Parastomal Hernia

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CP64
Regular Member


Date Joined May 2007
Total Posts : 69
   Posted 7/16/2009 12:47 PM (GMT -6)   
Hi!!  Fellow ostomy and crohns patient looking to find anyone with a parastomal hernia.  This is my second one in 2 years.  First one was large (but was not visual) and had my bowel twisted in it and was removed--this one is large enough that when I need to pass my stools, the hernia pushes out to the side of my ostomy( I can litterally feel it--its hard). Will see surgeon at the end of the month about this one.   My ostomy is on my left side which is a lot bigger than my right.  Just wondering if anyone has a parastomal hernia and what their experience was with it!!  Thanks, Claire

breerrabbitt
New Member


Date Joined Sep 2011
Total Posts : 2
   Posted 9/16/2011 12:07 PM (GMT -6)   
Well, new to this site, but you are looking for a parastomal hernia, meet mine!! Had colostomy two years ago for diverticulitis (questionable), surgeon (didn't know him then or now either) provided no follow-up, no communication - denied what I diagnosed as a parastomal hernia right after surgery, denied hernia, refused reversal or further surgery due to poor lung function; subsequently transferred hospital to far larger facility, now being considered for hernia repair and/or reversal. My hernia is about the size of a grapefruit, sticks out about 6-8", having a time trying to wear other than exercise pants - hate them! I'm small - 5', 93 lbs - and live by toting around this loathsome protrusion sticking out of my body directly under stoma,.. a colostomy is one thing, it's the hernia that changes everything in one's lifestyle - food, clothes, appearance, emotional state, sttitude - although not painful, it has to be the "pits" of existence! I wrote a previous message - it disappeared, so I'm hoping this is the only response. I wear cords (corduroys) for pants, not one will fit around waist, just devised a way by using a long belt to hold sides together (hoping no one will peek under the shirt). Trying to get my life back - including my job as a teacher (should be retired). I'm going on 74. Howzzat?

Dec
New Member


Date Joined Sep 2011
Total Posts : 5
   Posted 9/16/2011 1:14 PM (GMT -6)   
Hey Claire. I'm sorry to hear about your parastomal hernia. My advice is: Don't worry, you can get rid of it. Mine was about the size of a BIG orange and started to stick out in my shirt. It also felt like it was 'dragging' whenever my intestine had food in it. In fact, I could actually sometimes squeeze output through the stoma by putting pressure on it with my hands (I know - gross!). Anyway, it can easily be fixed, through surgery. Though if you are in the middel of stage operations for a jpouch they will not fix it until the final surgery.

Now here's the thing. If you don't give it support it will get bigger. My stoma nurse gave me this belt that wrapped around my body. It was just like a back support belt. It made a great difference. Currently I'm wearing a back support. It's for boxers but it's really good and supportive. Find it at: http://www.amazon.co.uk/Lonsdale-Neo-Back-Support/dp/B00293U7VS It's also black, not like the really 'medical' colored one the nurse gave me.

Let me know if any of this is any help, or if you need to know more. I'll try my best to help you out.
UC for ten years. Tonnes of the usual meds. All failed. Bowel completely removed 22/07/10. Jpouch construction 5/9/11. Takedown... Date to be confirmed
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