How much fiber do we need without a colon?

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Janiepain
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Date Joined Jan 2007
Total Posts : 662
   Posted 8/14/2009 3:55 PM (GMT -6)   
I had a total colectomy 5 months ago.  I've still had some problems emptying, which I'm sure is from pelvic floor dysfunction.  Yesterday I started biofeedback, and the nurse insists that I need more fiber.  I followed her menu today (small amount) of fiber one cereal for breakfast, high fiber bread with turkey for lunch, and tonight I'm having chicken and potato and green beans for dinner.  Since I ate the fiber cereal this morning, I have felt totally blocked; I feel like I have to go and very little comes out.  After my sandwich for lunch, it was much worse.  I drank grape juice, which normally helps, but even it's not working yet.
 
How much fiber do we need now?  I know the problem is that I can't push the poo out, and fiber just makes it more difficult.  I told the nurse this, but she's insisting that I add more fiber to my diet.  She did tell me she hadn't really dealt with anyone in my situation before.  She was trying to help one young woman who had a j pouch, but said the Dr. told the young girl to stop treatments because she couldn't handle so much fiber.
 
I don't know whether to try more fiber again tomorrow, or just eat normally.  I was having some issues before, but today has been horrible.

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 8/14/2009 8:03 PM (GMT -6)   
hmmmm. . . . it depends on the fiber, right? Sounds like you and I are just about opposite. I can't handle things like bran, oats, or multigrain yet--would give me massive gas and diahrrea. However, surgeon said to use metamucil if I need to bulk up. Instead, I prefer to bulk up with potatoes, peanut butter, and pasta. Maybe you should cut back on these and try for more fresh fruits and vegies. I, opposite of you, need to juice these foods. Did I make sense?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


suebear
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Date Joined Feb 2006
Total Posts : 5692
   Posted 8/14/2009 8:35 PM (GMT -6)   

And I prefer to get my fiber from fresh fruits and vegetables.  I know that I exceed 32 grams per day which is the recommended amount of fiber for a coloned person.  I never liked taking fiber supplements, they didn't agree with me. 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 8/15/2009 6:41 PM (GMT -6)   
Everyone IS different! You know your body best and if you need to cut back, do it, sometimes we have to go against the 'norm' to be normal.

I had a proctocolectomy, so it is a little different from your situation, and HATE Metamucil but can tolerate Psyllium Caplets but it took me many tries to get the amount I NEED correct and I was 1 year post op...your body is still adjusting but you'll get it right:)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/15/2009 6:41 PM (GMT -6)   
Everyone IS different! You know your body best and if you need to cut back, do it, sometimes we have to go against the 'norm' to be normal.

I had a proctocolectomy, so it is a little different from your situation, and HATE Metamucil but can tolerate Psyllium Caplets but it took me many tries to get the amount I NEED correct and I was 1 year post op...your body is still adjusting but you'll get it right:)

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/15/2009 7:16 PM (GMT -6)   
i didnt add any fiber, i just eat regular foods and dont even worry about that,lol.
I think if you are stopping up that much then you should cut back some of it.
Hope you feel better.

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 8/15/2009 7:23 PM (GMT -6)   
Thanks for your replies.  This morning I skipped the fiber one cereal, in fact I needed to use a Fleet's Enema to get things moving this morning.  I did eat the fiber bread for a sandwichat lunch  and tonight I had steamed veggies.  It's been a much better day, but that always changes from day to day!  I do take 1 tsp of metamucil every evening and it helps most nights.  When I had colon inertia, fiber just made things worse and I think my small intestine might be affected a littlle, too.  I just think the biofeedback nurse is so into fiber, fiber, fiber that she doesn't understand fiber isn't always the answer.
 
My biggest problem is my muscles don't relax when I push out; I can hold really well!!!  Has anyone had any luck with biofeedback?
 
 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 8/16/2009 1:27 PM (GMT -6)   

Yes, I had a great experience with biofeedback when I had incontinence problems shortly after surgery.  If it's offered to you try it, it just might help you to get control.

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 8/21/2009 8:45 AM (GMT -6)   
Hey Janie
 
so sorry you having problems with going and all.  Yes fibre is personal.  My body still doesnt like fibre - i bloat and get gas so easily on just white bread even. gas tablets do nothing for me. My best low gas  meal is rice and chicken mild curry and no veg at all.  that way my tum can stay flatish.
 
You have to go with what you feel bits your body -  you try it and it dont work, then dont let any idiot nurse tell you differnt.  she doesnt live in your body. 
 
I may be wrong but surely loose stool would be better to 'get out' than more solid?? 
 
i hope you find a solution soon xx
Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..
 
 


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 8/22/2009 8:27 PM (GMT -6)   
Thanks for the responses everyone! Karen, how are you doing? Haven't heard from you in awhile!!

The biofeedback lady is driving me crazy. Yesterday I spend another 3 hours with her, the first 2 with her telling me about what she does for constipation, eat fiber, etc. Finally she went and spoke with one of the doctors after I politely kept telling her she couldn't compare herself to me because she still has a colon. She is clueless. Anyway, I'm eating some fiber, not too much and I still take metamucil (small amount) at bedtime and it seems to work ok. Some days are much better than others and it totally makes no sense. We went out for Japanese Steak House food one night, and I had fried oysters last night; neither bothered me at all and I was able to go, but no diarrhea. I really don't have diarrhea; my problem is more of being stopped up. I still go alot, but just takes many many trips and often prune juice or enema to get things going. All in all, I'm doing ok, but I'm not going to eat all the fiber this woman thinks I should.
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