diet with an ileostomy

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Polly51
New Member


Date Joined May 2006
Total Posts : 18
   Posted 7/19/2009 10:53 AM (GMT -7)   
Is there any site that gives a comprehensive list of foods allowed and not allowed with an ileostomy?  I recenty has one and I am still confused as to what exactly I can or cannot have.  For instance can I have bean sprouts or barley soup?  Thank you to anyone who can help.
 
Pauline

UC in whole colon
 
10 asacol a day
multi vitamin
calcium
Acidopholus caplets


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 7/19/2009 11:23 AM (GMT -7)   
There are many threads on HW where members have extensively dealt with this issue. Please check the old postings and you would find them all.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 7/19/2009 12:12 PM (GMT -7)   
Polly,
Many of us can eat about everything and then there are others who cannot for fear of a blockage. Each person is a little different. There are several things to watch for and eat is very small quanities until you know how YOUR body will handle them. Nuts and seeds are hard to digest as are a lot of the fresh veggies and fruits, esp with the skins and/or seeds. B.arley should not be a problem. Bean sprouts should be fine so long as you chew them well. Be sure to drink plenty of fluids with your meals and when you are trying new foods. Introduce new, possibly hard to digest items one at a time so you know how your body handles them.

Let us know if you have any other questions. How long have you had your ileostomy?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
   Happy SILVER Anniversary to me!


Polly51
New Member


Date Joined May 2006
Total Posts : 18
   Posted 7/19/2009 5:01 PM (GMT -7)   
Thank you so much for the replies. I had my surgery a month ago. I am slowly adjusting.
UC in whole colon
 
10 asacol a day
multi vitamin
calcium
Acidopholus caplets


LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 7/19/2009 6:58 PM (GMT -7)   
Hi Polly,

Peggy was right on with her response. I have found that I can eat anything I want, just as long as I chew it well and don't eat a massive amount of it at once.

The only foods my surgeon said to avoid completely were mushrooms and large potato skins. Like Peggy said, trying a Little bit of something first to see how it goes is your best bet.

My surgeon also told me about a guy that developed a huge blockage from eating spinach, because he ate an ENTIRE BAG in one sitting! All the little stems created a blockage.

Also, anytime I eat salad or corn or whatever, I make sure to eat something like bread/potatoes/chicken with it so that they can mix with the fiber and kind of help push it through, you know?

I really haven't changed my diet much since my ostomy; I eat popcorn, regular corn, peanuts, salads, peppers, sesame seeds, apples, raisins (but only a few at a time), grapes, whatever. :)

Hope all goes well! Summerstorm who posts on here recommended getting shredded lettuce for salads, so I did that for the first few times I had them to help things along (now I just get regular lettuce).

Hope all goes well!

-E

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2764
   Posted 7/19/2009 6:59 PM (GMT -7)   
Welcome, Pauline. I did some research and thought this was an easy to follow, comprehensive diet plan for post-op ileostomates:

http://www.nutritioncare.org/uploadedFiles/Professional_Resources/ASPEN_Patient_Education_Manual_Sample/III_B5a_IIeostomy_Diet.pdf

Hope it helps!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Polly51
New Member


Date Joined May 2006
Total Posts : 18
   Posted 7/19/2009 7:19 PM (GMT -7)   
Thank you that was very helpful.
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 7/19/2009 7:24 PM (GMT -7)   
Cece,
What a great website for recommendations on foods that are and are NOT allowable for new ileostomates (and some of us that need to watch our diet due to narrowing or possible blockages). DId you just come across this site searching for help after your last surgery? You should post this as a separate topic.... I personally think it is right on what I have been told in the past.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
   Happy SILVER Anniversary to me!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/19/2009 7:46 PM (GMT -7)   
SInce your ileo is new, i would reccomend a low residue diet, meaning staying away from fresh veggies and fruits, stringy meats, nuts, anything that is hard to digest.
However in a few weeks start adding things, and like they all said drink LOTS of water with anything that might cause a problem, like veggies and fruits at first. And the shredded lettuce is great to begin with.
I did that for about the first year or so, i am on regular lettuce now, i just chew alot.
After a few months, you shoudl be fine with anything, in moderation. My surgeon said you sshould be fine with pretty much anything he said, "dont get eat a whole head of cabbage or anything!"
Anyway, I choose to stay away from nuts and seeds cause they cant be digested by anyone, but lots of the people on here do fine with them

Most of your problems for the first year or so will come from gas from certain foods, like broccoli or spicy foods. But that should calm down, and you can also take some gasx to help lessen that effect.
Ok there is my totally rambling post, lol.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/19/2009 8:03 PM (GMT -7)   
Hi Polly,

My ileo surgeon said no nuts, no seeds, no peels. Anything else just chew, chew, chew and plenty of water. Good LUck. I have an ileostomy too, 2 years this August. Sincerely, esoR.

Lyonene
Regular Member


Date Joined Jun 2009
Total Posts : 64
   Posted 7/20/2009 9:23 PM (GMT -7)   
Thanks for that link, that was interesting.
 
I'm nine weeks post step one and eat everything I should be watching or avoiding, it seems.  I don't do low residue; I'm diabetic and fibre is the way to go.  I eat veggies galore and though I've cut back on eating corn, I did eat some the week I came home from the hospital.  Trail mix has always been my favourite snack -- nuts, seeds, and dried fruit.  Oops! 
 
I am thankful I haven't experienced a blockage yet!  My appetite never returned after surgery but I should probably reassess my new (healthier) diet.  I live on meat, potatoes, and veggies now.

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 617
   Posted 7/24/2009 3:30 PM (GMT -7)   
I eat pretty much everything. Any leafy stuff like lettuce or spinach gets the blender treatment first though-I also stay away from corn and popcorn, although I'll eat creamed corn no probs. If you're unsure about anything just throw it into the blender and make a smoothie!! You can do the same with soups, stews, etc. But like was mentioned go easy at first..some foods might make you 'go' more than others, or make output thick and the bag harder to empty.

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/25/2009 12:02 AM (GMT -7)   
oh and just so you know, syrup, like on pancakes makes it super sticky and hard to go down teh toilet! so i try not to eat it when i have to go out shortly there after, lol

mikeman
Regular Member


Date Joined Jul 2009
Total Posts : 66
   Posted 7/26/2009 1:59 AM (GMT -7)   
so far ive eaten everything on the menu including the foods they say dont eat like raw fruits and vegetables...what i do is juice them with my fancy juicer so no worries of a blockage
Age:31 Married with children.
--
Ulcerative Colitis cause: In 2003 I took Accutane for about 4 months, strong side effects of abdominal cramping and bloody stools.
May 2004: Diagnosed with Left sided UC -should have understood the IBD warning and should've never taken the dangerous drug
known as Accutane.
May 2004- May 2009: Prednisone, Asacol and many other med's that did not work well-Remicade was great for 16 months then suddenly stopped working.
---
May -June 2009: Pancolitis- chronic 2 month flare up that put me out of work and made me seriously think about surgery.
June 24th 2009: elective colectomy/ileostomy at Barnes/Washington University.
August 2009: planned rectum removal and j-pouch construction.
October-November 2009: planned Reversal.
----
Summary: Suffered 5 long years with severe Ulcerative Colitis, Anxiety and depression.
No more diseased colon. No more running to the bathroom 20+ times a day. No more cramping and bleeding. Satisfied with first surgery.

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