Napa half marathon

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 7/24/2009 7:03 PM (GMT -6)   
I did it I finished the half marathon on sunday in 2hours and 20 minutes! Wow! What an experience!
There were three thousand runners,500 runners and walkers from all over the country were there
to raise money for the Crohn's and Colitis Foundation of America.We raised over 2 million five
hundred thousand dollars. Our colors are orange and blue and it was amazing to look out over
the rolling hills of the race course and see this hugh wave of orange and blue.
We had a send off dinner the night before with all the CCFA people with speakers who shared
their stories which was very emotional for those of us who have been in their shoes. They were
asking people who have the diseases to stand up and about 30 people in the group stood. They
ask people who had their colons removed and there were only 5 of us. I thought there would
be more.
During the race everyone cheered each other on and around mile 10 I heard people cheering
and yelling my name and it gave me such a boost! When I crossed the finish line I just burst
into tears because I had run the whole way and I felt stronger every mile. 13.1 miles and each
mile I shed some of the baggage I had picked up during the years I was so sick! This whole
experience has given me a whole new out look on life and I want to continue to share that with
others. The next race is Vegas in December and I plan to be there. Any of you care to join me.
Fruitcake

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 7/24/2009 7:05 PM (GMT -6)   
sweet!! i've been pretty nervous about running with da bag, no probs then? I wish I was in as good a shape as u!

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 7/24/2009 7:20 PM (GMT -6)   
Hey Matt,
I was to at first but I took it slow. At first I had a little pain and then someone told me
to wear spandex underwear that would act like a girdle and keep everything together.
That worked. The next problem was staying hydrated and my coach helped me with that.
He had surgery 10 years ago and has a J pouch. Once when it was hot my bag started to
come loose so I ran into a hardware store and ask to borrow some duct tape. Other than that
I just did what the coach told me and I was fine.

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 7/25/2009 7:03 PM (GMT -6)   
spandex, eh...maybe not so fashionable for us males lol. I'll maybe give it a try though now I know it works!

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/26/2009 1:11 PM (GMT -6)   
Dude, many congratulations !!!! That is an admirable feat... one that I have signed up for in Janary as well ..

Can you share some of your points about staying hydrated please? I'd love to get some good advice on this, I have been drinking vitalyte and it's been helping a lot but once I start running I know I'm going to need a lot more. Anything you can share, or your coach can share would be helpful.

Thank :)
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:
@ucfree
http://www.twitter.com/ucfree


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 7/26/2009 10:37 PM (GMT -6)   
The advice that I got was to take a few sips of fluid every 15 minutes. I wear a belt that is
light weight and you can carry small bottles of fluid. I use a powered stuff you mix with water
by a company called Heed. It has lots of electralites but no sugar.I also use a gel that you
eat that has proteins and amino acids. During the race they have water stations set up every
few miles and I was told to always drink or refill my bottles.During your training you experiment
with hydration so by race day you have it figured out. Training is really important. I met a
recent vet with crohn's and he tried to run the race with one three mile training and race day
he just made himself really sick. One of my coaches has a J Pouch and he had some good tips
for that. Where are you located and what race will you do? I am going to do Vegas dec.6th for
CCFA. Just let me know if you need help.
Fruitcake

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/27/2009 8:05 AM (GMT -6)   
I'm in Florida ... I'll probably be doing the ING Half Marathon in Miami in January ... I saw the Vegas one but I have a baby on the way so I'm not sure if I can make it there :-/

I'm going to try and get a coach, but mostly try and run it on my own with a lot of training .... I don't know if that's a good idea yet :)

Thanks !
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:
@ucfree
http://www.twitter.com/ucfree


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 7/27/2009 3:59 PM (GMT -6)   
Check online and see if they have any running clubs in your area usually they are free and it
is good to have other people to run with. In the bay area some sporting goods stores and running
shoe stores offer training and races. I did some 5k races to start.I found them posted on line
at some of the parks also sports stores. Good Luck!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/27/2009 7:00 PM (GMT -6)   
Congratulations Fruitcake! That is such an accomplishment:)

Arc10
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/11/2009 10:16 PM (GMT -6)   
Hi Fruitcake,
Thanks so much for sharing. I would be interested in doing the Vegas half marathon,if I can get my energy up. You might be the person to talk w/. I live in the Bay Area (Marin), I had an emergency colectomy over a year ago and now sport my very own ileo...which will probably be perm, since final DX of Crohns. Anyway...Would love to hear your story and how you got involved in running. I'm having a hard time w/ fatigue and finding the right nutritional support. I like to hike and bike ride, but have been SOOO tired. Need to figure out how to eat and supplement w/ ileo, but haven't found much information. Would appreicate any info. or advice you can provide.
Namaste,
Arc10

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/12/2009 6:20 PM (GMT -6)   
Arc10--welcome to the forum! Just a thought, have you had blood work done recently? If any portion of your term ilium was removed, you might have B12 issues...and a monthly or bimonthly shot could help with your fatigue.

As far as your diet goes, do you have restrictions? You should be able to support your body nutritionally just like before. The important thing is to stay well hydrated and not let your output become too liquid.

Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 8/13/2009 10:56 PM (GMT -6)   
Arc10,
I had my surgery 2 years ago and the first year I had issues with fatigue and hydration.
I trained with Team Challenge for the Crohn's and colitis foundation. The good thing about
training with them was that I found other people who had a colectomy and had run the half
marathon before. Everyone was very helpful about eating and drinking and supplements.
One thing I find missing in all the info we get is a healing diet. One of the trainers told me
that you should eat 3to4 hours before you run the race. One of my ileo mentors told me to
eat no more than 2 hours before the race and not to drink coffee because I would have liquid
output during the race. I do take B12 and that helps a lot with fatigue. I eat one piece of toast
with peanut butter and a half cup of oatmeal in the morning before I train and that keeps me
going along with electrolyte energy gel and that you eat 30 minutes after you start and I carry
my own water and sports drink in little bottles on a belt.
You have to start slow and build up stamina. If you are interested in finding out more about
Team Challenge call 415-356-2234. Stay in touch.
Carole,Fruitcake

Arc10
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/14/2009 5:08 PM (GMT -6)   
Ohio76 and Fruitcake,
Thanks for the information. That's interesting about not letting output get too liquidity...Mine is all liquid more often than not. I try and stay hydrated, but it feels like it just goes right through me. I did just have blood test done, but no mention of B-12, just says that my RBC(low) Neutrophils(High) and Lymphocytes(low) and Dr. said that is normal for Crohns (I guess I need to get use to the new normal...but some energy would be nice, though this is better than full blown Crohns flare).... I'm currently taking supplements for adrendal fatigue, through WomentoWomen website, but I'm not sure I'm absorbing everything, plus one of the tablets makes me feel jumpy, shaking and out of sorts. I plan on figuring this out, and I will look into B-12... I also plan on calling Team Challenge.
Thanks Again
Namaste,
Arc10

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 8/15/2009 5:20 PM (GMT -6)   
I AM TOTALLY INTERESTED IN THIS RUNNING THING!! So how long do you think I have before I can run? I had surgery August 4th. I can walk for a 1/2 hour now, and am doing that 3 times a day when feeling ok. They scared me with blood clot threats. Had my legs in some leggings?(Don't know what to call them) when I woke up from surgery. Would take them off in the day if I walked around the floor I was on and then put them back on at night. They kept me on blood thinners until I walked out the door. Anyway I'll get over it and maybe they did me a big favor.

Congrats on your run and If they have a Sat. race (Don't do Sundays) I'll join you sometime.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/15/2009 6:17 PM (GMT -6)   
Trigirl...those leg things (cannot remember their name) are SO necessary. I've never had surgery, in the last 12 years, where I didn't wake up with them...and yes, as long as you are up and moving they let you take them off during the day.

Take some time, you will be able to run many races, you just have to get through your recovery first!! Walking if the first step tho tongue

Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 8/16/2009 11:55 AM (GMT -6)   
That is really inspiring...I would love to do the Vancouver 1/2 Marathon this may. I had my surgery in Feb, so I hitnk that would be enought time. Does anyone know if there is a similar training group in Canada? Maybe if there are others interested in doing a 1/2 this spring on this forum we coudl start an online support through here.

Sue
UC 2003 Ileostomy 2009
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 23, 2017 4:56 PM (GMT -6)
There are a total of 2,886,265 posts in 316,695 threads.
View Active Threads


Who's Online
This forum has 157790 registered members. Please welcome our newest member, Mrsmoody0325.
874 Guest(s), 12 Registered Member(s) are currently online.  Details
PeteZa, jason12, BabsBunny, Iyace, Girlie, ks1905, Worried Guy, Tall Allen, straydog, halbert, Jack & Diane, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer