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ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 8/8/2009 5:46 AM (GMT -6)   
Hi Everyone,
 
Its been a few weeks since i have posted on here - I have been one of those people who have their ostomy, recovered from surgery, and then been out being active!
 
I have a date penciled in for a second surgery (step 2 of 3) for a j-pouch  (end of sept).  I am thinking over all the pros/cons etc of having the jpouch done.  The biggest issue if have with the ileostomy is the noise!!  The fact i have no control over it and how loud it can be sometimes.  Do those of you with J-pouches have a lot of noise?  I am guessing it will be like before, you can feel you have gas building up, but can control again as normal when you let it pass? (even if you need to be on the toilet when it passes).  Is all the noise internal again - ie no more farting sounds happening unless you want to pass the gas?
 
Dont mean to sound silly asking this, its just a worry i have!
 
Hope everyone is doign well.
Many thanks,
Elli.
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions.
Colon Removed 18 March 09.
Ileostomy
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 8/8/2009 6:28 AM (GMT -6)   
Well, just like a coloned person, sometimes there is gas and sometimes there isn't.  The best thing is that most of the time there is no odor and emptying a pouch is so much quicker!  It really depends upon what you eat.  I was a bit shy in the early days to use public restrooms but not anymore.  It is what it is and I am happy to be well.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/8/2009 10:03 PM (GMT -6)   
CAN you pass gas normally with a j-pouch? Without being on the toilet?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 8/8/2009 10:42 PM (GMT -6)   

Yes and much of the time it is silent and odorless!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/10/2009 7:49 PM (GMT -6)   
SAWEEEET!!!!!!
How is it odorless? even my ileostomy farts stink!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 8/10/2009 8:37 PM (GMT -6)   
I can sit in meetings and pass gas and not only does no one hear it, no one smells it either!
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/10/2009 10:00 PM (GMT -6)   
That's and UPGRADE! I know some people who should have colectomies just for that benefit! :)
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 8/11/2009 1:15 AM (GMT -6)   
Well one has be a little cautious while passing gas so that it is not liquified gas. No more gassing around in conference room for me.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


spiderman
Regular Member


Date Joined Jun 2009
Total Posts : 30
   Posted 8/11/2009 8:10 PM (GMT -6)   
While what Sue says can be true, it can also be true that you can also pass wind that registers on the Richter scale and could make the 9 o'clock News. Not everybody learns to distinguish between parp and poo and cannot pass wind without going to the loo first, I do think some people are happy with this situation and do not take part in the games of Russian Roulette involved necessary in learning the difference. You may also find that the gas has a habit of rumbling about internally and your guts can sound like an old drain, I have always just claimed to be hungry when that happens.

Peter

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 8/12/2009 2:56 AM (GMT -6)   
I guess the range of posts here just show how everyone is different!
 
Its funny that a rumbling tummy is less embarassing than the farting noises my stoma can make sometimes - even though it is the same thing going on - gas moving around!!
 
It will one of those things to learn again.  When I had bad UC I couldnt pass gas without leaking so that wont to new to me. 
 
Onwards and upwards :)
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