery I instantly thought I 'had' to have the j-pouch. After some research I began feeling iffy about it and wondered about a permanent ileostomy...but did people actually 'choose' that? I heard many stories about people deciding to keep the ileo instead of continuing on for the j-pouch because they enjoyed their lives with the ileo. I spoke with some women on this site with a permanent ileo and learned that it is okay to not want a j-pouch. That made me so happy!
I made the decision that was right for me. Sue made the decision that was right for her.
All in all it really is a big decision, but most all of us can assure you that once your evil colon is removed you feel amazingly better!