Any support groups in South Africa for people with a J-pouch

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Bionic B
Regular Member


Date Joined Apr 2008
Total Posts : 42
   Posted 8/13/2009 11:31 AM (GMT -6)   
Hi
 
It's been 3 months since Takedown surgery and I am doing very, very well.
 
I have done a lot of research regarding the J-pouch surgeries, but is yet to find a support group for people like me in South Africa....there has to be people out there!
 
Whenever I go to the hospital I hear of people that has had the reversal done or the J-pouch.....so why isn't anybody talking about it?
 
I would love to meet people and we can chat about what we go through...I don't think anybody should go through this adjustment alone.  I am so blessed to have supportive family and friends, but I would appreciate people that has actually been through this to make contact with me.  Together we can encourage one another....it could be fun....
 
Biancacharlene age 30
Diagnosed with Ulcerative Colitis in August 2006
Underwent emergency surgery to remove 90% of colon in September 2006
On medication:  Asacol tablets and surpositories 2006 - October 2008
Underwent JPouch stage one surgery in October 2008
Currently uses no medication
Awaiting Takedown surgery in March 2009
* - Underwent Takedown surgery in May 2009 successfully and still going strong!!! :-)
 
"I am the exception to the rule :-) "
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 8/13/2009 11:54 AM (GMT -6)   
You might have better luck asking this question at www.j-pouch.org That site has over 6000 jpouchers from around the world. This site has only a handful.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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