PLEASE HELP REAL PROBLEM

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
   Posted 8/20/2009 3:33 PM (GMT -6)   
went to bathroom at 3AM with the runs (I didn't know how fast) 2 hours later I was soaking wet with liquid feces all through the bed.  I cannot bathe or shower because of my leg in a external fixator - sow nearly a 3 hour sponge bath in a chair.  Worried about infection in the feet.  The chrcot disease thing.  The flange just broke. 
 
OK, I take a nap after this at about 8:30.  So crawl in bed with new appliance in slumberland.  I wake up again at 11:30 to an even more tsunami of bed ridden feces.  This time the the flange and and the sure seal broke.  Then I had my visiting nurse over for sterilizing the fixator - and there she blows again...I felt like a whale.
 
The last chapter in this 4 part leakage saga is it happenened yet again with acompletely clean everything and back to the basics.
 
Right now I am wearing a convatek active something in hopes of a new appliance will stop the leaks.  Don't mind the the liquid stool so much, but I am very afraid of this breakage and leagage of the holister product.  By the way, the holister product was not filled up both time to excess.
 
HELP HELP HELP
 
I thought sure seal protected me from things like this and what would make the flange break four in several hours?  Help?
 
bob
 
 

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/20/2009 7:28 PM (GMT -6)   
hmmm you could have had a bad batch of stuff.


But it could also be because the output is compelty liquid, it could be getting under the flange easier, and sometimes when it comes out really quickly it casues problems.

Lyonene
Regular Member


Date Joined Jun 2009
Total Posts : 64
   Posted 8/20/2009 7:37 PM (GMT -6)   
You poor thing, that's awful to go through that and then not even be able to jump in the shower! No suggestions from me but you have my utmost sympathy.

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 8/20/2009 8:09 PM (GMT -6)   
You could have a bad batch or perhaps what you are using just isn't right for you. Do you think you could use some convexity? Or maybe the type of adhesive on those particular products do not work with your body chemistry? Is there a low spot on one side of your stoma where you may not be getting a good seal and need to 'build it up'? Maybe too much paste? It could be so many things. Is is possible to sleep in a comfy chair until you have a new product to try (this can help a bit when the output is total water)? Could you take some immodium to help thicken the output? If you are not getting a good seal and your output is pure water, you will keep having these awful blowouts. Good luck and I hope you can resolve this quickly!

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 8/21/2009 8:33 AM (GMT -6)   
sorry to hear that
 
so i take it your stoma is rather flatish and that is why you are using convex??
 
i use Hollister paste around my convex - i use Welland freestyle bags (in UK that is).  Have you tried the paste?? it might adhere better.  you shouldnt get leaks if you prepare your skins well and your tummy is a relatively creasefree surface - i am surprised your nurse isnt helping you more.
 
i hope you get it sorted.
Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..
 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/21/2009 10:18 AM (GMT -6)   
Bob--I hope things are going better for you...here's my thoughts:

I agree with justjenjen that you may need another product that works better with your skin and if you are not using convexity, you may need to try that, too. Any type of seal my work better than paste...

Just remember that some people have to try a few different appliances to find the one for you...and here's my last thought: is the nurse that visits a regular nurse or a WOCN? If she isn't a WOCN than I would request a visit from one to get this straightened out. If you can travel to your docs office, do that, that way the WOCN will have all the different types available.

Its problem solving at its best...any info about your stoma will help us to give suggestions!

schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 8/21/2009 3:55 PM (GMT -6)   
i am not convex , and I still have these probs.

cranky bob

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 8/22/2009 8:38 PM (GMT -6)   
Bob - While I no longer have an ostomy, I'm bumping up this topic in case you need more advice, so others see it.

I hope you find the appliance that works for you. My colon surgeon wants me to consider an inverted colostomy (flush with the skin), that I would irrigate once a day (fancy way of saying giving yourself an enema, with tubing and equipment). She claims it only takes an hour so in theory for 23 hours a day I'd be stool free (wearing a large AmPatch to cover the stoma). As of right now we cannot afford ANY surgery, our insurance is sorely lacking and we have two daughters in college, but someday maybe I'd consider elective surgery. I'm just not "there" yet.

But you could at least ask your nurse if irrigation might work for you. It probably wouldn't be an option but I'd at least ask.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Post Edited (Marsky) : 8/22/2009 8:47:58 PM (GMT-6)


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/22/2009 8:45 PM (GMT -6)   
Bob.
try coloplast sensura convex.
I did not need convex, but since I started using them, I have NO leaks.
I truly think coloplast makes the BEST supplies!

Sorry you're having such a rough few days.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 8/23/2009 4:28 AM (GMT -6)   
Ah i think you do need convex- even though i am a newby with this. when i was leaking all ovre hte place my nurse put me on convex. yes i was on coloplast sensura convex - and changed to another type of convex cause my skins was itchy. it def makes leaks impossible as it pushes around the stomas and causes the stoma to stick out a lot more. my stoma is nearly flush with my skin.

so this has gotta help you - surpised your nurse not got you onto a convex bag yet.
Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..
 
 

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