Having j-pouch surgery sept 11 !

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ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/19/2009 12:48 PM (GMT -6)   
i went to my surgeon yesterday with my wife and my mom, and he agreed i need the surgery, we scheduled it for sept 11 of this year. I dont have any anemia at this time, however, am a jehovahs witness and do not accept blood transfusions, so just as a precaution, the dr is having me give myself Epogen injections for 10 days before surgery, it will boost my RBC production..
he said i will be off work for 3 months, i will not go back to work in between the two surgeries, and if all goes well, i will be feeling fine for the baby being born in january!
i am getting laid off from my job, but found out i get to stay till march 26, 2010...just enought time to get this surgery paid for! and i am hoping to get approved for short term disability pay while i am out;

24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/19/2009 6:55 PM (GMT -6)   
YAY for being healthy soon! I am so glad you got this figured out.

You said you cant accept blood tranusfions, can you bank your own blood and get it if you need it? just a thought. I had to have three bags of blood after my surgery, BUT i take some meds that can cause easy bleeding.
good luck!

SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 8/20/2009 2:05 AM (GMT -6)   
Im not a jehovas witness, but read about this. Once blood leaves the body, it is forbidden to be returned. So, nope on banking his own blood.

ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/20/2009 10:40 AM (GMT -6)   
the scriptures say blood is sacred, it represents the gift of life,  and we should abstain from it, but there are many things drs can do, like hemodilution, they take my blood and put it in a bag above me, still connected, and fill me up with volume expanders and then after they surg, they let my blood back in, =)
the dr seemed confident that it wont be a problem, since there are so many alternatives these days;
i found noblood.org, its not related to Jehovah's Witnesses but it has some good information too


my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009!

Post Edited (ruissarr) : 8/20/2009 10:44:03 AM (GMT-6)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/20/2009 7:47 PM (GMT -6)   
oh good so you have some alternatives if you do have blood loss, im sorry i didnt understand about what your religion says about blood.

ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/21/2009 5:31 AM (GMT -6)   
its ok , u can go to www.watchtower.org and read about it if u would like =)
my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009! soon i will be med-free!


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/22/2009 9:07 PM (GMT -6)   
Good Luck Issac! May GOD watch over your surgeries and hold you in his hands for healing!
So that you can be the picture of health for your new baby! (and for your wife).
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 8/25/2009 9:32 AM (GMT -6)   
thank you very much! we are praying that it all goes smoothly especially since i am pretty healthy, as in not underweight...
my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009! soon i will be med-free!


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/25/2009 9:58 PM (GMT -6)   
I saw on another post of yours that you would like to give us updates.
Please do! we all want to know how your recovery goes and more!
I personally am excited for you to find out the sex of your baby! i love babies! make sure to tell us.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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