06/05/2007 - STARR procedure
colonic inertia w/ pelvic floor dysfunction
08/16/2009 - total colectomy w/ ileorectal anastomosis
Hodaya-I can't believe it's you girl!!!!!!! I've been praying and praying for you. Do you not have an NG tube? That would take the bile from your stomach. The swelling is normal, your dr may have done more work on that side, just make sure you let the nurse see it so they are aware of it. Have you been up and walking yet? I am praying for the Angels to surround you to keep you close and to heal your body.
I will talk with you soon, REST, LOVE YOU,
Hodaya-Hey girlfriend, I hope you are feeling a little better. I only had a moment to write a quick note earlier. I can't believe you are writing already! Did the vomiting stop? See if you can get some zofran for the nausea, this works great for it. As for the bloody D this is normal to begin with. I'm sorry you're having pain; I pray that your pain eases soon.
Let us know how you are and know that we love you are are always praying for you,
Hodaya-Hoping and praying you are getting better. Hope to here some good news from you soon. Love you!!!
Marisa-Worried about you; has your dr called you? Please let us know how you are. Praying that you are okay and everything is fine.
Lizzie-You poor thing; I always feel so badly when you are having a bad day, you've been through so much and it's so time for it to be OVER!!!!!!! I continue to pray that this bio... will work and you can have your surgery soon. Hang in there and know that we love you and are here for you.
Jenise-I live just over the PA/NY boarder. I think Lake George is like 4 hours away; it would be a great day trip and I would absolutely love to see you. Ok now for a typical day of eating, it's different now than when I first had the surgery. I'll give you a post surgery day and a present day. Post surgery: one slice of bread w/ organic PB & applesauce cup for breakfast, chicken noodle soup & 1/2 grilled cheese for lunch, and usually soup & grilled cheese again for dinner. I would have another applesauce cup sometime throughout the day and I also had 3 cheap chocolate chip cookies (I have weird cravings). I probably ate this for about a month post op. I then started eating a turkey breast sandwich for lunch and added a peach cup; for dinner I started eating chicken breast or a hamburger, mashed potatoes or rice I didn't put my meat on bread, it was too much food as I still ate small portions for a really long time, well i guess i still do. Just before I got sick in May a typical day would be 2 slices of bread w/ organic PB and a peach cup for breakfast, a greek yogurt @ 10:00, PB & fluff for lunch & flat earth chips for lunch (they contain a 1/2 serving of veggies in every serving & I always ate the spicy salsa ones-YUM), for dinner: usually some type of chicken with hot sauce (I LOVE spicy, hot things), noodles, potaotes, or rice and a cooked veggie of some sort. I also ate 3 of those cheap chocolate chip cookies everyday, don't ask why, I'm just weird and I always had a bowl of Panda Paws ice-cream with milk on it to mix it to make ice crystals. Oh yea, I also ate 3 mini reese cups. Wow, i sure did eat al lot, I don't know how I didn't gain the weight back:) One thing I don't do is use bread on a sandwich, only for lunch. If I have a chicken sandwic, hamburger, or philly cheese steak, I always get it without the bread.
I hope this helps. You can eat a lot of things and yes I was thrilled when I could finally go back to eating hot spicy things because I put hot sauce on just about everything, so don't worry about your diet. The only thing I truly miss is salad. I also REALLY miss watermelon but my dr said I can start to eat it again, YAY. I just love it with fat free cool whip:) :)
Talk to you later, I'm going to catch a few rays,
Love and hugs,
Hodaya I am thinking of you and praying you are doing well.
I just got a call from my surgeon's office. My surgery date will be October 15th! I am glad but at the same time I am already so nervous I am sick to my stomach. Seriously already! I don't know how to settle my nerves I am soooooo worried something will go wrong, and I will be left off worse than I am now.
I read good things then bad things so it can make you crazy as I am sure you all know.
Jen-That's awesome that you've got a date!!!!!! Like I've told many people on here, sometimes too much info can be not a good thing. Focus on the positive and be determined that this is the best thing for you and that nothing will go wrong. I've ALWAYS had that mindset when I've gone into every surgery and even if something did go wrong I knew that I could and would get through it and I would be a stronger person once it was overwith. Remember that I never had one complication from my surgery and it was open and I was only in the hospital for 5 days. You too can have a great surgery; just keep telling yourself that that is what is going to happen. There was a possibility that I might have woke up with a temp. bag but I kept telling my husband that if I did my surgeon better run because he was in big trouble and I didn't so; ALWAYS, ALWAYS, ALWAYS think POSITIVE.
For now, get your house in order, stock up on groceries, cook meals and put them in the freezer if your husband doesn't cook; or start buying gift certificates for take out so you don't have to use extra money when you aren't working; hire a housecleaner for when you get home for a couple of months; get everything possible in order so that all you have to do when you get home is lay around and heal and walk, walk, walk!!!!!!! Oh, and buy an ipod if you don't have one-I tell everyone to-because I'm addicted to mine and it's the very BEST thing to drown out the hospital noises especially at night:)
Remember, that we are ALL here for you to help get you through this and we love you!!!!!
Hodaya-Sweetie, I'm starting to get worried; I hope and pray you are doing okay. Let us know how you are doing.
Thanks Judy. You are an inspiration, and I keep thinking back to you when I tell myself that I will do well. Three doctors have told me that they think I will do very well but still it is worrisome.
I am already trying to get everything done in the house. I have projects going on like painting the front porch and cleaning the basement. Something all the time. Then I have to worry about my husband and kids while I am down and out. My husband is a saint when it comes to helping out so I feel good about that, but he CANNOT COOK! My son has autism so that is a handful in itself. So much to think about and the time I am sure will creep up on me.
I have an IPOD and plan to have it updated and ready when I go into surgery. So much to do so little time!
Hodaya, I too am getting worried. I think about you all the time. I hope things are going well and you are able to check in soon.
Hodaya- Whats going on sweetie....worried about you. Let us know how you are???
Judy- Such words of positivity...hope I can find that going into the hopeful third surgery. I have been discouraged all week and I am not sur eif its because I just "stopped" my antidepressant d/t side effects, or what it is. You always make me smile :)
Jen- So happy for your date....mine, if all goes well, should be right around the time of yours. I knows its unserttling the stuff you read...believe me, I have read some horror stories on reversals. Unllike Judy, I did have a lot of complications and I still am here, doing just fine, and I made it through either way. My story is not the typical and not one to focus on.....:)
Tracy- So sorry to hear about your kids...how did this happen? Are they sure its swine flu? Are they hospitalized??
So I am still doing ok. I do not know if it was the dramatic stop in antidepressant, mentrual cycle, or what. I just feel on edge and very down and out and discouraged. I usually have 1-2 BM's per week with ileo and have not had but one in last 1.5 weeks. Not that this really means much....I have an ileo. Also, I should look at the positive that my biofeedback resting tone dropped 5 microvolts. I am resting at 5 which is normal, but still working on some things. Also, it could be the lack of sleep still and the fact that I was up for 2 hrs with leak last night....I had just healed my skin and now its all ulcerated again and yeast covered. I just want to crawl in a hole, but i will be ok.
Hope u all are well.
Lizzie-hang in there, your feelings are most likely from stopping the antidepressant. You've been through soooo much but if you can just hang in there for a little while longer this will hopefully soon be over. It's still so amazing that things have starting working for you and you are possibly; no, GOING to (we are thinking positively) have your reversal surgery. Keep your thoughts on the end goal and that will help with the down moments. Always know that you are in my thoughts and I pray for you many times a day. Hugs and love to you:)
I know that I keep telling you girls that I didn't have any complications from this surgery and I didn't but I have had soooooo many difficulties from all of my past surgeries and illnesses (kind of like my kidney stone removal turned into a 3 mon ordeal)and my body doesn't react the way most normal peoples do to things that it is a miracle that I did so well with this surgery. My kinesiologist who works with at least 15 people a week tells me that I am her most unique and difficult case as my body doesn't react the way it should; but she enjoys the challenge. So you really don't know if you will or will not have complications; just always keep positive and it's so great that with all that you have gone through Lizzie you can still remain positive and encouraging.
Tracy- I'm so sorry to hear that your children are so sick. Is the swine flu going around at your school? I know that you are scared but I'm sure that they are getting the best care, just remember to do really good hand washing. I will pray for your children and you and your husband.
Have to go I am tutoring a little boy in reading and have to get his lesson ready, then going out to dinner with my hubby. Talk with you all later.
Hugs and love,