weird pain (in my butt....) no pun intended!

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sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 7/28/2009 12:18 AM (GMT -6)   
Ok, I have had my ileostomy for many years now (since '93), also have had several abscesses in the butt region...fun, but this is a new one for me...I hope someone has an idea or suggestion about what might be happening.

I am having ridiculous pain sort of as if my body is trying to go to the bathroom really hard (sort of like phantom pain), and the belly in the lower left area is radiating pain....it feels so strange. I have had some bad blockages in the past and this doesn't feel like that at all. The pain woke me up and I can't get comfortable. Any ideas?
Crohn's Disease since 1991, 2 rounds of ng tube feeding, Ileostomy since 1993, Proctectomy in 1997, several resectionings & stoma revisions, many blockages and a few abscesses and surgery to remove them. Medications used at one point...prednisone, 6MP, Flagyl, Asacol, Pentasa, Imuran, Cipro, Rowasa, Cortifoam, Methotrexate


Happiness is a journey not a destination - Souza


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/28/2009 9:02 AM (GMT -6)   
i have had pain like that it turns out to be gas. But never along with the having to go feeling.
I sure hope you feelbetter!

sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 8/1/2009 9:53 PM (GMT -6)   
sad

well.....still have the weird pain, I would be psyched if it were just gas, but I am starting to think I have another abscess. I hope I am wrong. Has anyone had multiple abscesses? This would be my third. I was supposed to have a muscle graft last summer to prevent any more but ended up just having that abscess removed and was stuck home waiting for a visiting nurse to repack the wound all summer, I hope I don't have to go through that again.
Crohn's Disease since 1991, 2 rounds of ng tube feeding, Ileostomy since 1993, Proctectomy in 1997, several resectionings & stoma revisions, many blockages and a few abscesses and surgery to remove them. Medications used at one point...prednisone, 6MP, Flagyl, Asacol, Pentasa, Imuran, Cipro, Rowasa, Cortifoam, Methotrexate


Happiness is a journey not a destination - Souza


ducatti999
New Member


Date Joined Jun 2013
Total Posts : 1
   Posted 6/20/2013 6:58 PM (GMT -6)   
Hi the pain will be phantom pain I had a proctectomy and have a ileostomy as well when they
do the op they leave nerves that have been cut and not attached to anything .But your brain
is still sending messages down these nerves giving you a felling of fullness and needing to go
to the loo this can last for years I have told it is all phsycological hope this helps. smhair

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/21/2013 8:49 PM (GMT -6)   
I would get it checked out...especially since it sounds like its in the same location as the last abscess.

I've had abscess issues and actually found out that the ones I've had drained are still there. I had to had an ultrasound last year and they showed up. They are smaller and not causing any pain or issues so I'm not doing anything about them. My dr said sometimes our insides scar too...

Hope you get relief soon!!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!
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